Week 33 Review

A metal ornament, which is round and has a lion's face and mane on it, representing the Alliance in World of Warcraft.
For the Alliance!

We’ll ignore that the photo was taken a week late and is rubbish πŸ˜›

Monday the 13th was our 8th wedding anniversary. As is normal, I spent most of it sleeping, but before I slept I ordered McDonalds breakfast for us both and we had hugs (which are awesome but very painful).

The launch of the World of Warcraft: Battle For Azeroth expansion was at 11pm UK time, so once I woke up I went into WoW with Johan in preparation, as I had decided to buy digital version of the expansion so I could play at launch. It ended up activating a few minutes early, and it was a mostly smooth experience for us. I managed to get to level 114 and finish the main storyline in Drustvar before having to give in and get more sleep, mostly fueled by caffeine and crisps. Since we both like WoW, it was a pretty decent anniversary πŸ™‚

Tuesday my Collector’s Edition of the expansion arrived, and I looked at the pictures in the novella book and Johan complained about my Alliance metal ornament thingie having the Horde logo on the back, before he put it under the telly on my Tivo box. I tried taking a photo but as it’s far away, dark and my hands are very shaky it is a bit rubbish.

Most of the week consisted of playing WoW, recovering from playing WoW, and sleeping. On Thursday I had an appointment with the CFS team person, where I was told that important people are saying they have to stop home visits. They’re trying to keep them but if they don’t succeed that was my last appointment. It sucks because I found them really helpful and I think I’d be doing worse without their input. If I had more spoons I’d yell at the important people but I don’t.

Playing WoW has brought up a new issue I have – turning my head for more than a couple of minutes causes pain to shoot up my neck and head on the opposite side. I was getting it while turning my head to see my second monitor, and while the CFS team person was here (which confirmed it’s a problem on both sides). It’s really annoying as being in bed it’s hard to keep looking straight forward all the time. Johan did swap my monitors over so my main one is now in front of me which helped a bit, but it’s still annoying. I’m gonna have to see the doctor about it as it’s new and causing me problems. Hopefully it’s something that can be fixed.

I feel really lucky to be well enough to play so much WoW. Johan is super busy with volunteering and running, and my best times tend to be in the evenings or the middle of the night, so I’m restricted in what I’m able to do when well enough. I really missed it when I couldn’t manage it, and hopefully I’ll be able to continue playing for a long time.

  • Overall mood – Awesome all week. Mostly normal symptoms, and playing WoW really helps distract from the blehness.Β 
  • Average daily sleep – 9 hours 50 minutes
  • Longest sleep – 19 hours 45 minutes, from Saturday morning to Sunday morning.
  • Clothes changed – 2
  • Wipe wash – 1
  • Water wash – 0
  • Hair wash – 0
  • Books read – 0
  • TV watchedΒ  – 0
  • Streams watched – Penguin cam
  • Music listened to – World of Warcraft: Battle for Azeroth soundtrack
  • Podcasts listened to – Episodes 44 and 45 of Welcome to Night Vale
  • Blog posts written – 1
  • Penguins cuddled – Lots
  • Johan hand holds – Daily
  • Johan hugs – Yes!
  • Time on Twitter – 4 hours 27 minutes (average 38 minutes a day)
  • Time on Reddit – 11 hours 6 minutes (average 1 hour 35 minutes a day)
  • Time on Facebook – 1 hour 10 minutes (average 9 minutes a day)
  • Other –
    • Desktop computer tracking is working, though I need to work on making my categories easier to use.
    • Caffeine seems to have an overall positive effect on me, making me more alert and less dizzy. I was expecting to crash afterwards but other than needing a long sleep, I’m mostly Danni-normal.
    • Took a couple of days to do a food shop as My Supermarket couldn’t log into my Morrisons account for some reason, so had to manually do the order again. That was not fun.

