Dysautonomia Sucks

A rant, then an update.

It’s becoming more obvious to me that dysautonomia (dysfunction of the autonomic nervous system) is causing the worst of my symptoms right now. Which is a problem, as that’s things like heart rate, blood pressure, breathing, digestion, urinating, and everything else the body does without thinking about them. POTS (postural orthostatic tachycardia syndrome) is one form of dysautonomia, but ME can cause others.

The main ones causing me bother are heart rate and blood pressure (making me super dizzy and unable to sit up, amongst other things) and digestion. The first I’m used to, as it’s one of the reasons I’ve been bedbound so long. The second one has recently got worse, and I’m not happy about it. I’m also having issues with breathlessness and bladder stuff, but they’re manageable.

So digestion. About a month ago my body decided that solid food was just gonna hang out in my stomach for more than a day. Which I know because sometimes it comes up and reminds me it’s not moved on to my intestines yet. I’ve had reflux and regurgitation issues as long as I can remember (one of my earliest memories is bringing up milk and apple while in nursery, so I was 3 or 4), so I’m used to it. I’m not used to bringing up identifiable bits of chicken 37 hours after eating it, or rice 26 hours after doing so. 10-12 hours is my normal since getting ME.

I’ve had it before, and previously I’d give my stomach a bit of a break by swapping to liquid foods for a few days, and that would be enough to sort it. It’s also previously only happened when my ME has been really bad, so I’d normally be struggling to chew as well so liquids helped there too. I figured I just didn’t have the energy to digest properly, and once I came out of that bad period it resolved itself.

This time, my ME isn’t actually that bad. Chewing isn’t difficult. I’m able to do basic self care tasks like wipe my face and help with things like changing my top. I can even use cutlery every few days. I have enough energy to watch films and read books. In those ways, I’m doing pretty good for me. But I can’t digest solid food properly.

I swapped to liquid and dissolvable foods, following what my dietician told me years ago when chewing was impossible, and it did help. I was only bringing them up for 12-14 hours after eating, which isn’t amazing but I’ll take it. I’ve also discovered the combination of soup and milkshake is not one I like, especially mixed with stomach acid, so I really need to leave at least 14 hours between them. Rusks go with both, and have the advantage of being solid enough to feel like I’ve eaten something, but pretty much liquid by the time I’m swallowing it. I’ve eaten a lot of rusks.

Every few days, I’d try a bit of rice or banana to see if it was getting better. And until last week, it wasn’t, so I went back to the liquid foods. Then I again tried rice, and I stopped bringing it up after about 12 hours. Since then I’ve had a few days where I’ve been okay with what I’ve eaten, and others where I’ve needed my antiemetic to keep it down and it’s still coming up the next day. I think it’s getting better but slower than I’d like, and I’m mostly only having one meal a day with snacks which isn’t ideal but better than nothing.

As for what’s wrong, we suspect I might have something like gastroparesis (partial paralysis of the stomach), which is not uncommon among those with my combination of stuff (especially hypermobility and dysautonomia). I’m too ill to get tested though, and it’s not yet serious enough to make us worried, as I am still able to eat, even if it’s not necessarily what I want. I’m sure it’ll resolve itself like it has done previously. My IBS continues to be a pain, but it’s my normal so that’s also reassuring.

I do want to know why I still get hungry while my stomach is full though. That one I can’t figure out. Good for making sure I still eat, bad for my nausea and reflux.

</end of rant>

Other than that, I’m mostly doing okay. I’ve already read 7 books, so I suspect I’ll be upping that goal soon. I’ve watched a couple of films, and have started raising the back of the bed in the hopes of getting back to sitting up, though I overdid it one day and got payback. I’ve also been doing some planning.

Izzy’s leaving the country this month. Twice. A few months ago she booked a cruise to northern Europe with some friends for her annual holiday/break from looking after me. That starts on the 30th March, so I was already updating my care home instruction book and sorting things out for that. Then last month she got asked to go to the USA for a work trip. This is a massive opportunity for her, so we said yes. This event starts on the 19th March.

We get 4 weeks of respite a year, though it turns out it’s not January to January like Izzy thought, but July to July, which meant we only had 15 days left. Social services have been very good and given us the extra we need as a one off, which we’re very grateful for. It’ll be the only time I go this year, so that’s fine.

Izzy will be home the week between the two trips, but I’m not going to be well enough to travel twice in such a short space of time so I’ll just stay at the care home until she’s home from the cruise. Which one? We don’t know yet.

