Category: Physical Disability

Danni

Danni Is Not a Graphics Designer

Computers, Danni, Gaming, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft
My avatar for High School Story. The purple penguin on my shoulder is a requirement :)
My avatar for High School Story. The purple penguin on my shoulder is a requirement 🙂

Today was better than yesterday. I’ve not been able to be as high up as I would like, but I have managed computer and talked to Sammie and things.

The main thing I spent today doing was attempting to make an avatar for the High School Story forums. I have access to all the game’s assets so thought it would be easy. It wasn’t. I gave up completely on the idea of hands (why wouldn’t they look right?!) and it took me far too long to figure out where the face/head/clothes go. I based it off my actual character in the game but changed my hair colour to purple (from red- purple isn’t available in game) and added a purple dress normally worn by one of the other characters (Payton), and glasses from the Nerd outfit. Once I’d figured it out (several hours later), I added the purple Tux that’s the mascot for this website on my shoulder as a pet. If I struggle with putting together a few ready made assets, I’m never going to be good at actual graphics design 

I’d completely forgotten about the Black Friday sales when I bought the printer. The good news is it works, and it’s much quieter than the old one. It’s a colour laser printer with wifi so I don’t have to rely on anyone else to print for me (though I do need them to go fetch the printouts afterwards). Hopefully I’ll be able to print the stuff out for the carers and things will be easier.

I found out The Sims 4 was on sale today, and as it was on Sammie’s Christmas list I bought it for her. After a few issues with Origin (password is incorrect messages- yet it was exactly the same as the one I was using and it worked fine here) it’s now downloading and I have a very happy daughter. Ideally I’d have given her it at Christmas but the DVD was much more expensive and there’s no gifting system on Origin. Sammie being happy makes Danni happy 🙂

Over the next couple of weeks I need to finish planning all the Christmas (and birthday) shopping I still need to do so I can try and get it all done before Christmas itself. Sammie is mostly sorted but there are other people, like Johan. Luckily I’m not super ill like the last few years so I’m hoping I’ll be able to do it with plenty of rest and some help from Johan. I’ve also got WoW to play (though I should probably look at ways to reduce time needed to do things in there, as it’s taking me 2+ hours just to do garrison stuff right now) and I got to rank 20 in Hearthstone today for the cardback. No losses with a priest deck made up of random cards I liked the look of 😛 Unfortunately by the time I got to speak to Sammie my brain was pretty broken so I couldn’t play Minecraft, but talking was fun.

Only 2 days to go to complete NaBloPoMo. I’ll be really happy if I manage it, and even happier if there’s no relapse this year. Bad days I can cope with, bad weeks are much harder.

Danni

Noise Bad Bad Evil Bad

Danni, M.E., NaBloPoMo, Physical Disability, Real Life

Noise sensitivity is really bad today. Every little noise is making me feel like I’m going to throw up and causing loads of pain. Earlier there were several noises going on which by themselves wouldn’t have been too bad but combined caused a jerking attack. I didn’t lose full control this time, but every time I tried to move something I’d do that movement plus several others. Very annoying. Johan did say my muscles were being affected by multistrike though which made me laugh (multistrike is a thing in World of Warcraft that let’s attacks happen more than once).

Maybe sitting up the other day was a bad idea. Maybe it’s completely unrelated. I can’t be sure. All I know is I’m knackered now and I don’t know where my ear plugs are. Obviously I’ve not been on my puter today. Tomorrow hopefully will be better.

Danni

Vampires

Danni, M.E., Minecraft, My Little Pony: Friendship is Magic, NaBloPoMo, Penguins!, Physical Disability, Real Life, World of Warcraft

Less sad today. Still don’t know why I was yesterday but never mind. Today was an okay day, though had an unexpected visit from someone wanting some blood, sent by my GP. I’m not entirely sure why but went through with it.

There is so much I want to do in WoW and I’ve not enough time/energy to do it all 😛 I’m so grateful I’ve been able to get on my computer so often though. I also played some Minecraft with Sammie and her friend which was fun, even though my sound sensitivity made it more draining than usual. There’s My Little Pony comics on Humble Bundle I might have to get as presents.

