Wanting to blog but not having the spoons to write a proper post, so going for a brain dump instead.
I have hoists. One in bedroom, one in living room. I don’t have host slings yet. Not been able to contact OT to get them (carer has left messages). Care home was okay. Baths were awesome. Had two. No major problems. Able to manage 2 hours in wheelchair talking to friends. Movement still an issue- taxi home caused payback I’m not over yet.
Was different care home. Original care home not allowed to take social services people now as so bad. They’ve got worse since I was last there and they forgot me. This care home was one I wanted to go in anyway but Johan too scared to phone. Didn’t find out couldn’t go in booked care home until day I due to go in. Duty social worker did good job finding place at new care home for me. Went in next day for just over a week. Had puter. Was good.
Danni now sleep lots. Sleep during day and some of night. Know it’s payback but makes things hard. Now forget important things like how to pay bills. Need stuff doing but too ill. Best time of day is easily hours of morning but no-one able to help me then.
Digestive system still ebil. Still not seen doctor, but hoping to soon. Want to eat without agonising pain. Body says not allowed. Is mean. Also not good at making food stay in stomach instead of mouth after swallowing.
Hoping once payback finished and got hoist slings can work on sitting in wheelchair. Really want to see the lunar eclipse. That would be awesome. Will need to work on coping with movement but can manage short bits okay, so should be able to go on ramp outside.
Want to feel better. Want to not be ill. Glad things aren’t worse but still wish they were better. Still got penguins 🙂