Self Isolation Update

So it didn’t take long after my last post for things to change. Johan’s races were cancelled, and we decided that putting me in a care home was not a good idea considering it would increase the risks to me and the other residents. Johan is also now working from home, as is everyone else in the office.

Johan still took the days booked off as holiday last week, which was Wednesday and Friday. On Wednesday we spent time together in my room, and they opened my curtain and window for me so I could get some fresh air (I originally wanted to go onto the ramp but we decided that wasn’t the best plan). Unfortunately I forgot to ask to have the curtain put up again, and the extra light in my bedroom caused me to feel horrendous over the weekend. It’s back up and I’m doing a bit better now.

Friday was originally meant to be Johan goes to Kielder day. Instead, it was Johan plays Doom Eternal day. I did get to see them occasionally, but mostly I heard lots of clicky noises from the living room ๐Ÿ˜› At some point we want to play the board game Pandemic, as I’ve had it for ages but not opened it yet.

Johan working from home is weird. Having them in the living room all day but not being able to just bug them about little things is weird, especially as they’re usually in a voice or video chat with colleagues so I can’t just yell through. We’re using the same system as when they were in the office, which is using WhatsApp for non important stuff (like funny pictures or tweets I find) and Google Hangouts for urgent stuff (I need some care doing). If it’s super duper important, I’ll yell anyway as the rest of the team knows that Johan is my carer, but hopefully it won’t come to that. (If I can’t yell, then I can use the Google Nest Minis to broadcast a message into the living room, which is also part of my wake up Johan plan on a night time.)

At the moment we still have the care workers still coming in. On top of the normal hand washing and gloves, they’re also wearing aprons now. We’ve told the agency that if/when they start having staffing problems, just let us know and they can cut our calls as Johan is here. It will make things harder for us but a lot of the clients have no-one so they’ll need to prioritise. We’re also considering if it might be safest to cancel the calls anyway, to reduce the chance of me catching the virus from them. We’ll need to check with the council for how that will work with direct payments but we’re not there yet.

Sammie is happy that there’s no school and her exams are cancelled. She was really stressed out about her GCSEs and I was getting worried about her. If her teacher’s assessment is close to her predicted grades she’s got no problems when it comes to doing the college course she’s interested in. We don’t know if her school will be providing any work as they’ve already done the curriculum and were just revising and getting prepared for the exams, but if not then she’s got projects she wants to work on. We’re also playing Minecraft together when we get the chance, and I believe she’s got an island to develop for her animal friends.

The hardest part of being in self isolation is that I won’t get to see Sammie in person for the foreseeable future. We’ll be video chatting as normal, but it’s not the same. This is especially hard as the last time she came over I was pretty ill and we couldn’t have any hugs. I’m also no longer having hugs or hand holds with Johan, and we’re reducing physical contact to the minimum. We go on voice chat when I’m on my puter and they’re not working so we can chat without being in the same room.

Johan is still going out for prescriptions and food, but otherwise is staying in. We did manage to get some baby wipes from Aldi, and I found an unopened bottle of alcohol based hand sanitiser that has technically expired but should still be okay according to what I’ve read online, so I’m now using that.

One of the reasons we’re being so strict about physical contact with me is that the NICE guidelines for critical care with COVID-19 came out. They will be using the Clinical Frailty Scale (pdf) to help inform when critical care is appropriate, as for those with a score of five or higher “there is uncertainty regarding the likely benefit of critical care organ support”. My score is seven or severely frail . Now this doesn’t mean that if I need critical care I definitely won’t get it, but as doctors already massively underestimate my quality of life (I’ve had many that don’t believe me when I say I’m not depressed among other things) and there is likely to be a shortage of ventilators, there’s a good chance that if I get that ill, I’ll be placed on palliative care instead.

As well as trying to avoid me getting ill at all, I’ll also be updating my emergency information sheet to state I want all life saving measures to be taken if required, and make sure that those who might be asked know my wishes. I still think the main risk is less the virus itself and it making my ME worse, as I’ve ended up in hospital before when unable to swallow and it would be even harder now. Unfortunately a couple of online friends have already come down with suspected COVID-19, one of whom is still in hospital. I really hope they’ll be okay. It’s so important for people to stay at home unless necessary, but some people haven’t got that yet.

