Category: NaBloPoMo

Danni

I Can Get Out!

Danni, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life

What a difference one piece of equipment and a bit of time can make 😀

A few weeks ago I was still unable to get out of bed, and rather fed up of being stuck there. A bit after my last blog post, the OT got in touch with some hoist slings! They’re not the ones I wanted, but he didn’t want to leave me any longer and has ordered the right ones for me. These don’t have head support, but otherwise are comfortable.

Once the payback from that taxi journey wore off I got Johan to hoist me into my chair. I’ve been hoisted enough times to figure out how the sling goes (after watching the video for this particular sling) and the hoist controls are simple enough, so though it took a bit the first time Johan figured it out. We stayed on the ramp the first time as I was still not really great with movement from the payback, but managed about 10-15 minutes in my chair (for my future reference, that was 23rd September). Next up was the lunar eclipse in the early hours of the 28th September, and I stayed out for about 15 minutes before going back in (I had a slanket on but it was cold :P). I felt better after that go than the first time, so knew I’d go further the next time.

Unfortunately the care agency changed at the end of September, and the anxiety from that meant I didn’t get out again for a little bit (though I did discover that someone can deliver McDonald’s to my flat, which was awesome and yummy). Been having major issues with the new agency but that’s for tomorrow’s blog post I think. About 10pm on the 11th October I felt okay so it was time for a further outing (we went out at night because that’s my best time and there’s less noise and light to worry about). After discovering the shop and the garage were shut, Johan suggested going into Gateshead so we did! Everywhere was shut but as it was the first time I’d been into town since before they built the new Trinity Square it was amazing to see the difference. I particularly liked the shiny metal tyre on an angle (not the official name).

After discovering that I got no real payback other than a bit of extra tiredness, I knew I was okay for further outings. That week I ended up having horrendous toothache, which was as bad as the nerve pain I get in my face occasionally, only lasting hours rather than a couple of minutes. Johan got over his fear and made me an emergency appointment at a local dentist, and my next trip was to see him (on 15th October). He confirmed that the pain was probably the root of my broken tooth dying (I guessed that from Google) and put a temporary filling in, and referred me to the community dentist as they don’t have the facilities to treat me there (not being able to get out of my chair without a hoist). My teeth are a mess (lots of cavities- turns out stomach acid is not meant to live in your mouth :P, and teeth brushing is kinda important for carers to do) but antibiotics and the filling helped with the pain.

Esther had a friend come to visit that weekend, and as I was jealous from Esther, Johan and Cat visiting a cat café in Newcastle while I was recovering from the dentist, on Monday 19th October I went into Gateshead during the day to go to Nandos with Johan and Cat (Esther had work). We also went to a few shops and it was absolutely amazing to be able sitting up (well, as sitting up as I am with my chair fully tilted and reclined) and while out. Cat is absolutely amazing and awesome and I’m so happy to have met her! That was the longest outing yet, being out for 3 1/2 hours and in my chair an hour longer at home. Somehow just got a bit of extra tiredness from it rather than a massive increase in symptoms so I was happy with how I’ve been coping.

October 25th I felt up to going out again, and as it was a Sunday Johan and I went into Gateshead for a roast dinner at Wetherspoons. It confirmed I had a much smaller appetite than before I got so ill, but was very nommy 🙂 We also found some Gatorade, beef jerky and a Charleston Chew in Tesco, which was nice 😀 We discovered the wheelchair space on one of the bus routes is now a lot smaller than it used to be, so the bus journey home wasn’t great but otherwise it went well. We’ll be avoiding that route in the future (luckily there’s a few others we can get).

Today I went into Newcastle for the first time (other than for hospital visits) in three years. Johan pushed me into Gateshead, then we got the Metro into Newcastle. After a bit of exploring and Johan pointing out to me all the new shops and things that had changed, he treated me to a TGI Fridays and it was very nommy! Afterwards we cancelled the care call (which was meant to be at 5pm for some reason) and went to Primark, where I bought a new bra (as I’ve not worn one in over 3 years and my size has changed dramatically), Harry Potter socks, a penguin shirt and pyjamas. Johan got a new coat, socks and a new belt which he’d been desperate for as his jeans were falling down. Johan can’t cope with Primark by himself but he was okay with me there, so it was awesome 😀 There are a few penguin items I’m wanting to investigate more when we’re next there 🙂 We got the Metro back into Gateshead then Johan pushed me back up the hill to our flat, as he apparently wants the exercise and it meant I didn’t have to deal with the movement of a bus.

