Month: August 2011

Danni

Project 365: Day 62: 18th August 2011 – Results

College, Computing, Danni, M.E., Physical Disability, Project 365

Results

I think I’m allowed to be happy with them 🙂

Long day. Picked up results at about 8.40am, which meant I left at silly o’clock. My appointment at the CFS clinic was at 11.30am, so we decided to go into Gateshead. On the way to the Metro station one of my footrests fell off. I was able to hold it in place with my foot until we bought some duct tape in Gateshead, where we bodged it back together.

Went around the shops until my appointment. Didn’t buy much, just shampoo, conditioner, duct tape and chicken Bovril (it’s for a recipe).

Went to my appointment, and it went well. They agreed that my mental health problems/autism are not my main issue (though they’re contributing), and there was a definite onset of new symptoms following the bout of Swine flu I had in August 2009. They have offered me Graded Activity Therapy, which looks good. Combines pacing and activity with the aim of gradual improvements. They’re also going to contact my social worker over me getting a walking frame, as I need something more steady if I’m going to be starting to walk again. I also have colour charts and activity diaries to fill in.

Went to the MetroCentre after the appointment, which was okay, but stayed out too long. Spent all day since then in or on my bed, alternating between resting and messing around on the laptop. Johan has also spent the time feeding me and taking me to the toilet.

Danni

Project 365: Day 61: 17th August 2011 – Ear Defenders

Danni, Project 365

Ear Defenders

Today was mostly a bed day. As it is a Wednesday, I have no morning carer, so of course I woke up at 10am anyway. Spent most of the morning on my phone or laptop not doing very much.

I did get up for a bit in the afternoon to do Netherwing Dailies in World of Warcraft. They take ages, but are really easy since I’m 15 levels higher than they’re designed for. Should only be a week until I’m exalted then I’ll be able to have a beautiful purple drake 🙂

Had a nice carer for my bath today- she doesn’t normally do my round so I’ve only seen her a few times, but she actually cares and wants to help. She also let me rest between getting out of the bath and getting into nightclothes and hair done 😀

Also today my ear defenders finally turned up- a week late. They fit well, and are bright pink, so I’m happy. Will test them out on the bus tomorrow when I go get my AS Level result and go to the CFS clinic (by wearing them on the bus, not at the appointment :P).

Danni

Project 365: Day 60: 16th August 2011–The Sims Social

Danni, Project 365

The Sims Social

This is what I’ve been doing quite a bit of today. It’s a nice game that requires no concentration, so good for when my brain isn’t working 😛

Spent a lot of today sitting up. First was doing Netherwing dailies to try and get my drake in World of Warcraft. They take ages, but now I’ve finished everything I want in the Molten Front it’s okay finding the time. I also went and did a Firelands trash run this evening.

In between I went to the library for some books, and for my weigh in at Slimming World. Stayed the same, which is okay. Hopefully I’ll lose some next week 🙂

Been a bit off all day- feeling really bloated and ill, and took painkillers while out. Apparently I was in a lot of pain- I’d just not identified it as such, because the painkillers made me feel a lot better. Tomorrow I have no morning carers, so will sleep as long as I need.

Danni

Project 365: Day 58: 14th August 2011 – Poorly Johan

Danni, Project 365

Poorly Johan

We now know why we needed to come home last night. Johan seems to have come down with some sort of bug, and has not been feeling well at all 🙁 He’s spent most of the day sleeping on and off on the sofa.

Because of this, we didn’t go back to BarCamp today. Although I am sad to have missed it, Johan needed rest, and we had been to the longer of the two days so it’s not too bad. I spent most of the day reading TV Tropes.

Favourite carer came to give me my bath, and I also asked her to get my tea as Johan wasn’t well. She did so, and even made it look pretty for me 🙂 It is a sign of how much I trust her that I felt comfortable asking for her to do something that isn’t on my care plan, as with anyone else I wouldn’t have been able to do so. She is awesome though, and my bath was nice 🙂 She’s also the only one who lets me rest in between each stage of having a bath/getting dried/getting dressed/getting hair sorted.

Hopefully Johan just has a 24 hour bug type thing, and will be better tomorrow. He’s not sure if he’s sleeping on the sofa or upstairs yet, as he doesn’t know if his legs will get him there.