Being Happy- Danni Style

Happy Danni

Happy Danni

I am happy. Considering there was a 12 year period where being happy was exceptionally difficult, being able to say that on a near daily basis is awesome. There are lots of things that make me happy.

I like penguins. Seeing penguins makes me smile- it’s very difficult for me to be sad or upset for long when I am around and aware of penguins. When I was depressed I wasn’t able to be properly aware of penguins, so they couldn’t make me as happy as they do now. My living room is covered in penguins, and everytime I spot one I get a rush of happiness in my brain.

I like the colour purple. Purple is nice and calming and reassuring. I also have quite a lot of purple, as it’s my favourite colour. I covered my wheelchair in purple fabric. When we move house my bedroom is going to be purple (and possibly the living room as well).

I have some amazing friends. Most of them are online- I talk to them on Twitter, Facebook and AYME. These are people who make me feel good about myself, which in turn makes me feel happy. I have reduced my contact with people who get me down, which has also helped. Funnily enough, a lot of my friends have depression or other mental health problems, but because they are so nice and kind even with their illnesses they are a positive part of my life rather than a negative.

Reading blogs and being in touch with people on Facebook and Twitter helped me recover from my depression. Being able to read about other people’s experiences and seeing that I wasn’t alone made it so much easier to get out of the hell I was in. Blogging myself (on my old blog) also helped a lot, as it let me get some of my thoughts and feelings into a way that I could understand them. Being on the right medication also helped, as did having doctors (GP and psychiatrist) who listened to me, accepted me as I was, and stopped trying to force me into boxes that I don’t fit into.

Being diagnosed with autism was also a major step in the right direction for me. I had an explanation for why I was different to other people. I came across autistic adults on the internet who were able to teach me mostly through example that being autistic is okay. Accepting my autism made my life so much easier. I’d especially like to thank Kassiane S., Amanda B., Laura T., Laura R. and those who used to go to the Autistic Liberation Front meetings in Second Life for chatting to me and helping me through the period before and during diagnosis, and while my life was turned upside down.

My old social worker Balamory was also a massive help in my quest to recover from depression. She noticed my autistic traits and badgered lots of people on my behalf, helped me find acceptable housing when I needed it, and also found and helped me attend Interface, the autism unit I used to go to. I wish I had a way of letting you know how far I’ve come since I first met you.

Interface was a massive help. It was my first experience of specialist education, and it allowed me to be successful at college for the first time. There were lots of skills I learnt there that I needed to know to help my independence, both taught on the curriculum and learnt just by being there and with the help of the staff, especially my keyworker Louise. Being able to attend such a brilliant facility just after receiving my diagnosis and having a safe space to just be myself made college doable, even while I was still very mentally ill. Without Louise I don’t think I’d be where I am now.

Learning to be myself again was probably the biggest thing that has made me happy. I spent many years trying to fit in with everyone else, and not quite succeeding. Learning that I was autistic, that being autistic is okay, that being different is okay was one of the best lessons I could have learnt. Once I stopped surpressing my need to move (rocking, flapping, pacing, bouncing) in safe places (at home and in Interface) and then gradually becoming less concerned about doing some of the less extreme movements when out in public meant that I could control my anxiety and actually manage with stuff without it becoming overwhelming. Listening to music, wearing ear defenders, wearing tinted glasses, carrying a pen, my stones and a penguin of some kind with me everywhere are all things that don’t affect anyone but help me to deal with things. Rocking and flapping may look a bit odd, but they don’t hurt anyone and are much better than biting myself or melting down (which sometimes results in head banging).

At home I’m free to not do anything to try and fit in. I play with language- making up words, messing with grammar, talk about random things when they pop into my head. Colin, Vicky and Johan know this very well :) I also do some of the stuff that people are less understanding about, such as having something in my mouth a lot of the time (sucking on things reduces my anxiety and helps me concentrate), humming and random singing, making noises with hands and fingers, wrapping myself tightly in my quilt, piling pillows on top of myself. I also ignore “age appropriateness” when at home, so can go from discussing politics or science or other “grown up” topics to talking in very simplified language about wanting penguins or jelly within seconds. I also play with my wooden blocks, and can spend hours just looking at my colour changing lights or sparkly things. One of the things I want is a sensory room or area with soft flooring and nice lighting and reflective sparkly things where I can spend time just to be myself and not have to worry about things like bills or food shopping or anything else that is difficult for my brain. I was originally going to use the space behind the top of the stairs in our flat (maisonette), but since I can’t walk or manage stairs now and we’ll be moving, it’s been put on hold until we move so I can figure it out when there.