So on to better stuff. Other than the payback from sensory overload caused by not having my curtain up for a couple of days, I’ve been doing pretty well for me. Lots of computer time, catching up with emails, chatting to Sammie and Johan. I’ve also been looking at the positives that are coming out of this. Everything from the mutual aid groups, people putting rainbows in their windows for kids to spot when they’re out on walks, individuals helping out those in need, and even companies giving free drinks to those who have to work.

For this week, I’m hoping to play more World of Warcraft and Minecraft, maybe read a book, and possibly watch the Steven Universe film. I’m also planning on lots of sleep and rest to keep myself as well as possible, doing my physiotherapy, and chatting to Sammie and Johan. I’ll be on Twitter so I can see penguin and cat pictures and videos. I’m going to set up a routine based around Johan working, especially since I seem to be awake during the day most of the time at the moment. Things may be uncertain right now, but there is still good out there.

Day 22 – Clean Hair

This evening I was finally well enough at the time one of my favourite care workers was here to have a proper hair wash, with water and shampoo. The last time was in July so it was desperately needed. I had used shampoo caps in between, but they stop working so well after a couple of months. It’s taken a couple of hours but I’ve now stopped shaking from the pain and exertion so I can write this blog post. I am happy ๐Ÿ™‚

Danni, a pale white person with blue eyes and glasses. They have short, combed light brown hair that is clean.

The last few weeks I’ve had quite a few new care workers. Some I’ve missed by being asleep when they’ve come (if anyone can figure out how to have set time care calls when you have no sleeping pattern, let me know) but others I’ve met.

Most of them come with one of my regular care workers, especially T, who is my main evening carer. T is one of my favourites, who I know very well at this point and trust her with the tasks that are most painful to me, such as tonight’s hair washing and having a body wash earlier this week (might have been yesterday? I can’t quite remember). She’s also a pretty good judge of who I’m likely to do well with and who I’m likely to struggle with, so if she’s previously worked with the new care workers she lets me know how it’s been.

Some of them have been fine. I have to have things done in a certain way or it makes me very anxious, but I have written an instruction book that goes through everything step by step. The ones who are willing to read the book and follow it usually do okay. If they listen to T as well, it can go pretty well, and usually I’m less nervous about their next call. Tonight I had a new care worker who listened, followed instructions, and I got on with quite well.

Some of them… not so much. One, who luckily left after a few weeks, was genuinely scary. Not because she was abusive or anything, but because she basically needed care herself. She needed every instruction given to her multiple times, and even then would get it wrong. I’ve never known it take 20 minutes to fill my Hydrant with squash before, but she took that long even with help. I heard some stories about her from the other care workers that were terrifying (including trying to hoist someone incorrectly and nearly dropping someone down the stairs), and just mentioning her name to those who had worked with her caused despair. I was surprised that she hadn’t been fired but luckily she left herself.

Others just don’t listen to the more experienced care worker while here. I find having two care workers in my room overwhelming while having personal care done, so usually one goes into the kitchen to sort my drinks and food and such, while the other does my personal care. It works well, and means we get everything I need doing in the time I have. The book the care workers have to fill in is kept in the kitchen, where there’s a brighter light (as I’m light sensitive), there’s the counter to lean on and it is better for me.

Last week I had one that just wouldn’t listen to T. It was frustrating for both of us. Instead of doing the book in the kitchen, she decided to bring it into my room and stood in the middle trying to lean on the back of my wheelchair to fill it in. There’s not very much space in my room so she was just getting in T’s way, and wouldn’t move when asked. I’d ran out of baby wipes and was just standing there while T was looking for the box with them in, which meant she couldn’t find them and we had to use my more expensive bath in bed wipes. Turns out the new care worker had been pretty much on top of them. There was also just something about her that made me feel very uneasy, and by the end of it I was more knackered and overwhelmed than normal. The next time I saw T she told me she was about as helpful at the other calls.