It’s been an amazing few weeks, and the only downside is I’ve not been doing as well cognitively, which is partially responsible for the lack of blog posts. I want to get back into the habit though, so I’m rejoining NaBloPoMo for the month. Will set it up properly tomorrow, but for now, a photo from TGI Fridays earlier today 🙂

Danni in TGI Fridays in Newcastle
Danni in TGI Fridays in Newcastle
Danni

Completed NaBloPoMo!

Computers, Danni, Gaming, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life, World of Warcraft

I’ve managed to blog for 30 days in a row. It was hard, but luckily this year there were no relapses to get in the way (though I still have that rotten cold…). I’m really happy to have managed it. My hope is to continue blogging regularly, though not necessarily everyday from now on. It feels good to write here.

Yesterday was an okay day until I discovered a hole in Penguin. He had been burnt and some of his filling was falling out from his back. We think it was an accident by one of the carers but it means he can no longer be heated up to help me with pain. He’s now sitting next to Penelope on the purple penguin throne (my old commode with purple fabric on it) and Johan has bought me another penguin to do his old job. He says he’s enjoying retirement, and Patricia, Johan’s penguin, is helping me until the new one arrives.

Today wasn’t great when I first woke up. During the night I woke up because I was peeing but was too tired to wake Johan up to change my pad, so it was close to leaking this morning. Luckily it didn’t, but I was really tired and in quite a bit of pain. I had a roast pork ready meal and that was quite nice for something microwaved, and after the evening carer had been I felt well enough to go on my computer. Didn’t get to speak to Sammie much as she was in the bath when I got on and at 7pm there was a meeting for my World of Warcraft guild about raids and stuff I wanted to attend. I did find out she’s enjoying the Sims 4 though which is awesome, and hopefully I’ll be able to talk to her properly within the next few days.

Since my brain wasn’t working properly I’ve only really done my garrison stuff and then fished in WoW today. Yesterday I attempted to do my first heroic but I just wasn’t well enough to manage it cognitively. I think I’ll be waiting until everyone else is overgeared for it and ask them to boost me 😛 I’m gearing up through my follower’s missions and still have some rares to kill and quests to complete in Nagrand. The fishing was fun  and relaxing. I’m hoping to get a level 3 fishing shack by the end of next week by getting 100 of each type of enormous fish in Draenor. I’ve already done two of them so it feels doable if I can manage enough computer time 🙂

It is the first day of Advent. The carer tried to correct me and tell me it was tomorrow, but it turns out she didn’t know it started 4 Sundays before Christmas. I’m going to start planning for Christmas properly now, including figuring out where I’m going to put my Christmas tree. I’ve got an idea but I’ll need some tidying up doing first 😛 I wish I could have gone to church but that’s rather unrealistic at the moment. I’ll try and watch the Christmas Day service on the telly though.

Apart from Penguin being burnt I’m happy. I feel really lucky overall, despite being pretty ill. I can do so much more than I could this time last year, even if I am still in bed not really able to sit up properly yet. I’m hoping that this year I’ll not relapse over Christmas and that way I can enjoy it properly. I’m going to see if I can get my Christmas jumper out soon. It has a penguin on it 🙂

Danni

The Problem With Digital Downloads

Computers, Danni, Gaming, NaBloPoMo, Real Life, World of Warcraft

I’m a big fan of digital downloads. Not being able to get out of bed means if I want to get something independently, digital downloads are the way to go. My biggest purchases are definitely games, but I also get music, films and books this way. It’s awesome.

I mentioned yesterday getting Sammie The Sims 4. It was one of the games she wanted for Christmas and I took it into consideration when building her computer. Thanks to the Black Friday sales, the digital download version was half its normal price on Origin, so it made sense to buy it then. The Standard DVD edition was more expensive than the digital deluxe version. Sammie uses my Origin account as she’s too young for her own (plus it means she has access to the games I’ve previously bought, which I’d give her anyway) but unlike Steam, there’s no gifting option for digital downloads. This means as I wanted to buy it while it was on sale she got access to it immediately, rather than opening it at Christmas. Not exactly a big issue (I’m sure she’ll have plenty of other stuff to open) but it’s something that comes up now.

Digital downloads are amazing but aren’t always ideal as gifts for other people. Some providers do a good job (gifting games on Steam is easy, and you can even keep the game in your own inventory so you don’t need to send it the day you buy it) but others, not so much. You still can’t gift Kindle books and if you want to buy a game on Origin for someone else you have to log into their game to do it. There’s no chance of a surprise there and could be really awkward if you’re in different places (digital gifts are normally awesome if you’re apart as you don’t have to worry about postage).