Game Stuff

  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
    • World of Warcraft
  • AC: Pocket Camp Level – 118
  • Godville Heroine Level – 58 (11% done)
  • Godville wood for ark – 37.2%
  • Godville savings – 1 million, 585 thousand
  • Cross stitch completed – 1
  • Most played game – World of Warcraft (34 hours 17 minutes, average 4 hours 53 minutes a day)
  • Other –
    • I love the new WoW expansion. The storylines are great and there’s so much choice in what to do.
    • Johan also loves it. I paid for his expansion and a month’s subscription so we can play together (or at least talk about it together, as we both play healer priests and have different playstyles)
    • Reached level 120 on Friday. Was awesome!
    • Finished the fishing event in Animal Crossing, so they released another flower event. Starting to be a bit overwhelming.
    • Did I mention I like WoW? πŸ˜›

Week 32 Review

A screenshot from Animal Crossing Pocket Camp. There is a black faced penguin with crosses for eyes and has blue wings on the left, who is wearing a purple top with a large yellow star. On the right there is a pale skinned human with a beak and purple hair, wearing a purple and white top. They are wearing matching purple caps. The text says, "Cube and I are matching! This isn't weird at all!".
Forgot to take a photo so a screenshot from Animal Crossing instead. Penguins are awesome.

This week has mostly consisted of playing World of Warcraft and sleeping. I am so happy to be able to play WoW again. I’m doing okay so long as I don’t move, and being on my computer requires very little movement. I’m also very happy to be home.

Most of the WoW stuff I played was the Battle for Azeroth pre-patch events. Darkshore being invaded by the Horde was hard emotionally as my main character has always been a Night Elf Priestess, but the destruction of Darnassus made me cry. The quest A Flicker of Hope was heartbreaking, knowing that there was no possible way to save everyone. I might have helped save Azeroth from so many different threats, but I couldn’t save my home. I liked the Silithus quests that explained why my artifact weapon was no longer super powerful, but I wished there had been more to it. I’m looking forward to the new expansion next week. Sylvanas must go.

I also convinced Johan to resubscribe to WoW, after saying he would never do so again πŸ˜› He has a lot more catching up to do than me.

Outside of WoW, I’ve not done much. I wrote a blog post for Severe ME day, which took me so long it ended up being posted the day after. Writing that was a ton more draining than playing WoW, so I had to come off puter afterwards. I’m glad to have written it, and eventually I’ll be linking it as it’s more up to date on how ME affects me.

I ended up with a migraine on Saturday, which almost wrote the weekend off. I’m lucky that so long as we dose me up with all my medication I can sleep through the worst of it. Our new upstairs neighbours have been arguing a lot which isn’t great. I know our other neighbours are just as fed up and we’ve got to keep a record of when it happens. I’m hoping they stop, though preferably without one of them being murdered (which happened to our original noisy upstairs neighbours).Β 

  • Overall mood –Mixture of good and awesome. Mostly high symptoms, probably because of the care home.
  • Average daily sleep – 10 hours 32 minutes
  • Longest sleep – 15 hours 32 minutes from Saturday afternoon to Sunday morning (deep sleep 54%)
  • Clothes changed – 1
  • Wipe wash – 1
  • Water wash –  0
  • Hair wash – 0
  • Books read – 0 (I’ve managed to misplace my Kindle)
  • TV watched – None (playing WoW instead)
  • YouTube videos watched – Some
  • Streams watched – 0
  • Music listened to – 0
  • Podcasts listened to – 0
  • Blog posts written – 1 (Severe ME Day)
  • Penguins cuddled –  Yes!
  • Johan hand holds – Indeed!
  • Johan hugs – 0
  • Time on Twitter – 5 hours 47 minutes (average 49 minutes a day)
  • Time on Reddit – 22 hours 8 minutes (average 3 hours 9 minutes a day)
  • Time on Facebook – None tracked
  • Other –
    • I forgot to set up tracking on my desktop computer so although I did spend time on Facebook, I don’t know how long. I have fixed that.
    • I’ve not been putting much in my daily diary. Too much WoW playing πŸ˜›
  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
    • World of Warcraft
  • AC: Pocket Camp Level – 117
  • Godville Heroine Level – 57 (74%)
  • Godville wood for ark – 35.8%
  • Godville savings – 1 million, 536 thousand
  • Cross stitch completed – 0
  • Most played game – World of Warcraft (27 hours 19 minutes, average 3 hours 54 minutes a day)
  • Other –
    • World of Warcraft is definitely my favourite game.
    • I healed some LFR raids. I told them I was rubbish and just pressed random buttons, but a couple responded I was very good at pressing the right ones. Made me feel happy πŸ™‚ Most of the groups were good like that.
    • I also helped try and take over Undercity/Lordaeron. Sylvanas destroyed it as well.
    • Completed the Flutterfly event in Animal Crossing with a day to go.