All the ones with nursing care I’ve previously stayed in near here, and the others within easy travel distance, can’t take me. Mostly because they have no room or aren’t doing respite right now, one because they think they can’t meet my needs which is better to know beforehand but frustrating. Izzy’s now trying ones that are further away and we’re accepting I’m going to be more ill. I’m meant to be going in on Friday so there’s really not much time (Izzy has been trying to sort this out for the last couple of weeks, so it’s not her fault).

Am I well enough to travel? Nope. We know ways to mitigate the worst symptoms, and luckily unlike when I go to hospital I don’t need to be able to communicate clearly at the other end (we do warn them) so I can mostly shut off and just try and recover. Going into respite last year it took about 3 months to recover once I got home, but hopefully because my ME symptoms aren’t quite as bad (even if my dysautonomia is worse) it won’t take that long this time. Care homes are not a good place for me but Izzy being unable to continue looking after me would be worse. The extra week and a bit for the work trip won’t make that much of a difference.

Izzy has requested I don’t say exactly what her work trip is, but there’s no way we’d have been able to afford it. Luckily we’re not paying πŸ˜› To help, her boss has agreed that as me going into respite is essential for Izzy to go, the day I go in counts as a work day. If she’d not been going on the work trip, I’d have gone in on a day she’s already requested off as holiday before her cruise, so this is cool and fair. Hopefully she gets a lot out of the work trip, and that more people will know about Arcade Paradise VR (the reason she’s going). I’ve demanded she brings home some peppermint Lifesavers, since I remember really liking them as a kid but they’re too expensive to buy here. I also want pictures of San Francisco and planes.

The cruise is going to be fun. Same friends and cruise ship as she went on last year, but another friend in the same group has been convinced to go. Last time it was to the Norwegian Fjords, this time is northern Europe (Germany, the Netherlands, Belgium). I’ve been involved in the planning, have been promised lots of photos, and a trip to the zoo to see penguins (and meet another online friend who lives nearby) has been organised. I’m mostly hoping I’m well enough to video call while they’re at the zoo so I can see the penguins, but if not Izzy is going to film them for me. I’ve also told her to try a fresh stroopwaffel.

To add to my anxiety over not knowing what care home I’m going to stay in, my home care is all messed up right now. Previously I had a stable team of 3 amazing care workers, but two of them have left in the last month, and the third only does Tuesdays (and has taken this week off). I have been asking who is meant to be doing my calls, but it’s been changing on the day and we’re not getting told this. They’ve also been changing the times of the calls without letting us know, so I keep panicking. I’m hoping it’ll be more stable when I come home again, but we’ll see.

The combination of everything means I’ve been struggling to sleep until I basically crash. I’m also both drinking and weeing more (caused by adrenaline), meaning Izzy’s being woken up more often to deal with that. Once I know what’s going on it’ll be fine, I just need to get through this period. Being Autistic is mostly great when things are going well, but I really struggle with uncertainty and change, which is what’s currently happening.

It has been fun planning for Izzy’s trips though. When I couldn’t sleep one night she gave me the job of finding her a new suitcase as she gets one checked bag for the work trip and her current one is noisy and awkward to pull. I gave her multiple options and she decided to go for the biggest that met the size requirements, not realising it’s huge. It’s purple and lightweight though, so will be good. Just need to figure out where we’ll be storing it when she gets home again. We also found out American Airlines and Alaska Airlines allow huge cubes that would be easy to transport a human in, if it weren’t for the 27 kg weight limit.

What I do in the care home depends on how well I am. I’m hoping I have decent enough wifi or 4G so I can watch stuff, and I’m taking my Steam Deck and adapted controllers so I can play games if I’m up to it. Over the next couple of days I’m choosing clothes and downloading games and stuff to watch in case the connection isn’t great. I’ve already updated my care plan/instruction book (there’s only one extra section to clarify something). If there’s a TV I’ll take my Chromecast, if there isn’t I might take one depending on how difficult it is. There’s also F1 to watch if I get a good enough signal to stream it.

If I’m not well enough for any of that, Reddit exists for when I’m conscious, and adrenaline has a massive effect. I’ll also take my galaxy projector to watch if I can’t brain at all. Worst case scenario is I sleep and rest a lot, and I can do that in any bed if I’m in a room by myself, which I will be. I doubt I’ll be well enough for visitors but I’ll let local people know if I happen to be.

