Oct 312013
 

So it’s the 31st of October. Tonight lots of small children will be going trick or treating, people will be dressing up and parties will be had. Last year I was a penguin princess. This year I’ll be in bed, where I’ve been since the end of November last year. I’ve bought some sweets just in case of any trick or treaters, but we didn’t get any last year and I’m not expecting any this year. Johan is scared as he doesn’t want to be human and have to answer the door.

I’m not going to attempt NaBloPoMo this year. I’m not doing as well as I was at the beginning of the month and though I’m hoping it’s just a blip I think extra pressure would be a bad thing at the moment. I’m going to try and post more frequently during November but without forcing myself to do so everyday.

I have a new regular carer. She is nice and understanding, but my slight decline means I’m not always well enough to have personal care done at the times she’s here. It is frustrating me as I want to be clean and dressed (and out of bed…) but my body makes it so hard. I have a lot of dry, yellow skin I want removing but touch makes me worse. This illness is cruel and though I try to remain positive I get angry at it.

 Posted by at 9:59 am

  One Response to “Halloween”

  1. I’m sorry to hear that you’re feeling poorly (poorlier?). I hope it’s just the change in the weather that’s doing a number on you. You’re smart to know your limits, and to not push yourself too hard. I’m still trying to figure out how to do that, 8 years into my own illness. I’m just well enough to do too much, and just sick enough to end up paying for it for weeks to months afterwards.

    No matter what you do for Halloween, we know that you will ALWAYS be a Penguin Princess! {{{hugs}}}

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