Sammie also makes me happy. As much as I wish I could have her living with me and that I could look after her myself, accepting that I wasn’t in the right place for that (before with my mental health problems, now with my M.E.) and that she is doing so well with her grandparents and is happy herself is enough to make me very happy. I have been terrible at keeping in contact with her, but I’m trying to fix that as I love her more than anyone else in the world.

Johan is just amazing. I am so lucky to have found someone who accepts me for who I am, who has similar interests, and who I love being with and spending time with. That he voluntarily took on the role of carer, both with my mental health problems and now with my physical health problems, while he was struggling himself makes him my hero. I does help that he seems to love me as much as I love him, and I would quite happily spend the rest of my life with him.

Colin and Vicky also took on the carer role for me, going way beyond what was needed as a friend. Both of them helped me to become more independent, and that also meant it was easier to learn to be happy. I will be eternally grateful to both of them for this.

All of this- learning who I was and accepting me for me, learning I wasn’t alone and that there were other people who had similar experiences or similar ways of thinking to me, making some amazing friends who help me feel good about myself, some great support from some brilliant people, having a happy daughter, being in a loving relationship, feeling safe and secure and able to be me, means I was able to recover from depression and be happy. And I like it.

2011 In Review

I did this last year, and enjoyed it so will repeat it for this year.

1. What did you do in 2011 that you’d never done before?
Had an entire year as an adult without depression :) Also, got an A in an AS Level exam :P

2. Did you keep your New Year’s Resolutions, and will you make more for next year?
I mostly kept to them, and have made more (see previous post).

3. Did anyone close to you give birth?
Not that I know of.

4. Did anyone close to you die?
No.

5. What countries did you visit?
I stayed in England this year.

6. What would you like to have in 2012 that you lacked in 2011?
My health would be nice…

7. What dates from 2011 will remain etched upon your memory, and why?
26th December. I made a phone call to Sammie for her birthday and didn’t panic!

8. What was your biggest achievement of the year?
Probably improving my phone phobia, though passing my exams was cool too :P

9. What was your biggest failure?
My body. It decided that it wasn’t already annoying me enough and made things a lot harder.

10. Did you suffer illness or injury?
My M.E. got a lot worse, resulting in me being completely bedbound at times, and mostly bedbound for about half the year. Also lost the ability to walk completely, so when I could get out of bed I had to use the wheelchair. I also had some teeth taken out under a general anaesthetic, with one of them having been bothering me since 2010.

11. What was the best thing someone bought you?
Sammie bought me a World’s Greatest Mummy cup. She also made me a penguin. (I do appreciate the penguins other people have given me this year, but Sammie wins. Sorry.)

12. Whose behaviour merited celebration?
Johan’s, for looking after me, and my friends on Twitter and AYME for being so nice, kind and understanding (that includes all of you with depression).

13. Whose behaviour made you appalled and/or depressed?
Most of the Tory and Lib Dem government.

14. Where did most of your money go?
Bills and disability equipment.

15. What did you get really, really, really excited about?
PENGUINS!!!!!! :D

16. What songs will always remind of 2011?
Forever Yours by Alex Day.

17. Compared to this time last year, are you:
a) happier or sadder?
Happier.
b) fatter or skinnier?
Skinnier. I keep losing weight. I’m happy with it, and want it to stay the same now, but I don’t seem to have much control over it.
c) richer or poorer?
Richer

18. What do you wish you’d done more of?
Probably blogging.

19. What do you wish you’d done less of?
Pushing myself too hard.

20. How do you plan to spend Christmas?
I spent Christmas in bed, being waited on by Johan and watched Doctor Who. Happiness.

21. Did you fall in love in 2011?
Nope, but I made some new friends who I love :)

22. How many one night stands?
Since I haven’t been able to get out without Johan all year, I’d wouldn’t have been able to even if I wanted to (which I don’t, as I have Johan).