How much I’ll be able to talk to Izzy (probably via WhatsApp) we’re unsure about right now. Definitely not while flying, maybe not while working or partying (apparently that’s also work?) in the US, but probably at the airports, in the hotel, and when just being a tourist. When she’s in the UK it’ll be similar to our normal when I can’t speak, and when she’s on the cruise we can talk when she’s in port, but only on sea days if she buys WiFi which we’ll try to avoid (she caved last time).

It is very weird to not talk to her at all for a day. Since we got married that’s happened twice – once when she was in hospital without her phone, and the first sea day on her cruise last year. If my sleep is all over the place it might be asynchronous, but that’s one of the benefits of using a messaging app.

Penguins are still good though. Floof (the baby little blue fairy penguin I saw hatch on a New Zealand webcam stream) grew up and left the nest, so I’m now watching another young penguin go through a molt in the same colony. I’ve also been watching the burrow cam of some Australian fairy penguins, where there’s two chicks going through their first molt. I love that I can watch them from bed on the other side of the world.

If I’m awake this (Tuesday) evening I’m planning to watch the Barbie film with Izzy. Hopefully I’ll also have more of a clue with what’s going on by then too. Until then I’ll keep distracting myself with penguins and looking up all the things Izzy will be too busy to do in San Francisco next week.

Entertainment Goals for 2024

I like watching, reading, and playing things. Now I’m finally coming out of the November smol relapse (to contrast with the Covid big relapse) I’m actually able to plan what I want to achieve when it comes to entertainment. All of these are very health dependent, but hopefully I’ll manage some of them.


Reading 15 books I mentioned in my general goals list, before I realised it was getting way too long. I’ve managed 2 books so far, and I’m in the middle of a third. I’m not too fussy over what I’m going to read, but I’m hoping to progress with rereading all the Chalet School books I have access to on ebook, and continue reading Terry Pratchett’s Discworld books in published order, interspersed with other stuff. I’ve got well over a thousand books on my to read pile, so often the problem is choosing what to read next, though Storygraph can help there. I’m deliberately avoiding anything too heavy right now, but if I improve maybe I’ll change that.

Separate from actual books, I also want to catch up on my This is True premium newsletters and chapters of The Sisters of Dorley (which is technically also a book series, but I get it emailed to me by chapter via Patron so it feels different). I enjoy both, just got behind while ill.

TV Shows

I’m starting to be well enough to watch things again, and I’ve got quite a backlog. I definitely want to catch up with Doctor Who, Star Trek Discovery/Picard/Lower Decks, and Hilda. Izzy tells me the new Gladiators is good, apart from the hosts, so if I catch up with that I can watch with her. The shorts on Disney Plus are good when my attention span isn’t great. Taskmaster is always fun, and doesn’t require watching in order really. I’ve never watched Game of Thrones or The Expanse, or many other series that came out in the last ten years, so my problem is having too much to watch rather than not enough.

For live stuff, I’m going to be concentrating on Formula 1 races. I like cars go fast, and it’s something I share with Izzy (if I’m well enough she joins me in my room to watch). Silly season has already started, so it’ll be fun to follow that when I can.

Usually I’d also try and watch Eurovision, but this year it very much depends on what happens with Israel. I’ll figure it out nearer the time.

If I manage all of Formula 1, and at least one season of something else, that will be good.


Another one where there’s too much choice. Top priority is the Barbie movie, which I’ve been told I’ll enjoy and is excellent. I got a code to purchase a free film in December and this is what I bought, so I’m just waiting for the right time. I still want to continue the Marvel films up to Endgame, and I think the next one I need to see is Iron Man 3. Also on the list are Star Trek: Beyond, the Warcraft movie, The Hunger Games from Catching Fire onwards, and lots of Disney/Pixar films.

It doesn’t help that new films I want to see keep coming out faster than I can watch them. This year I’m looking forward to Inside Out 2, and I’m sure there’s others I’ve forgotten.

If I manage 5 films this year, I’ll consider the goal complete.


My favourite. Games are amazing for dealing with chronic illness, so long as I’m well enough to play them. I’m lucky to have a gaming pc, Steam Deck, Xbox One X, and my android tablet to play games on. I also have access to a modified low force Xbox controller and Xbox adaptive controller with low force switches, so I need very little strength to use them (Special Effect are awesome).

My tablet is the most accessible, as it’s got a decent sized screen, can be used with one finger if needs be, and it’s my main communication device so I always have access to it. I’m always on the hunt for interesting games that can be played with one hand on there, but right now I’m playing Godville, Penguin Island Puzzle (a 2048 game), Castle Solitaire, Cookies Inc., Usagi Shima, and Vampire Survivors.