Week 23 Review

Danni is smiling happily at the camera in bed. They are wearing a purple Orange Boy Fan Club top with an orange cat on it.

I am so happy I had a shower! Johan took the photo after I’d been sorted out in bed afterwards.
Mostly had a chilled out week, saving energy for the Sunday as Johan promised he’d shower me if I was well enough, no matter how he felt (after I’d asked him a few times and he didn’t feel up to it). I ate a lot of ham and pease pudding sammiches, because they’re nice and I remembered to buy the ingredients when I did the food shop.

I did quite a bit of sleeping, and reading Reddit/watching YouTube/playing mobile games when not resting. Sammie confirmed that her internet was more stable which I’m happy about.

I had to call Johan home early due to digestive problems, and had issues with my legs and hips due to how long I was lying on them (I have to sleep on my side as otherwise I can’t breathe properly, and though the alternating air mattress helps a bit it doesn’t fix all the pain).

Johan ran the Blaydon Races on the 9th of June, and I was able to follow his progress via his Garmin GPS watch, which I then live tweeted because I could. He told me afterwards that I knew before he did what his time was. Garmin said he took 38 minutes 9 seconds to run 5.6 miles, but his official result was 38:04. As he was wanting to get under 40 minutes he was very happy with this. Afterwards he went out with friends and came back less sober than he left πŸ˜›

A map of Blaydon that shows last part of the route Johan took, and run information such as finishing time.

Sunday was shower day and it took until the evening for me to be well enough, but it was awesome. Found another couple of things I need to improve on the shower chair to reduce pain such as lumbar support and some sort of cushioning on the foot rests, but that shouldn’t be hard.

I do want to find out why I can’t breathe properly when the shower is on my head and neck (and face, but that seems more obvious). We’ve got it on the lowest setting and the temperature is fine, but something about it makes me really breathless. It could just be pain as even on the lowest setting each water drop hurts, but it’s less of a problem below my shoulders. Makes washing my hair interesting but at least with it being so short right now it doesn’t take long.

  • Overall mood – Good, with a normal level of symptoms most of the week, high level Wednesday and Thursday.
  • Average daily sleep – 9 hours 19 minutes
  • Longest sleep – in 19 hours 1 minute from Thursday morning to Friday evening (deep sleep 59%)
  • Clothes changed – 2 (Gender is a Universe top, Orange Boy Fan Club top)
  • Wipe wash – 0
  • Water wash – 1 (I had a shower!)
  • Hair wash – 1 (Shower! Yay!)
  • Books read – 0
  • TV watched – 0
  • YouTube videos watched – Vlogbrothers, Tom Scott, Jessica Out of the Closet
  • Streams watched – Rockhopper penguin cam
  • Music listened to – 0
  • Podcasts listened to – Welcome to Night Vale (Episodes 33-37), Uncommon Sense (Episodes 0-2)
  • Blog posts written – 1
  • Penguins cuddled – Poseidon demanded the most 🐧🐧🐧
  • Johan hand holds – Yup
  • Johan hugs – 0
  • Time on Twitter – 3 hours 59 minutes (average 34 minutes a day)
  • Time on Reddit – 18 hours 17 minutes (average 2 hours 36 minute a day)
  • Time on Facebook – 21 minutes (average 3 minutes a day)
  • Other –
    • I had a shower! It had been nearly a year since the last one so I’m still excited.
    • Have discovered most of my penguin bedding has disappeared. I hope it turns up soon.
    • TV Tropes is good to read when not feeling great.
    • Rockhopper penguin chick is called Floof because I say so (and is a big ball of floof). Floof escooped their nest this week, but ran back and hid behind parent when hoomin came.
    • This blog post is late due to payback from shower. It also was posted prematurely as I pressed the wrong button. Twice.