23. What was your favourite TV programme?
Doctor Who!

24. Do you hate anyone now that you didn’t hate this time last year?
Still don’t hate anyone. Dislike the government.

25. What was the best book you read?
Either Sapphire Battersby or the Hunger Games series.

26. What was your greatest musical discovery?
Alex Day and Chameleon Circuit.

27. What did you want and get?
Penguins! An A in my AS Computing. I also got the new television I wanted last year :P

28. What did you want and not get?
My health to improve. Instead it got worse (I am not happy with you, body).

29. What was your favourite film of this year?
Harry Potter and the Deathly Hallows Part 2.

30. What did you do on your birthday?
Received a big DLA back payment, so bought a television :P I also ate Doctor Who cake. The day before I’d gone to Flamingo Land with Johan and college so got to go on the rides and see the penguins, which was awesome.

31. What one thing would have made your year immeasurably more satisfying?
My health being better, though to be fair the year was very satisfying anyway :)

32. How would you describe your personal fashion concept in 2011?
Purple and pyjamas.

33. What kept you sane?
Chocolate, penguins and Twitter :)

34. Which celebrity/public figure did you fancy the most?
Summer Glau (still).

35. What political issue stirred you the most?
The government making things even harder for poor, ill and disabled people. Stupid idiots.

36. Who do you miss?
Sammie, as I’ve not been well enough to see her this year, though I am in contact with her.

37. Who was the best new person you met?
All my new friends on Twitter and at AYME :D

38. What was the best thing you ate?
I’m not sure. At times just being able to eat was amazing :P

39. Tell us a valuable life lesson you learned in 2011?
It’s a really good idea to listen to your body if you’re ill, otherwise it may rebel against you.

40. Quote a song lyric that sums up your year:
I can’t think of a song lyric :( Giving up after about half an hour of trying to think of one.

Happiness Is…

Happiness is having a brilliant Christmas.

Happiness is being able to sit up, both in bed and in a chair for a little bit.

Happiness is being able to eat proper food (without choking!).

Happiness is being surrounded by penguins.

Happiness is spending time with a loved one, with no distractons.

Happiness is knowing you have friends who like and love you for who you are.

Happiness is talking to your daughter on her birthday, and hearing the excitement in her voice about Christmas and birthday celebrations.

Happiness is getting all your Christmas wishes coming true.

Happiness is hearing your friends are happy.

Happiness is knowing that your safe and secure.

Happiness is getting lots of lovely, well thought out cards and presents :p

Happiness is being grateful that M.E. didn’t ruin everything.

Thank you.

Teeth Removal

Today I had three teeth removed under a general anaesthetic. Considering everything, I think it went well.

The appointment letter said to be there for 8am. I woke up at 5am, as the last time I could drink something was 6am and it can sometimes take me a while to get fluid into me. It also gave me time to wake up. I woke Johan up about 6am, after I’d taken my meds, and we both got ready to go. I even got dressed in comfy clothes, but wore my new fluffy purple slippers :p

At about 7am Johan phoned the ward to check there was a bed for me and to tell them that I’d be arriving by ambulance so basically we had no say in when I’d arrive. I’d taken some cyclizine as I’d felt nauseous and didn’t want to vomit (as they would be likely to cancel it if I were sick) so felt quite tired and just rested while waiting.

At 9.30am the ambulance hadn’t shown up, so Johan phoned the ambulance people to confirm they were taking me. One was on its way and it arrived 15 minutes later. This time it was proper stretcher transport, not the accidental one I got last week, so I couldn’t take my wheelchair. This meant Johan and I got confused as I tried to make my own way out of the flat as normal, but then had to manage to walk a few steps to get on the stretcher outside the front door. The ambulance men did hold me up and support me with that, but it was very painful and I felt really ill and dizzy, so it was a bad idea (I offered to crawl as it was only a short distance, but they said that would be undignified). Once on the stretcher I was mostly okay, though we did forget my ear defenders as they were on my wheelchair. I did have my sunglasses on though so that was something.