My goals for my tablet games are to complete all the achievements on Penguin Puzzle Island, unlock everything in Vampire Survivors along with completing every stage on every character (doable if new content isn’t released too quickly), and continue playing the others while I still find them fun.

On Xbox (including via cloud streaming if that works better) I’m wanting to finish the Frog Detective games and Unpacking, and if Izzy is available play Untitled Goose Game with her. I have Game Pass so if I find any new games on there I can play them too. Or I can just stack the boxes in Arcade Paradise again πŸ˜›

I have so many games available on my Steam Deck and PC. This year I want to focus more on games that are actually completable to some extent, though if I can get on my computer enough to make playing World of Warcraft worth it, I’m definitely playing that.

I’ve started off well by completing the DLC for A Little to the Left a few days ago, then finishing all the achievements and seasonal content. I’m currently playing Sticky Business and Stray Gods, both of which feel like they should be completable this year. There are a few games I really want to try soon, like Dordogne, Cats Organised Neatly and Journey that also feel like they won’t take forever.

For longer games, I’d like to make progress in My Time in Portia, Mass Effect 3, and Plague Inc. Mass Effect requires me to be on PC really, but the other two I can manage on the Steam Deck. Too many excellent games, not enough useful time to play them all.

Overall, if I manage to complete 5 games I’ll be happy.


These are the easiest watching stuff things I can do. If I’m well enough to put the telly on, it’s usually to watch one of these, even if it’s mostly in the background to keep me company. I’ve got a backlog of paid for (membership/Patreon) videos I want to watch, so hopefully this year I’ll get caught up. Other than that I want to get back to watching my favourite Twitch streams (prioritising those I also moderate) and also watch/listen to Dice Funk and other things I like on Youtube.

That’s all of them. Lots of goals, but I’m not expecting to meet all of them and a year is a long time. If I continue improving (or at least not getting worse) then I should make decent progress. It also helps me when I have the energy to do things to know what I want to do, so I don’t waste it all trying to decide. I’m so happy that I’m now well enough to do these things 😊

Goals for 2024

New year, new goals. Normally this is where I’d review my previous ones, but after having a really bad relapse in 2022 I don’t even remember if I set any last year. Not a big problem though 😊 I’ve got quite a few for this year, though as always they’re very much health dependent, and I’m not expecting to manage them all. I have some for games, but they’ll be in a separate post as this is already very long.

Read 15 books

The only one I remember from last year was to read 20 books. I managed 10. I figured I’d start with a goal of 15 since I feel more able to read again (already managed two books) and I can up it if it feels too low.

Sort out my social media

I miss talking to people, and I’m hoping that with my slight improvement in brain stuff I’ll be able to manage it more. I currently use 6 services, and need to figure out which are most useful to me and how best to use them. I’ve found a multiposter website which helps a bit with posting at least, and Firefox with add-ons is now usable on my tablet.

  • Discord – Go through servers, leave unneeded ones, reorganise them so the most important ones are at the top.
  • Twitter – Find the people who I want to keep up with who haven’t moved, unfollow those I don’t/struggle with, see if there are ways of blocking the intrusive posts.
  • Bluesky – Remember it exists πŸ˜› Find those who moved over from Twitter I want to keep up with. Give those I know who want to join invite codes.
  • Facebook – I found an add-on that makes it much easier to use by blocking sponsored/suggested posts, so I just need to leave unneeded groups, mute/unfriend those who I struggle with, and favourite those I really want to keep up with.
  • Instagram – Remember to use the following mode, maybe occasionally post stuff? When well enough, comment.
  • Mastodon – Continue organising my lists, check for Twitter friends who have moved over, upload penguin emojis.

I think Mastodon will continue to be my main social media service, but not everyone is on there so I’ll try and check in on the others reasonably regularly. I’m not going on Tiktok as it’s far too overwhelming, and I don’t use YouTube as social media.

Create list of meals we both like

Izzy and I are both forgetful. It’ll make food shopping a lot easier if we know what we want to eat. We’ve done well to reduce how many takeaways we’re eating by swapping to Ocado for our main shop (they put the use by/best before dates on the receipt so I can see them, and they tend to be longer so we waste a lot less food and are actually saving money), so the next step is to list our favourite foods, how easy they are to make, and what we should keep in stock for when my health plays up and I can’t feed myself or chew.

