I’m not having the best day ever today, pain being almost completely unbearable and feeling guilty over things that I probably shouldn’t, like Johan (or anyone) being I’m the room making me feel loads worse so having to limit how much I see him. It sucks, especially as any touch is horrendously painful. The isolation is probably the hardest thing about ME at this level. Johan is also feeling alone because of it, which is where the guilt comes in.
As I’m not doing great I’ll review the year and last year’s resolutions in another post, when I’m feeling more up to it. I just wanted to note down this year’s before I fall asleep.
1) Comment more on blogs. I read a lot of blogs but very rarely comment. As I like comments, it’s likely the other bloggers I read do too. I’m not putting a number or anything on this as my ability to do so depends on my health, but I’m going to try and comment more. I just hope there aren’t too many Captchas to attempt to deal with π
2) Sort out my emails. I’m not too bad for this, as I use Gmail and my inbox is not too bad, as I go through it every few days. However, I still have emails going to my Danni Matzk email address, and I get a lot of newsletters that are no longer relevant. I want to go through and sort it all out so I get the emails I want to the correct addresses, and stop receiving what I’m no longer interested in. I don’t have to do it all in one go, but it would be nice to have it sorted by the end of 2013.
3) Sort out my Google Reader and Pocket. Similar to the email one this. I’ve realised there are blogs in my Reader I’m no longer wanting to read, so I should get rid of them. This will also mean I’ll be able to add new blogs that interest me when I come across them without being overwhelmed. Pocket is where I send particular blog posts or webpages I want to read later (perhaps when I’m able to concentrate better) but it’s gotten a bit out of control. I hope by the end of 2013 that they’ll both be a bit more streamlined and work better for me.
4) Try and communicate better with my friends. This one is very health dependant, but I have friends who have been amazing at keeping in touch with me and I’d like to reply or maybe even initiate contact more often. Even if it’s just sending an email, text message or Facebook message once a week or so when I am able, it’ll be more than what I’m doing now. Twitter is still easiest for me, but I can spend a little time communicating elsewhere as well.
These are all internet related resolutions. I’ve learnt over the last year that my health can change drastically in a short space of time, and I’m going into 2013 almost as ill as I’ve ever been. Since I spend my spare energy on my tablet, I should be able to do these if I remind myself. Maybe I can set reminders on Google Calendar π
Happy New Year, and I hope 2013 is as good as possible for everyone.
@Dannilion {{{Hug}}} hope this relapse relents soon!
Jan O’Malley liked this on Facebook.
Hi Danni … hope our conversation yesterday didn’t cause you to get any worse. I don’t know if you read my blog, but don’t feel you have to comment if you’re not physically up to it. I’m sure all the other bloggers feel the same. If you can’t even cope with Johan in the room then it’s probably best (if you can) that you chat to him rather than us online. He’s in the next room and lonely after all.
I was just having a conversation on Twitter with Jane Colby who said that she had been very seriously ill for many years but had got a lot better (although she’s still ill). I told her I hope her story gives you and others in the same situation hope.
Sorry, I didn’t mean to press Enter then. Anyway … I really hope you get a lot better in 2013. I’ve been following you this year and I remember how high a note it started on and you being able to get out in your wheelchair, and then how bad it got after that, so it must be a pretty disappointing end for you. We’ve got folks round, but I’m upstairs on my own, writing something about the honour for the wretched Simon Wessely!
Sorry the pain is so bad Danni. Thank you for this post and all you give out on twitter, FB and this blog. Love to you and Johan, and best wishes for 2013. xx
Sorry you’re not doing so well, honey, hope 2013 is better for you xx