When we arrived at the hospital they took me up to the ward and I managed to shuffle onto the bed from the stretcher. One of the things I am still able to do is very short bursts of activity to enable transfers, which always surprises people as I do them quickly to try and prevent getting stuck (I’ve tried doing them slowly before and I normally end up getting too tired halfway so need help). Johan gave the nurses a list of things to try and help them understand me a bit better, and they mostly followed it, which was awesome. Before they left the ambulance men told me off for trying to get out of the flat by myself and told me that I really need to use the carry chair next time. That’s me told :p

It was only about 15 minutes of people going through what was going to happen and stuff before they were ready for me. I tried to confirm as much as possible, but I was feeling pretty exhausted by this point so I’m not sure how much I said made sense. I’d already agreed to it all when I could think though so I wasn’t worried. They brought a trolley for me, I did my shuffle over, and they took me down to the theatre. They went through things again, then took me through to be put to sleep. I warned them I’d panic when they put the cannula in (and they kept telling me the needle was out when I was complaining that the cannula itself was hurting). They then gave me some painkiller that I think also makes you drowsy (fentynl or something- I’ll look it up tomorrow :p) and I can’t remember after that.

When I woke up I was in massive amounts of pain. Surprisingly it wasn’t my mouth that was bothering me, but my arms and legs were agony and I also had a horrendeous headache. It turned out they’d given me paracetamol, which explained the headache (note to self- make sure all medical people know never to give me paracetamol) and I suspect my arms and legs were hurting because they were in a bad position and I wasn’t really able to move them. Johan says they were worried by the amount of pain I was in (I may have screamed a few times- I can’t control it that well when I’m tired) but they didn’t show it to me, nor did they show me they were concerned about my full body violent shakiness (I’d put it on the sheet that it happens when my body is overwhelmed).

They took me back to the ward and when I was able to gave me tramadol, which took a few goes to swallow as I was finding it hard to control my mouth. I was on a drip and had to finish the glass of water before they’d take me off it, but the straw it had was really awkward for me. I was struggling to think so wasn’t able to ask Johan to get my hydrant out, which would have been a lot easier for me. I felt absolutely rubbish as there was too much light and noise, and though I had my eye mask I didn’t have my ear defenders so everything was just too much, and was making the pain worse. The tramadol didn’t do anything, so I had some ibuprofen (got Johan to give me some of the liquid stuff I’d brought in rather than trying to swallow any tablets) which helped a bit with the headache and the mouth pain, though did nothing for the arms and legs. I told Johan that I wanted to go home since I’d be more comfortable there, and he and the nurses agreed that was the best idea.

The doctor came to check on me, and his touching me made my voice disappear (he’d obviously not read my sheet). Luckily by that point the noise had died down as everyone else had left so I was able to tolerate the light with sunglasses on, so I got Johan to get my Transformer out so I could type. A nurse came and told me lots of things I can’t remember now, but are on a piece of paper she gave me so I’ll get Johan to be in charge of that. They phoned for the ambulance and a little bit later the same ambulance guys came.

The journey home was uneventful- Johan was talking to one of the ambulance guys and I was able to type a couple of things to join in when I could (we were talking about computers and things). This time they insisted I’d have the carry chair, and I wasn’t going to argue as I knew it was the best idea. I again did a quick shuffle (note to self- explain to new people that quick shuffles are easier for me than doing things slowly for transfers) and I held on to my penguin while they wrapped me in my blanket and strapped me in. They got me to my bed and I collapsed onto it, and I was glad to be home.

So that’s been most of today. Since I got home I’ve done some very basic stuff on my Transformer, had a few soft things to eat (jelly, Milkybar chocolate dessert thing, a prawn cracker and a bit of trifle), had some Mountain Dew to drink, taken more painkillers which actually helped once I took the double dose my GP allows me, and lay in bed. Colin also came over to ask Johan to print some stuff for him, so I was able to whisper to him a bit (my voice came back after a bit of resting, but whispering is a lot easier on my throat). I also had a meltdown when Johan went to the shop and instead of coming into the living room when he came back he disappeared into the kitchen, which made me panic. That was not good.

Plan for the next few days is just to take it easy. I’ve got nothing planned from now until Christmas other than Christmas shopping, which I’ll be doing over the next few weeks. That doesn’t require leaving my bed so I’m happy. Johan’s got some stuff to do with the carer’s association but he can do that himself, now he knows they can help and he’s spoken to them before. They’re doing brilliantly at writing to my social worker. I won’t be going out again for the near future, as the only way I can get back in is by ambulance carry chair. That”s quite scary, actually, especially since I don’t have medical priority for the council housing list yet as I’m not ill enough.