The other problem is you can’t wrap them. If the item comes as a code (I like Blizzard for this) then there’s an easy way to get around it by printing/writing the code and wrapping that, which is awesome (I’ve had two gifts of World of Warcraft pets done this way, and the creativity that went into the message with it made me as happy as the pets themselves). Humble Bundles come with a URL so you can email that with your own message if you can’t give it physically. For other stuff though, there are less options and a game just appearing in a library isn’t quite the same as  box wrapped in pretty paper.

Some people prefer physical items for various reasons. They might collect DVDs, or enjoy reading physical books. I bought the Collector’s Editions of World of Warcraft for the extras in the box, even though digital versions were available. Digital downloads are great as you can get them immediately and send them anywhere in the world. If the DVD version of The Sims 4 had been the same price as the digital download, I’d have bought that instead so Sammie could open it from under the tree. There are advantages and disadvantages to both. I really hope the gifting options for digital items improve soon from those companies that haven’t implemented them yet, as I want to be able to give Sammie ebooks or other digital items when I want to, not necessarily at the time of purchase.

Danni

Danni Is Not a Graphics Designer

Computers, Danni, Gaming, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft
My avatar for High School Story. The purple penguin on my shoulder is a requirement :)
My avatar for High School Story. The purple penguin on my shoulder is a requirement 🙂

Today was better than yesterday. I’ve not been able to be as high up as I would like, but I have managed computer and talked to Sammie and things.

The main thing I spent today doing was attempting to make an avatar for the High School Story forums. I have access to all the game’s assets so thought it would be easy. It wasn’t. I gave up completely on the idea of hands (why wouldn’t they look right?!) and it took me far too long to figure out where the face/head/clothes go. I based it off my actual character in the game but changed my hair colour to purple (from red- purple isn’t available in game) and added a purple dress normally worn by one of the other characters (Payton), and glasses from the Nerd outfit. Once I’d figured it out (several hours later), I added the purple Tux that’s the mascot for this website on my shoulder as a pet. If I struggle with putting together a few ready made assets, I’m never going to be good at actual graphics design 

I’d completely forgotten about the Black Friday sales when I bought the printer. The good news is it works, and it’s much quieter than the old one. It’s a colour laser printer with wifi so I don’t have to rely on anyone else to print for me (though I do need them to go fetch the printouts afterwards). Hopefully I’ll be able to print the stuff out for the carers and things will be easier.

I found out The Sims 4 was on sale today, and as it was on Sammie’s Christmas list I bought it for her. After a few issues with Origin (password is incorrect messages- yet it was exactly the same as the one I was using and it worked fine here) it’s now downloading and I have a very happy daughter. Ideally I’d have given her it at Christmas but the DVD was much more expensive and there’s no gifting system on Origin. Sammie being happy makes Danni happy 🙂

Over the next couple of weeks I need to finish planning all the Christmas (and birthday) shopping I still need to do so I can try and get it all done before Christmas itself. Sammie is mostly sorted but there are other people, like Johan. Luckily I’m not super ill like the last few years so I’m hoping I’ll be able to do it with plenty of rest and some help from Johan. I’ve also got WoW to play (though I should probably look at ways to reduce time needed to do things in there, as it’s taking me 2+ hours just to do garrison stuff right now) and I got to rank 20 in Hearthstone today for the cardback. No losses with a priest deck made up of random cards I liked the look of 😛 Unfortunately by the time I got to speak to Sammie my brain was pretty broken so I couldn’t play Minecraft, but talking was fun.

Only 2 days to go to complete NaBloPoMo. I’ll be really happy if I manage it, and even happier if there’s no relapse this year. Bad days I can cope with, bad weeks are much harder.

Danni

Noise Bad Bad Evil Bad

Danni, M.E., NaBloPoMo, Physical Disability, Real Life

Noise sensitivity is really bad today. Every little noise is making me feel like I’m going to throw up and causing loads of pain. Earlier there were several noises going on which by themselves wouldn’t have been too bad but combined caused a jerking attack. I didn’t lose full control this time, but every time I tried to move something I’d do that movement plus several others. Very annoying. Johan did say my muscles were being affected by multistrike though which made me laugh (multistrike is a thing in World of Warcraft that let’s attacks happen more than once).

Maybe sitting up the other day was a bad idea. Maybe it’s completely unrelated. I can’t be sure. All I know is I’m knackered now and I don’t know where my ear plugs are. Obviously I’ve not been on my puter today. Tomorrow hopefully will be better.