Today is 10 years since I started this blog. This means that yesterday Izzy and I celebrated our 10th wedding anniversary. We had a couple of hours of cuddling in my bed while watching cricket, amazing food from our local Korean chicken place, and then I ended up sleeping the rest of the day because I still have severe ME and cuddling is exhausting 😛
The last 10 years have been very different from what we’d have predicted. We didn’t know how ill I’d get, or even that I’d still be ill by now. We moved from Crawcrook (a lovely village) to Gateshead (a decent sized town) once I could no longer manage stairs and needed to be closer to the hospitals. I went from mostly walking with crutches to full time wheelchair use and then nearly completely bed bound and unable to sit upright. Izzy went from being inside all the time to going to a day service, then volunteering for both the day service and a local games developer, then in March getting a full time job with the games company (just in time for lockdown :P). She also took up running and turned out to be pretty good at it. We also both realised we were trans. Over the last few years Izzy has got to know Sammie really well, and now Sammie trusts her when I’m not available to help out, which makes me very happy.
Some things are the same. We both still play World of Warcraft and are obsessed with computers. Penguins are a massive part of our lives, and most of our belongings are purple. We still very much like cuddling each other, and get frustrated when I’m too ill. We both like talking and listening to each other’s special interests, and just being in together while doing our own things.
The original plan was as we had a very small wedding (5 guests), we were going to have a blessing and bigger party for family and friends for our 1st anniversary. As I got more ill, that was postponed until the 5th, then the 10th. At this point, we have no idea when I’ll be well enough, so we’ll worry about it when I’m able to actually manage one, whenever that’ll be. We definitely don’t regret our wedding, especially since we weren’t to know I was going to get so much more ill so quickly. In the meantime, we just spend what time we can together and hope one day I’ll be well enough to see people again 🙂
As for how we’re doing, we’re mostly okay. Still hiding from the world, so not having anyone in and Izzy’s still working from home. I haven’t blogged much as I was badly affected by Mel Baggs’ death, mostly because it shouldn’t have happened. We hadn’t spoken recently, but if it weren’t for hir and Laura Tisoncik creating the Autism Liberation Front in Second Life I wouldn’t have met Izzy, and I’m not sure I’d even be here without them. The world is a much poorer place without Mel, but hir writing and legacy will remain.