I got my rota for next week and saw that she’d been assigned to work with T for two nights. I had a suspicion that T would be asking for that to be changed, and when she came tonight she confirmed that I was having two of my more regular, liked carers coming instead. She even talked one of the care workers into coming in on her day off so she didn’t have to work with that new care worker. I am relieved, and there’s only one completely new care worker on my rota for next week.

There is a lot of turnover in care work. Most of my regular care workers have been with this agency for a year or longer, but the organisation has gotten worse over the last year or so (see also the saga of it taking eight months before they’d stop sending a care worker here that I’d banned) and it’s resulted in quite a few of the best workers going elsewhere. I try to give new care workers a chance, and know that sometimes first impressions can sometimes be wrong (one that I thought was super patronising the first time I met her turned out to be lovely and is now one of my favourites). Sometimes though there are care workers who I’m just incompatible with.

Of the over 80 care workers I’ve had with this agency, I’ve only had to ban four of them, which considering I’m autistic and picky about how things are done is not bad. There have been some that I only saw once or twice before they left, often because they realised that this job wasn’t for them. It’s definitely not paid well enough, and I suspect some of those who don’t last only started because it’s one of the few jobs that is always seeking new people. It does take a certain set of skills though, and not everyone has them (neither Johan or I could do it, even if I were perfectly healthy). My favourite care workers are those who are doing the job because they want to, and it shows.

A couple of years ago I think the care worker who was a danger to clients and herself wouldn’t have got past the shadowing stage. When I joined the agency it was the best in the area, was decently ran and most of the care workers were happy. Nowadays, not so much. They took on too many new clients too quickly, which meant needing a lot of new care workers quickly and overworking the ones they already had, resulting in quite a few quitting and others threatening. It wasn’t unusual for one of my favourite care workers to end up with 90+ hours a week, which is just dangerous, especially on a regular basis. It took her threatening to quit before they reduced her hours to something a bit more reasonable (though still a lot higher than 48 hours a week) and she’s starting to learn to say no when asked to do more.

For me, my main issue is the disorganisation. I need to know who is coming and when, and to be informed of any changes. If this is done, even at short notice, then I’ll be fine. If it isn’t, and these days it’s unusual for me to get told of changes, then I can’t cope and panic. This makes me more ill, and has caused problems for Johan as he’s often had to abandon what he’s doing to be able to come and calm me down. The agency has been aware of this since we joined, and one of the owners has an autistic son so should know why it’s needed.

What doesn’t help is I get a rota on a Friday that is for the following week starting on Monday, but by the next Friday the weekend calls have often changed, and though the care workers get an updated rota I don’t. I don’t understand why they don’t just give me a rota on a Friday for a week starting the Saturday, so if anything changes at the weekend it’ll be reflected in my rota.

I also know that emergencies happen. They have Johan’s mobile number, and they are supposed to ring or text him if something happens. Even a couple of minutes notice (Johan messages me if he’s out so I still find out) makes a big difference if they can give it. I have some care workers now who refuse to cover for my calls unless I’m told they’re coming, as they’ve seen what it’s like for me.

The worst is when they change the call time and don’t tell me. I’m pretty okay with care workers being late, as stuff happens, calls can overrun, there can be traffic and such. I do start to worry if they don’t arrive during my call time though (half an hour for my lunch and afternoon calls, 45 minutes for my evening call), especially as I’ve had care workers not turn up in the past (mostly with previous agencies). Johan struggles to initiate communication but if someone doesn’t turn up he usually can let them know and find out who is coming and when they’re likely to be here (sometimes it’s just a bad emergency, sometimes a care worker has just not turned up and they have to find cover).