Game stuff

  • Games played – 4
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
  • AC: Pocket Camp Level – 105
  • Godville Heroine Level – 54 (80% done)
  • Godville wood for ark – 25.8%
  • Godville savings – 1 million, 63 thousand
  • Cross stitch completed – 5
  • Most played game – Animal Crossing Pocket Camp (12 hours 11 minutes, average 1 hour 44 minutes a day)
  • Other –
    • Completed Bumblecubes event with a day spare. Having lots of generous friends in game helps a lot.
    • I miss World of Warcraft and other PC games. I hope to be well enough to play them again soon.

Week 4 Review

Danni is lying in bed with a massive smile on their face. On their shoulder there is Poseidon, a baby emperor penguin.

This week has been pretty good overall. I’ve been on a huge high from going in the living room last week. Thursday was Johan’s 29th birthday, and though I’ve not managed to sort his presents out properly yet I think he had a good day. On Friday we got a takeaway to celebrate and I had a yorkshire pudding wrap with pulled pork in the middle. It was very nommy.

The only downside is I tried to do a food shop on Tuesday and I got so overwhelmed my brain broke. For a few days afterwards I couldn’t really make decisions without a lot of help, and felt really out of it and foggy. I think I’m getting over it now. I keep forgetting that cognitive stuff can be just as exhausting and blehness making as physical stuff. It didn’t stop me being happy but it did make me need a lot more rest and help than I otherwise might have done. I think next time it might be better for Johan to do it (as that happened despite having a shopping list – not being able to find out what we already have in makes it a lot harder, but even trying to work out what was better value was too hard).

On Monday I read Fahrenheit 451. I’m not sure I really understood it but it was good. I’d like to read it again at some point when my brain works a bit better. Since then I’ve been reading stuff on the SCP Foundation website (and on the SCP subreddit). It doesn’t matter that I can’t understand a lot of it, but it was good for when by brain was broken (even if I did keep reading the same ones over and over again because I forgot I’d already read it until I got near the end).

Sammie got hit by the Malwarebytes update problemΒ yesterday. Unfortunately I was half asleep when trying to help her (I woke up to roll over and have a drink and noticed the chat) so didn’t get her to check the task manager which would have revealed this. I guess resetting Windows 10 isn’t the worst thing in the world. Luckily she was able to backup everything she wanted to keep, and she was glad to hear this morning that it wasn’t her fault.

I bought a new electric throw/blanket as the one I wanted was finally available on Amazon. I have one I got a few years ago but the material felt horrible and even putting a duvet cover on it didn’t help much. This one is fleecy and though it’s an ugly brown it works and is small and light enough for me to use by myself. I just need to figure out how to stop knocking the buttons on the controller in my sleep as they’re very sensitive. I also got new penguin towels which are cute. I’m hoping they don’t go missing as much as the other towels we have.