Do more loom knitting

This one depends on both my hands doing well and me remembering to ask for the stuff to be given to me, but I miss creating things. I’ve got three projects I want to focus on:

  • New arm warmers – Simple, but require accurate row counting so needs some concentration.
  • Hat and scarf set for Sammie – I started this a few years ago, but realised quickly that I needed to redo it with the extra pegs on the loom removed. That’s going to require Izzy’s help. The patterns are simple but the yarn is a little fiddly.
  • Hat and scarf set for Izzy – The easiest of the three, as the yarn I’ve picked is easy to work with and the patterns are pretty much keep going until it’s big enough. This one I can do while watching or listening to something.

Eat more vegetables

I love most vegetables. I want to eat more. Fruit is easy, because Izzy can just hand me a pear or a pot of prepared fruit or similar even at 3am, and when I can’t chew the baby fruit pouches are tasty cold.

Vegetables are harder. Literally, for most of them, when uncooked. I like things like raw carrots, but they’re not worth the digestive pain they cause. Cooking them is often beyond Izzy’s ability if I’ve been asleep all day, and the baby veg pouches are not nice cold (we’ve not yet tried them hot, because that’s cooking).

We’re looking into a safe way to give me soup that also isn’t too complicated for Izzy. She mostly vetoes it because she’s fed up of me getting covered in it, which is fair. I wanted to replace my Sucup as the mouthpiece went missing, but they’re not sold any longer which is annoying.

We’re going to keep microwave veg packs in stock (preferably without too much sweetcorn which is fiddly to eat with hands) and also sweet potatoes which I like just microwaved and then topped with cheese. I’m going to keep looking for options when I’m awake only at night, preferably that don’t cause massive pain.

Drink Tea

I’m British. I like a good cup of tea. Izzy does not like me and the bed being covered in hot tea, which has happened even using various special cups and straws. I’ve solved the milk being off whenever I want a cup by buying milk powder (I’m not fussy), now we need to figure out a way I can drink it safely that is also easy for Izzy. Hot chocolate has the same issue, but should also have the same solution.

Work on sitting up

It sucks having to start from the beginning again, but I’ve done it before so I can do it again. For much of the November/December relapse I had to tilt the bed backwards so my head was lower than my heart, but I’m back to flat now with my usual two pillows. My dizziness is also getting back to my normal, so I’m hoping soon I can start working on raising the back of my bed so I can hopefully get back into my wheelchair without it causing another relapse.

If I can sit up enough, go outside for fun

It’s been over two years since I last went outside other than to go into hospital or respite, and I was on a stretcher for the former and completely out of it for the latter. Since my wheelchair tilts and reclines, I don’t need to be that sat up to be able to manage it. Even going on the ramp would be awesome.

Work on making my bedroom nice

My bedroom is currently a mess, with a lot of clutter and has random blobs of blue tack and missing paint on the walls where things have fallen down, which really bugs me. I got a new curtain pole and curtains in 2022 which helped a lot with the window (and means it’s much easier to adjust light levels).

As I’m not well enough to have it redecorated right now (and we’ve got no idea where we’d put everything to get it done) I’m hoping to at least get the blue tack off the walls, and cover the missing paint with posters or stickers. Izzy covered up one patch with a penguin sticker and it makes me smile every time I see it, so I know that can work. We have Goo Gone for when it’s time to remove them to decorate.

I’m also slowly sorting out my bed bags and want to work on my bedside trolley. During Covid my room became a bit of a dumping ground for anything Izzy didn’t want to misplace, on top of the stuff I need, so I’m hoping quite a bit can go (either out of the flat or in a better place).

We’re getting an hour a week of help for tidying and cleaning, so even though I could only tolerate 20 minutes last time progress was made. Apparently the rest of the flat is much better too. With that, and little things like having matching bedding and displaying photos and penguins, I’m hopeful it’ll be nice in here again 😊

See People

I’m not well enough for this right now, but I miss seeing people. I know there are people who want to see me too. My brother has a boyfriend I want to meet, and there’s friends I’ve not seen in years. I’m hoping I’ll manage it later this year 😊

That’s quite a lot. No idea yet how achievable they are, especially those requiring help from other people, but I like having things to look forward to and having stuff to do when I’m bored. My awesome carer says this is gonna be my year, and I’m going to do my best to make it so 😊

Happy New Year!

It’s 2024. My new penguin calendar says so. My tablet says so. Izzy says so. It does not feel like 2024, but the evidence shows that it is the case. I hope you all have a wonderful year, in whatever form that takes.