What I can’t cope with is them being early. It took me years to manage not to panic if they arrived the allowed 15 minutes before my call, and I now have alerts set to go off then so I am ready for them. Sometimes though they change the call time to earlier than is on my rota, and don’t tell me. My brain explodes and I just can’t cope with it, and often the care worker has no idea what’s wrong as it was correct on their rota. If it’s a combination of an earlier call and a new care worker, I often end up in meltdown or shutdown. I wish I didn’t react like that but receiving personal care is already scary and painful, I struggle with strangers especially when alone (if Johan knows I’m getting a new care worker on a single call, he tries to be here with me) and changes to my routine are difficult to cope with. If they just let me know, everything is fine.

Wow this turned into a bit of a rant. Compared to the previous care agencies I’ve had, this is still the best, even if it is going downhill a bit at the moment. Most of the care workers I have are nice, my most regular ones are awesome and I get on with them great, and most of the time everything goes as well as it can. Previous agencies have included care workers deliberately causing me pain (and being told by my then social worker that I just had to put up with it), calls being missed and not having anyone cover them, not sending me rotas at all so I panicked at every call, and even being put into special measures by the CQC and losing the contract with the council. In comparison, this one is much better. I just wish they’d sort things out so it is better for the clients and the care workers.

Week 44

Danni is wearing a rubber penguin mask that covers their entire head.
I’m a Penguin
Danni is in their wheelchair, wearing purple waterproofs. They are in a park.
I went out to watch fireworks!
Another picture of Danni in their wheelchair in the park. This one is dark, other than a multicoloured rope light that is wound around their wheelchair.
Lights are awesome

Super late with this, but there’s a good reason. I went out! Have three photos instead to make up for it ๐Ÿ˜›

The beginning of the week was okay, other than a migraine. Didn’t do anything particularly interesting. Went on my computer on Wednesday and Thursday and played World of Warcraft (as well as catching up with the previous late blog posts).

Didn’t do much for Halloween other than wear my rubber penguin mask when the carers came in, which they somehow managed not to notice until after I took it off a few minutes later. Must have been one of those days for them.

On Friday Blizzcon started! Missed the opening ceremony as was asleep but watched some panels after waking up. The Diablo mobile game presentation was not good. I don’t think they’d realised how much they’d misjudged their audience. What they showed looked remarkably similar to a mobile game I’d played a few years ago, so while I might try it I’m not looking forward to it the way I would a new PC game. The non-Diablo panels I saw were good though.

Saturday was awesome! The local park had a fireworks display for Guy Fawkes Night (though a couple of days early so it was on a Saturday rather than a Monday) and I was well enough to go! The noise from the stage was so loud it was audible as soon as we left our building (about a mile away) but luckily it was the type of noise my noise cancelling headphones does well with. The fireworks themselves were awesome, and I’m really happy that I managed it (not so sure Johan was as he had to push me up and down steep hills and on grass :P). On the way home we picked up some pizza, and watched some more Blizzcon. It was an amazing day.

Sunday I slept most of the day, which was not a surprise. When I was awake I just listened to Welcome to Night Vale and played easy games on my tablet.

