Author: Danni

The Purple Penguin! 31 year old autistic geek, living in bed with severe ME (myalgic encephalomyelitis). Likes gaming, purple and penguins.
Danni

Purple is the Best Colour

Danni

I did type out a long blog post, but it was in an app rather than on the website, and I lost it all when it crashed. Won’t be doing that again.

So, I sorta stopped doing Project 365. I kept forgetting to take photos, forgetting to upload them when I had, and I was running out of things to take photos of in my living room. Maybe I’ll start it up again when my health improves and I’m going out more.

I’ve been a bit busy the last couple of weeks. Medical appointments, deliveries of new wheelchair and assorted other stuff, covering my wheelchair cushions in purple fleece, enrolling and then starting at college, and other such things. I also bought Eee Pad Transformers for Johan and me. It’s awesome, apart from the WordPress app losing my blog post when I tried to add a photo :p

I’m hoping to get back into daily or near-daily blogging again, if only to keep track of my M.E. symptoms. I’m still filling in the activity diary, and I have an appointment at the CFS clinic in about 3 weeks to go over it and see if they can help me with activity management. Luckily I’ve not been too bad recently- my muscle spasms have been small and short-lived, mostly in my hands, the pain has been manageable, and most days I’ve had the energy to get out of bed, even if only for a short while.

Danni

Project 365: Day 67: 27th August 2011 – Katie and Penguin

Danni, Project 365

Katie and Penguin

Today Johan wasn’t in, so Martin looked after me. He did well, except for the trying to break my toes when he was pushing me in the wheelchair :p

Today has been another lazy day. Played World of Warcraft, The Sims Social when it would work (it’s not again now), tried to read a book but didn’t have the concentration  so read a magazine instead. Also watched Doctor Who and ordered a new wheelchair. New wheelchair is the same as the old wheelchair, just less broken.

It’s been fun having Martin here, and he’s staying overnight as he can’t be bothered to get two buses home. Johan got back around 9pm, and he said he enjoyed his day out. Now I am the sleepies so will be turning laptop off and going to sleep.

Danni

Project 365: Day 66: 26th August 2011 – Martin

Danni, Project 365

Martin

A wild Martin appears!

Slept in today, until 1pm. I needed it to catch up with the lack of sleep recently. Was very groggy all day, and wasn’t well enough for a bath when favourite carer came this evening, but she did some tidying instead.

My brother arrived while favourite carer was here. He’s staying overnight, then here tomorrow to Danni-sit me while Johan goes off to Manchester. I was meant to be going with him, but I’m not well enough to travel that sort of distance at the moment.

Spent the time I’ve been awake doing pretty much nothing on the laptop, resting, then a short period on my desktop computer playing World of Warcraft on the US realms.

Tomorrow, I hope to get dressed 😛

Danni

Project 365: Day 65: 25th August 2011 – Big Penguin

Danni, Project 365

Big Penguin

I missed 4 days. I wasn’t well, and I said at the beginning I wasn’t going to be too upset if I missed any. Getting back into it now though.

Spent a lot of the day in bed resting/laptoping, but also had a bath and went on the computer for a bit. The last few days have been rough, especially yesterday where I felt really ill and was very emotional and things. Mostly better now, though I still don’t have my "normal" level of strength.

I’ve still been playing The Sims Social, but it’s really slow and horrible on my laptop so I’ve just been playing it on my desktop computer. Also found a penguin video that made me happy.

Danni

Project 365: Day 64: 20th August 2011 – Activity Diary

Danni, Project 365

Activity Diary

Woke up just as the carer arrived this morning (not favourite carer as it’s her weekend off, but the other carer I get for mornings). Actually got dressed, which is big considering I wasn’t planning on going anywhere 😛

Spent time on my desktop computer for playing World of Warcraft and The Sims Social, as it runs a lot better on there than on my laptop. Annika is starting to show her age (and evil Vistaness).

Found it hard to rest today- kept getting really restless and found it impossible to shut my brain up, even when listening to quiet music. Didn’t help that there was a Newcastle match today so the pub was being extra noisy.

Currently lying on my bed, tired but unable to sleep because the pub is too noisy, even with my ear defenders on. Hopefully they’ll be quiet soon so I can get some sleep.