  • Overall mood – Awesome
  • Average daily sleep – 7 hours 56 minutes (of 9 hours 48 minutes)
  • Longest sleep – 10 hours from Tuesday afternoon to Wednesday morning (of 13 hours 47 minutes)
  • Clothes changed – 1 (Zen penguins guide to hoppiness, due to accident as was too ill really)
  • Wipe wash – 0 (only had underarms done when changing top – too ill for anything else)
  • Water wash – 0
  • Hair wash – 1, with shampoo cap.
  • Books read – 1 (Fahrenheit 451Β by Ray Bradbury)
  • TV watched – 0
  • YouTube videos watched – 2 – Corgi in an elevator and Newsthump card game.
  • Music listened to – Steven Universe songs, Moonlight Shadow.
  • Blog posts written (including this) – 1
  • Penguins cuddled – plenty 🐧🐧🐧
  • Johan hand holds – tons
  • Johan hugs – 1 on his birthday πŸ™‚
  • Time on Twitter – 3 hours 56 minutes (average 34 minutes a day)
  • Time on Reddit – 25 hours 54 minutes (average 3 hours 48 minutes a day)
  • Time on Facebook – 51 minutes (average 7 minutes a day)
  • Other –
    • Johan is now 29!
    • Johan ran to Scotland this morning. It was 10 kilometres from Carlisle to Gretna Green.
    • We only needed 1 extra care call for Johan going to Scotland. Knowing the care agency will respond in an emergency makes a massive difference.
    • Electric blanket is awesome! It doesn’t completely replace heaty penguins and hot water bottle, but it does mean I don’t need them heating as often.

Game stuff

  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
    • DragonVale
  • AC: Pocket Camp Level – 67
  • Godville Heroine Level – 48 (5% done)
  • Godville wood for ark – 4.1%
  • Godville savings – 220 thousand
  • Cross stitch completed – 3
  • Most played game – Animal Crossing: Pocket Camp (16 hours 6 minutes, average 2 hours 21 minutes a day)
  • Other –
    • Managed to finish the second half of the butterfly event in Animal Crossing: Pocket Camp with about an hour left to go. I was incredibly lucky and had some very generous friends in game.
    • Much preferring the Winter Sports Event. I got one of everything within two days, including getting the Snow Park amenity to level 2. I’ve just finished building my eighth mini skate rink and any extra snowflakes from now on will go on more tiaras.
    • DragonVale released an update with extra levels an islands to get. Break postponed until I get them all.

Happy New Year!

I hope everyone had a good Christmas/holiday period, and that this year is better than the last.

I’m still not doing amazingly. Caught another cold before I’d recovered from the last one, so haven’t got out of bed since the Great North Run in September. Despite this, I had a lovely Christmas, and was thoroughly spoilt.

Johan bought me this amazing purple glittery crystal thing, that is sparkly. I’m hoping to find somewhere to put it that has a light shining on it so I can see it properly. He also got me some sheets which is very practical when bed bound πŸ˜›

Sammie came over on Christmas Eve, which was the best present from her, especially the hug. She also brought me gifts, a wall sticker of some penguins swimming through a port hole, and this huge penguin cushion that’s also a hand warmer. She got Johan (now also called Dad2) a t-shirt saying “I am currently unsupervised. I know, it scares me too, but the possibilities are endless!”. Both of us were extremely happy. Sammie’s grandparents gave me a chocolate penguin and chocolate smashable igloo, and Johan some running socks. That was awesome of them 😊

My mum gave us a pod coffee machine. As Johan has now started drinking coffee, this is very much appreciated. If also does hot chocolate so I’ll be able to use it too. Other gifts included a hot chocolate mix and some star decorations from friends (and I think there were others I can’t recall right now). I’m grateful for all of them, and along with the many cards I received feel very loved.

Christmas day I spent time video chatting Sammie, which is always good. Johan made Christmas dinner, which was roast duck, his amazing roast potatoes (even better this year!) and the trimmings. I managed to stay awake to eat it, and also watched the Doctor Who Christmas special with Johan. Loved the episode, and it makes me want to catch up with the last series (I’d only got up to the 2016 Christmas special before). I may not have been able to get out of bed, but it was awesome.

Boxing day the payback from the last few days hit, so I spent most of the day asleep or resting. I did manage to message Sammie to wish her a happy birthday (she’s 14 now, which is kinda scary) and I think she liked the presents we got her. That’s pretty much how I spent the rest of the week, though on the Saturday Johan went to South Shields to run his 50th Parkrun, which also took him to 1000 miles ran in 2017. An awesome achievement, which I slept through so he went for breakfast and cake with his running friends.