Fed up of the pain from eating. Is so tempting to stop completely, but I’m already malnourished and losing weight so it’s a bad idea. Today it was plain chicken breast and salad that set it off. Yesterday a sandwich (and later on a wrap). The day before, sweet potato chips and a milkshake. Pretty much anything that isn’t pure sugar and that’s dodgy too. I know wholewheat and really fibrous stuff is the worst, as it just clogs me up rather than helping things along, plus the pain is worse. Yet they include some of my favourite foods 🙁 When I’m well enough I should probably get some tests done to find out what’s going on, as even with the domperidone I’m still bringing up bacon from yesterday’s wrap.

What’s it like to be pain-free? I don’t remember. I’ve been in pain of varying amounts since I was 5 with no real let up. Maybe earlier, but my memory is fuzzy from before then. When I was a kid it was mostly reflux and joint pain (dismissed as growing pains, though they didn’t stop after I stopped growing). I didn’t even know it wasn’t normal. Now I’m just relieved I can get it down to bearable levels with tramadol. Dunno what I’d do if I couldn’t, other than be lying in bed unable to do what I can now. I’m grateful I can do what I can.

Penguins are awesome. Saw baby penguins on Facebook today, sent by a friend. They took away the rest of the sad from last night. Sometimes I just need to remember to be more like a penguin. Noop Noop!

Danni

Upright Is Cool!

Computers, Danni, Gaming, M.E., Minecraft, NaBloPoMo, Physical Disability, Real Life, World of Warcraft

A blog post not written in the middle of the night?! Madness!

Resting in bed after sitting up, super happy but dizzy and tired.
Resting in bed after sitting up, super happy but dizzy and tired.

Today I have spent a lot of time on my computer. I have played Minecraft and WoW, ordered stuff I needed online, sorted out general stuff and done other computery things. As I was feeling okay this afternoon I decided to sit on the edge of the bed (with Johan helping to hold me up). My treatment team want me to do this as much as I can (without overdoing it) to try and rebuild my tolerance of being upright.

I managed about 30 seconds (we weren’t counting) and hugged Johan (it’s much easier when upright!). No photos of sitting up as Johan was busy with me, but I took one about 10 minutes after while resting again. My heart rate took about half an hour to get back down to normal (and my normal is pretty much tachycardic itself, around 100 beats per minute) but I felt okay to go back on my computer, which was good as Sammie was back from school and I wanted to talk to her a bit 🙂 Today has been a very good day 😀

I’ll have to see how I am over the next few days. I also had a small wash and change of clothes and bedding this morning, so I might have been a bit silly doing them all in one day. I’m hoping it’ll be okay, as I’ve felt well enough to try sitting most of the last week (only when I didn’t sleep well did I feel too crap) and I do feel like I’m starting to improve. The last few years I’ve relapsed either at the end of November or the beginning of December, but I’m hopeful that this year will be different.

I do need to do a food shop though. I have a Wiltshire Farm Foods delivery coming on Thursday to give me a few meals I can have (plus some pureed sandwiches that I actually like that I can have if I can’t chew) but we’re getting low on other food to last until then. Since my eating is already pretty poor this isn’t a good thing. My digestive system still hates me, and I’m not particularly happy with it (it was being annoying this morning, meaning Johan got less sleep than he should have) but I’m getting used to that. If I carry on having good days I might have to see what else I can do 😀

Danni

Voices From The Shadows

Danni, Important Stuff, M.E., NaBloPoMo, Physical Disability, Real Life

Been asleep all day so a short post now 🙂 Also, apologies for my blog being down- I have monitoring set up but Johan doesn’t, and being asleep meant I didn’t get it fixed until after I woke up again.

One of Vikki George’s 30 wishes (see last post or http://my30wishes.blogspot.co.uk/) is for 30 people to watch Voices from the Shadows. I have this on DVD, though I’ve not been well enough to watch it yet. However, those who have seen it say it’s a very important film about severe ME.

At the moment it’s free to watch online (until the end of the year, maybe longer) using the promo code VOICES on Vimeo. You have to register your name, email address and a password, which you can do after clicking the “rent for $3” button. You put the promo code in by clicking the “apply promo code” link under the billing information section (which you can leave blank).

The film is very emotional and is not suitable for children or young people with ME. It’s meant to educate those who don’t know the illness or the issues surrounding it. However, if you’re an adult it would mean a lot to me for you to watch it. Thank you.