I had a good Christmas overall. I was well enough for Christmas dinner, including my birthday roast potatoes (I asked for them as a birthday present and was willing to wait 6 months for them). They are the best roast potatoes in the world. The lamb was good too πŸ˜›

I was also thoroughly spoilt with cards and presents. A huge Piplup (penguin PokΓ©mon) Squishmallow, penguin chocolates, penguin Lego, a hat, Icecue (another penguin PokΓ©mon) pin badge, magic snake puzzle/stim toys, the penguin calendar, and I’m sure I’m missing some. The messages in the cards made me feel so loved and connected. I am a very lucky penguin.

I saw Sammie just before Christmas, to give her both her Christmas and birthday presents. Somehow she’s now 20?! And studying for a degree?! She eventually wants to become a video game developer like Izzy. She’s at the point where when she’s asking for academic help I can’t give her it, but luckily Izzy can. I’m really proud of the woman she’s become. Seeing her was well worth the payback.

Also just before Christmas we got a video doorbell, as the doorbell we had for our back door had died and that’s the side most deliveries and people go to. I was concerned about it as it’s a small block of flats, but Izzy told me one of the other flats has one and I discovered we could turn the motion detection off, which both makes the battery last longer and means I’m not accidentally spying on the others in the block. I can watch it live though, which is great for feeling less confined. It also means if I hear the doorbell going, I can easily check whether it’s a hallucination or not without disturbing Izzy.

Otherwise it’s been quiet. Still not well enough to watch much, though I popped into a couple of Twitch streams over the holidays. The last couple of days have been a bit better for that, so I’m watching a little blue fairy penguin nest live stream on YouTube. Yesterday I got to see a chick hatch from its egg! There’s a sibling that’s still yet to hatch which should happen in the next day or two. The chick is still in its scrunkly stage, where it looks more like an alien than a bird. It’s adorable.

I’m due a B12 injection (turns out I’m deficient and it might be partially responsible for some of the neurological issues I’ve got going on, and some of the fatigue) and I’m hoping that once it kicks in I’ll be able to do more. I don’t like them (needle phobia), they hurt, and they make my mouth taste weird, but they do help me be less foggy and make it easier to stay awake. I also don’t want to make any neurological damage worse, which is what would happen if I didn’t get it. At some point I need to talk to my GP about a few other niggly things, but it’s not urgent.

I have some goals for the year, but I’m going to put them in a separate post so they’re easier to find when it comes to reviewing them. I’d also forgotten how much I’d missed blogging. Writing that last post helped way more than I expected, and I discovered people still read these. Thank you so much πŸ’œ

Things being bedbound makes easier

Not being able to get out of bed sucks. You miss out on so many cool, interesting or even mundane things, you need to rely on other people, and there’s so much you can’t do. Very occasionally, however, there’s an upside. Some of these are pretty universal, others might be more specific to me.

  • Surviving Whamageddon. The one that gave me the idea for this list. It’s easy to not accidentally hear the song Last Christmas by Wham if you control any music you listen to. Even easier if you’re too ill to listen to any music at all.
  • Not falling. Before I got so ill I could no longer get out of bed, falling was a frequent event. Even when I used my wheelchair, I’d sometimes fall during the transfer. Not being able to get out of bed and having bed rails means it’s been years since I actually fell.
  • Avoiding traffic jams. If you don’t go out, you can’t get stuck in traffic.
  • No commute.
  • Not being rained on. If you have a roof or ceiling above your bed, you’ll not get soaked from rain unless something has really gone wrong.
  • Staying out of the wind.
  • Not getting sunburnt. My skin burns super quick, so I really appreciate not having to worry about it, or deal with the sensory nightmare that is sunblock.
  • Getting out of many tedious chores. You can’t wash the dishes, clean the toilet or mow the lawn if you can’t get to them.
  • Breakfast in bed. Every day.
  • Only wearing uncomfortable clothes/shoes if you want to.
  • Having the perfect excuse to get out of unwanted travel. If someone wants to see you, they can come to you. Can also sometimes work for those who live with you.
  • Always having something soft and cosy nearby. My fuzzy electric blanket and cuddly penguins help a lot when I’m struggling.
  • Not having to get up when it’s cold to go to the toilet. And as I’m incontinent, if I’m well enough to watch stuff or play games, I don’t need to (can’t) stop in the middle to empty my bladder.

I’d much rather be well enough to get up and do things, even the boring things like cleaning or commuting, but looking for the positives helps make things easier.