  • Overall mood – 3 good days, 4 awesome ones. High symptoms at the beginning of the week, but dropped to my normal by the end.
  • Average daily sleep – 10 hours 14 minutes
  • Longest sleep – 20 hours 7 minutes, from Thursday evening to Fridayย  evening
  • Clothes changed – 3 (including 13th Doctor top and Gender is a Universe hoodie)
  • Wipe wash – 1
  • Water wash – 0
  • Hair wash – 1 (shampoo cap)
  • Books read – 0
  • TV watchedย  – 0
  • Streams watched – Blizzcon!
  • Youtube watched – Yup
  • Music listened to – Battle for Azeroth soundtrack (while out on Saturday)
  • Podcasts listened to – Episodes 63 and 64 of Welcome to Night Vale
  • Blog posts written – 1
  • Penguins cuddled – Yup
  • Johan hand holds – Some
  • Johan hugs – Yes! On Saturday (is easier to hug in wheelchair)
  • Time on Twitter – 7 hours 38 minutes (average 1 hour 4 minutes a day)
  • Time on Reddit – 24 hours 3 minutes (average 3 hours 23 minutes a day)
  • Time on Facebook – 3 minutesย 
  • Other –
    • That sleep from Thursday to Friday was epic. Without it, I doubt I’d have been able to go out. I did wake up every so often for painkillers and stuff, but fell asleep again quickly.
    • Fireworks are so pretty! Going out is awesome!
    • Noise cancelling headphones are amazing. I don’t know what I’d do without them at this point. Definitely not go out to watch fireworks.
    • The Gutenberg editor for WordPress was fixed quickly after the bug was reported. I’ve been using it fine for this post.
  • Games played – 8
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
    • World of Warcraft
    • June’s Journey
    • Pearl’s Peril
    • Pocket City
  • AC: Pocket Camp Level – 131
  • Godville Heroine Level – 61 (23% done)
  • Godville wood for ark – 48.3%
  • Godville savings – 2 million, 185 thousand
  • Cross stitch completed – 1
  • Most played game – Animal Crossing (11 hours 39 minutes, average 3 hours 3 minutes a day)
  • Other –
    • New events in Animal Crossing – an anniversary event that will have the other types of event with it.
    • Started with a flower event on Thursday. Finished the first half of it by Sunday.
    • When in World of Warcraft managed to get 2 new pets from Hallow’s End and made progress on the legendary staff.
    • Still enjoying June’s Journey and Pearl’s Peril.
    • Working on Halloween pictures in Cross Stitch.

Week 35 Review

A box with a picture of a woman wearing an eye mask with ear muffs, titled Hibermate, saying, "Luxury Eye Mask with Ear Muffs for Sleeping", 

Below in smaller letters, "The world's first soft ear muffs for sleeping. Generation 6"

There is a sticker saying navy blue.
The only photo I took this week. My new eye mask!

You’ll never guess what I got up to this week. It definitely didn’t involve a massive multiplayer online role playing game that I’m a bit obsessed with, honest ๐Ÿ˜›

Yeah, another WoW week. Last week I did the Jaina storyline, but had stop before the end as to finish it you needed to go into a mythic only dungeon (which is the hardest standard difficulty level). On Tuesday some people in my guild talked me into healing said mythic dungeon, so I managed to get to the end but also learnt I’m really not well enough to heal mythics. If it hadn’t been a guild group I would have been kicked really early on as I kept dying and wiping the group as I just didn’t have the concentration needed to heal and remember the mechanics at the same time.

It did mean I completed the Jaina storyline completely though. Will put the last spoilers below in a spoiler thingy, but I got very emotional again finishing it.

After the Siege of Boralus

Once I completed the questline, I mostly concentrated on doing side quests and working on my reputations, especially the war campaign. I also went back and cleared Firelands on 25 heroic as it’s trivial content now, and it’s annoying me that I don’t have the reputation at exalted. I got lucky and won the mount from Alysrazor which made me happy. I also managed to complete the achievement Ready for War which was the end of another, less emotional storyline (though petable baby dinosaurs were involved afterwards).

I didn’t go on my computer everyday though. Thursday and Friday I ended up feeling rather rotten, and became really moody (and not as a response to anything). Based on the cramping pain I then got, we’re pretty sure that it was hormones, which was reassuring as it meant we knew it would be temporary. I had to ask Johan to send the carers away Friday night as I just couldn’t cope and was worried if they touched me then I’d end up hitting them. Panic attacks, paranoia and hallucinations are not fun. (I’m feeling better now.) Once it calmed down a bit I was able to go back on puter and play WoW as a distraction, which helped. I also listened to the song Daughter of the Sea from Warbringers: Jaina, the story of how Jaina became a traitor (from the Kul Tiran point of view), on repeat a lot. The first video is the animated story version, the second is just the song.

