First of all, M.E. is not just about being tired. There’s a lot more to it than that, including pain, muscle weakness, over-sensitivity, and lots more. I’m still working (slowly) on a proper blogpost about it. Tiredness is what I’m talking about today, though.
I’m tired. Really tired. All I want to do is sleep, but I did that all day so can’t really now. I woke up when the carer arrived this evening, and was too tired (and in too much pain) to move to even go to the toilet. I was too tired to watch penguins on telly. Too tired to have anything to eat for a couple of hours. This isn’t just normal tiredness, this is complete exhaustion that doesn’t go away no matter how much sleep I get.
On sleep, mine is pretty random now. I sleep for anything from 8-18 hours at a time, then am awake for anything from 8-22 hours. There’s no real rhyme or reason to it. Any attempts to sort it out up to now have failed, mostly because I’m just too ill. When I improve a little bit I’ll be trying to sort it out. Until then I’ll just have to deal with being out of sync with everyone else.