New Years Eve I woke up in the evening, and just before midnight put the telly on to watch the London fireworks and spoke to Sammie through messenger. The fireworks were awesome to watch, even though I’m torn on whether it’s a good thing or not. Once they finished the telly went back off as it was a bit much for me, but I’m glad I got to see the pretties and virtually celebrate with Sammie.

Payback is hard to deal with, as it makes all my normal symptoms much worse and adds in new ones which isn’t great, especially when I’m already in relapse from the successive colds. It’s a lot easier to deal with though when it’s due to doing something nice. I know that with rest and patience it will pass, and hopefully I’ll be able to get out of bed and do stuff again.

Since my last blog post I bought a new Android tablet, as my old Galaxy Tab S was freezing, randomly rebooting and generally being less reliable. It had lasted 3 years including many drops and falls, so I’m happy with that. I replaced it with a Google Pixel C, which is much faster. I also bought a chunky case for it immediately, to protect it from the inevitable drops and to make it much easier to hold.

As my new tablet went on sale the day I bought it, I used some of the money I saved to buy a Google Home Mini. Within a couple of hours of playing with it, Johan wanted one so we now have two. I already had wifi plug sockets that I could control, then on Black Friday the Philips Hue starter set I’ve been eying up for years was reduced to its lowest ever price, so I grabbed that. I have one bulb in my bedroom (currently in the lamp clipped on the back of my bed) and Johan put the other two in the living room and his room. Though it doesn’t always understand what we’re saying, being able to control the lights with our voices (including my text to speech if I’m nonverbal) is amazing, and I’ve set up custom phrases to set my light to purple, make my light change colours and such. It’s also good for reminders and simple searches when I’m not wanting to leave the app I’m using on my tablet.

Our Christmas tree from last year ended up being broken, so it’s been replaced with a black fibre optic one. Johan is very happy that he didn’t need to set up lights, and I’m happy because they’re twinkling slowly enough to not make me worse and aren’t too bright. We plugged it into one of the the WiFi plugs so I can turn them on and off by myself (including using the Home Mini) and this year it was fully decorated for an entire 10 minutes! Then the penguin on the top fell off. For next year we’ll either need to get a better penguin topper or a way to secure the penguin on there, but even without it’s very pretty.

Below is my game stuff which I know is more boring πŸ˜›

I still miss World of Warcraft, but I’ve only been able to go on my computer a couple of times in the last couple of months, and on the surface not much more than that. I’m hoping once I get out of my relapse I’ll be able to resubscribe and play again.

For now I’m sticking with my tablet games. The main one I’m playing right now is Animal Crossing Pocket Camp. It’s perfect for me, as I couldn’t use the controls to play the full version on the DS, and it’s simplified so it works even when I’m very foggy. At the moment I’m level 56 (of 64), have invited all the animals to my camp, have 2 of 5 top tier amenities (which let me level up the corresponding animals to 20), and have one of every is of flower in the garden. There’s still plenty for me to do, but I can spend only a few minutes or an hour depending on how I’m feeling at the time.

I’m still playing Neko Atsume, Godville and DragonVale. Neko Atsume I’m only missing the memento from Hermyown. In Godville my heroine has just completed my temple and is now saving for retirement and collecting wood to build an ark. In DragonVale I have one of every dragon, two of all but the most recent event dragons, and am working on rift traits for the dragons that can have them.

I occasionally play Gardenscapes and Fishdom when I fancy a match 3 game. I’m also occasionally playing sudoku, but I’m much slower and it’s very frustrating now my brain is so foggy. Puzzle games are normally my favourite but I need to be able to think to complete them.

I tried colouring apps but was getting anxious as I couldn’t decide what colour to use. Then I discovered cross stitch apps and they work much better for me. They work like colour by number, so I just follow the code and it tells me if I make a mistake. Once I’ve put the right colour in it won’t overwrite it with a wrong one, which is great as my hands can be quite shaky, and I can zoom in really far if needed so the boxes are big and easy to hit. I’m really happy to have found something I can do that’s relatively low energy and helps when I’m anxious. It helps that I can add my own pictures as the one I’m currently using doesn’t have any penguins by default. Penguins make everything better.