Beware, beware, the daughter of the sea…
  • Overall mood – Mix of awesome, good and poor on Friday. High symptoms because of hormones and weather changes.ย 
  • Average daily sleep – 10 hours 43 minutes
  • Longest sleep – 17 hours 49 minutes, from Sunday morning to Sunday night.
  • Clothes changed – 0
  • Wipe wash – 0
  • Water wash – 0
  • Hair wash – 0
  • Books read – 0
  • TV watchedย  – 0
  • Streams watched – 0
  • Youtube watched – Jessica Kellgren-Fozard (I actually looked up how to spell her name this time)
  • Music listened to – Warbringers: Jaina (about 50 times) and A Turtle Made It To The Water! (about 15 times)
  • Podcasts listened to – Episodes 46 toย 50 of Welcome to Night Vale
  • Blog posts written – 0
  • Penguins cuddled – Definitely
  • Johan hand holds – Indeed
  • Johan hugs – Nope, too ill
  • Time on Twitter – 10 hours 18 minutes (average 1 hour 28 minutes a day)
  • Time on Reddit – 19 hours 32 minutes (average 2 hours 47 minutes a day)
  • Time on Facebook – 1 hour 7 minutes (average 9 minutes a day)
  • Other –
    • I am so grateful I don’t go through the hormonal premenstrual stuff monthly now. I don’t think either of us could cope.
    • I found out how to see what percentage of my time I spend on things. For this week, it was 45% sleeping, 17% on social media, 15% on World of Warcraft, 6% on other games (mostly Animal Crossing) and the rest was most other stuff. Only problem is my tracker can’t deal properly when I’m doing two things at once (such as on World of Warcraft on my computer and twitter on my tablet).
    • I had been planning on changing my clothes and having a wash at the weekend. That didn’t happen.
    • I’m so glad I had Johan while I wasn’t coping. He helps a lot.ย 
    • My new eye mask is awesome. I’m hoping to do a full review at some point, but that might be a while.

Game Stuff

  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
    • World of Warcraft
  • AC: Pocket Camp Level – 120
  • Godville Heroine Level – 58 (69% done)
  • Godville wood for ark – 39.5%
  • Godville savings – 1 million, 686 thousand
  • Cross stitch completed – 2
  • Most played game – Animal Crossing Pocket Camp (17 hours 2 minutes, average 2 hours 26 minutes a day)
  • Other –
    • New bug catching event in Animal Crossing, this time Bumbledrops.
    • Finished the first part of the bug event in just over a day, thanks to very active friends.
    • Remembered that cross stitch is good, especially when listening to podcasts.
    • WoW is still favourite game.

Week 31 Review

Danni is in their wheelchair, wearing a lilac top with a cat on it, a lilac baseball cap, sunglasses and a penguin neck cushion. They are smiling.
Danni back at home, before hoisting into bed

I am glad to be home. Got back on Wednesday 1st August.

Care homes suck. Even good ones. It’s just not the same as being at home, and if you have severe ME, then it’s really not good. There’s too much noise, not enough staff, too many people to try and teach how you need things doing, and for me, constant anxiety over everything. They are not good for me, but at the moment it’s the only form of respite we can get.

Monday Johan got back from Sweden, and as I was running out of essentials (mostly incontinence pads) he came to visit me and bring the stuff I needed. It was fun tracking his flight using an app on my phone, and he had free wifi on the plane so we were chatting at the same time ๐Ÿ™‚ He also bought me some Swedish chocolate, which was yummy.

Monday night was not so good. I still had really bad diarrhoea, and the night staff decided to leave me for 4 hours, which meant I had been lying in a dirty pad for about 3 1/2 hours and by the end of it had spread up to my shoulders. Ended up with really bad nappy rash as well as feeling super ill from the washing and changing needed because they weren’t checking on me as often as I needed. It also made a lot of extra work for them because changing my pad takes about 5 minutes for one carer, changing me and the bed takes about half an hour for two carers. I didn’t get to sleep until 4.30am because of that, so slept through to the afternoon.

Tuesday was better, other than being unable to lie on my back due to the nappy rash. Johan came to see me in the afternoon and we talked about what foreign countries we wanted to visit, while looking up the government advice for each country. Determined that we’re not going to quite a few. The night carers were much better than on Monday night, and though they couldn’t manage hourly checks as they were too busy, they did see me every 90 minutes or so which meant it didn’t get as bad as it had been. I’m also grateful for Cavilon as it really helped clear the worst of the nappy rash up.