I’m happy that the nurses at the ward did such a good job of taking my needs into consideration today. I think the list helped. I’m also grateful to the ambulance men who helped me and were keen to make me as comfortable as possible. You rock :)

Patch 4.3

Today has been a World of Warcraft day. I have spent far too much time sitting at my computer playing that game. The reason for this is today patch 4.3 – Hour of Twilight was released. To people who now have no clue what I’m talking about, this means there’s lots of new stuff to do in the game that there wasn’t yesterday.

The first thing I did was get Danni sorted with some nice gear. I decided that until I get around to farming a proper pretty set of armour, I was going to wear Black Mageweave (I am a tailor so made it myself), which is less pretty and more sexy. Up to now I’ve not seen anyone else wearing it, so that is good.

I then started dumping most of my old gear from my bank into void storage. And got angry because some of the items weren’t allowed in, for vague reasons. Like my Ashen Verdict ring that I kept from Ice Crown Citadel. I managed to dump quite a bit in there though, and that meant I could dump stuff from my bags into my bank, so now I can actually use my bags again. This is good.

After a long rest, I went back on to do the new 5 man dungeons. We got a mostly guild group together, and had a pug mage from a different realm who was awesome and gave me cookies. The new dungeons were a bit challenging but not too hard, and were tons of fun. I did sit up for too long so I could complete them all (we had a few wipes while learning what to do and with me occasionally failing) but it was worth it. The individual dungeons are short enough that if I’m having a good day I should be able to run them, so that’s awesome.

There’s also a new raid, but I’m not geared enough or well enough to try that yet. Maybe when I improve a bit.

Johan went out today to the MetroCentre. Apparently it was packed. This may have had something to do with a strike that was going on, that meant most of the schools were closed, among other places. He didn’t really buy anything that I saw, but did use his mobile phone to buy a McDonalds on the way home, paid for by Google. That was cool, though I want a McDonalds and can’t have one because the bus drivers won’t let Johan carry one on for me :(

I am now hungry. I have to wait for Johan to complete a dungeon before he can even start cooking. This means I’ll have to stay up late. I’m not particularly happy about this. At least I can watch Penguins in the meantime.

Tiarna the Mage

Spent a lot of the night being very naughty and instead of resting levelled my mage, Tiarna. She’s currently about 78% of the way through level 84 and I hope to reach the level cap of 85 tonight. Other than that I’ve been sleeping, and sleeping, and a bit more sleeping.

Did receive my book 365 Penguins today though. It’s massive, and the box it came in was even bigger (yes. a book came in a box). I love it though- so many penguins :D

Don’t seem to be getting any payback from yesterday yet. It may be I’ve got lucky, or it may kick in tomorrow. I’m hoping it’s luck.

Posted in Danni, Gaming, NaBloPoMo, Penguins!, World of Warcraft. Comments Off »

Penguins, Penguins and Penguins

I like penguins. Tonight was Frozen Planet on BBC1, so I got to watch lots of penguins, both King and Adelie (there were no Emperor ones tonight, I noticed). Today I also bought some penguin stuff- a book called 365 Penguins, some penguin wall stickers, and some purple penguin pyjamas (in a size 14, since I’m losing weight without trying now).

Tomorrow I have the doctors. I am worried about going out, and having to sit up so long. I should probably be considering home visits but I don’t want to yet as I’m not that ill, surely? I’m going to be asking about ambulance transport to the hospital, as going by taxi didn’t work that well last time.

Had a bath this evening, and lovely Icelandic carer told me my hair now goes down to my bum :p She also had to support me a lot more than I normally need.

I need to sort out the living room, as it’s frustrating me that it’s so close to tidy but not quite there. It would take Johan a few minutes, but he won’t do it (or he would have done by now) so I’m going to have to do it. Tidying the cushions on the sofa and putting some rubbish in a bag caused my legs to jerk uncontrollably this morning, followed by being unable to move them at all. It’s the closest I’ve been to waking Johan up, as the pain in my foot was excrutiating and I couldn’t move it. Luckily it wasn’t too bad when I woke up this afternoon.

Posted in Danni, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life. Comments Off »