Wednesday I went home! Before doing so, I put in a complaint about the night staff who were leaving me for hours with the manager. It’ll depend on the response from her as to whether I’ll be going back there again. I was so glad to be back in my own bed.

Thursday I slept most of the day, and felt a bit better for it waking up that evening. Managed to do a food shop and ordered World of Warcraft Battle for Azeroth Collector’s Edition (because I missed WoW so much I knew I’d be playing it again). Johan’s computer decided to die, so he ordered some new parts and I offered to pay as an early Christmas present.ย 

Friday the computer parts were meant to arrive, didn’t, but said they did. That was annoying, but I had a long sleep, waking up Saturday afternoon.

On Saturday the parts actually arrived, so not sure what happened on the Friday. Also on Saturday I went on my desktop computer for the first time since February. After installing a ton of updates, I resubscribed to WoW and after fixing my addons and such, I worked on Argus quests. It’s a great distraction from feeling yukky. Sunday was more WoW until about midday, where I fell asleep before the carers arrived.

Johan is happy with his new computer parts. They have LED lights in them that he can change the colours on. I think he’s changed his mind on RGB computer stuff since he’s seen how awesome they are ๐Ÿ™‚ I want some but there’s no point in getting them in my actual computer as I can’t see it from where I am in bed, and the keyboards are too heavy for me. I am going to get the RGB version of the mouse I have when it dies, but it’s being stubborn and continues to work ๐Ÿ˜›

  • Overall mood โ€“ Other than the Monday night which was horrible, I had an awesome week! High symptoms due to care home/travelling/recovery but distraction helped.
  • Average daily sleep โ€“ 10 hours 27 minutes
  • Longest sleep โ€“ 19 hours 17 minutes from Friday evening to Saturday afternoon (deep sleep 58.5%)
  • Clothes changed โ€“ 3
  • Wipe wash โ€“ 2
  • Water wash โ€“ย  0
  • Hair wash โ€“ 0
  • Books read โ€“ 0
  • TV watched โ€“ Doctor Who Series 10 Episodes 9-12, Ultimate Beastmaster on Netflixย 
  • YouTube videos watched โ€“ Lots, including WoW Cinematics
  • Streams watched โ€“ Bob Ross on Twitch
  • Music listened to โ€“ Random playlist on Google Play Music while travelling home
  • Podcasts listened to โ€“ 0
  • Blog posts written โ€“ 1
  • Penguins cuddled โ€“ย  Lots! Glad to have home ones again
  • Johan hand holds โ€“ Lots as he was home!
  • Johan hugs โ€“ 1 (worth it)
  • Time on Twitter โ€“ 6 hours 17 minutes (average 53 minutes a day)
  • Time on Reddit โ€“ 16 hours 58 minutes (average 2 hours 25 minutes a day)
  • Time on Facebook โ€“ 1 hour (average 8 minutes a day)
  • Other โ€“
    • The difference between the good night staff and the bad night staff was incredibly noticeable.
    • I was just about to contact Johan to phone the care home so they’d come sort me out when they turned up on Monday night/Tuesday morning. My timer showed just over 4 hours.
    • Swedish chocolate is nommy.
    • Home is the best.

Game stuff

  • Games played โ€“ 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • Neko Atsume
    • Godville
    • World of Warcraft
  • AC: Pocket Camp Level โ€“ 117
  • Godville Heroine Level โ€“ 57 (45% done)
  • Godville wood for ark โ€“ 35.0%
  • Godville savings โ€“ 1 million, 473 thousand
  • Cross stitch completed โ€“ 0
  • Most played game โ€“ Animal Crossing Pocket Camp (8 hours 45 minutes, average 1 hour 15 minutes a day)
  • Other โ€“
    • New flower event in Animal Crossing. This one is catching Flutterflies.
    • I have so much to do in WoW. Luckily I’m still in my guild and I’m so happy to be playing again.
    • Completed the Argus questline in WoW.