Category: World of Warcraft

Danni

Upright Is Cool!

Computers, Danni, Gaming, M.E., Minecraft, NaBloPoMo, Physical Disability, Real Life, World of Warcraft

A blog post not written in the middle of the night?! Madness!

Resting in bed after sitting up, super happy but dizzy and tired.
Resting in bed after sitting up, super happy but dizzy and tired.

Today I have spent a lot of time on my computer. I have played Minecraft and WoW, ordered stuff I needed online, sorted out general stuff and done other computery things. As I was feeling okay this afternoon I decided to sit on the edge of the bed (with Johan helping to hold me up). My treatment team want me to do this as much as I can (without overdoing it) to try and rebuild my tolerance of being upright.

I managed about 30 seconds (we weren’t counting) and hugged Johan (it’s much easier when upright!). No photos of sitting up as Johan was busy with me, but I took one about 10 minutes after while resting again. My heart rate took about half an hour to get back down to normal (and my normal is pretty much tachycardic itself, around 100 beats per minute) but I felt okay to go back on my computer, which was good as Sammie was back from school and I wanted to talk to her a bit 🙂 Today has been a very good day 😀

I’ll have to see how I am over the next few days. I also had a small wash and change of clothes and bedding this morning, so I might have been a bit silly doing them all in one day. I’m hoping it’ll be okay, as I’ve felt well enough to try sitting most of the last week (only when I didn’t sleep well did I feel too crap) and I do feel like I’m starting to improve. The last few years I’ve relapsed either at the end of November or the beginning of December, but I’m hopeful that this year will be different.

I do need to do a food shop though. I have a Wiltshire Farm Foods delivery coming on Thursday to give me a few meals I can have (plus some pureed sandwiches that I actually like that I can have if I can’t chew) but we’re getting low on other food to last until then. Since my eating is already pretty poor this isn’t a good thing. My digestive system still hates me, and I’m not particularly happy with it (it was being annoying this morning, meaning Johan got less sleep than he should have) but I’m getting used to that. If I carry on having good days I might have to see what else I can do 😀

Danni

Sleepy Danni (Again)

Computers, Danni, M.E., Minecraft, NaBloPoMo, Physical Disability, Real Life, World of Warcraft

I was hoping to be more with it and awake today than I was yesterday (I’d not got much decent sleep as there was a dog whining for hours). Unfortunately that didn’t happen, and I spent most of the day asleep, missing the time I’d planned to go into Minecraft with Sammie and her friend 🙁 I did get on eventually, and we played a bit, but I’m annoyed I was asleep so much 😛

It also means I’m nowhere near to fixing my sleeping pattern. Nevermind 😛 I’m playing World of Warcraft at the moment where there’s loads of stuff for me to do. The problem is choosing what to do first 😛

I had an accident that required my bed to be changed, which made Johan very meowy. Luckily he was already awake, as if he’d been asleep he would have been even more grumpy. I’m very grateful I have a spare U-shaped pillow.

This cold is reminding me it’s still here. Feeling all bunged up and headachy today. I think the sitting up on the side of the bed is on hold until I’m a little bit better. I’m glad I’ve not relapsed though.

I’ve got a couple of books I want to read. If I’m able to stay awake after coming off computer tonight then I think I’ll start one of them. I wanted to read 50 books this year and I’ve only managed 32, so I’ve got a lot of catching up to do. I’m so glad I’m able to read now though 🙂

Danni

Some Days

Danni, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft

Some days are good.

Some days are bad.

Some days I really look forward to.

Some days I don’t.

Today is a good day. I am on my computer distracting myself from the pain and blehness by being a Night Elf Priest, helping people and smiting demons. I ate a meal and it’s only being annoyingly painful, not exceedingly so.

I’m looking forward to days in the near future, where I’ll play games with Sammie or watch a film. Where I’ll plan presents for her and my friends. Days where the pain stays at a level I can cope with with just my normal painkillers and stuff.

I’m hoping this December will be different from the last few, where I’ve got really ill and been paralysed. They were no fun. But I was still able to be happy because I know I have friends and family who love me, and penguins exist.

Penguins always make me happy. Even when I forget who I am because of illness.

A lot of the things people think are important aren’t. A person’s worth is not based on what job they do, what exams they pass. It’s based on how much they love. And every human is capable of love. It can be very hard sometimes, but I’ve never met anyone who couldn’t love. It might not be expressed how people expect, but even if they only love themselves, that counts. Every human has worth.

I hope that I’ll be out of bed soon, able to go into my wheelchair and out of this flat. But even if that doesn’t happen, I know that my life is worth living. Even when the pain is more than I can bear. Even when I don’t know who I am. My life is worth living. I don’t like it when people suffer, but we should try to reduce the suffering, not make them feel they’re not worth life, at least until it’s time for them to go.

I’m not scared to die. I don’t want it to happen for a very long time, but some things are out of my hands, and when I die is one of them. As it should be. I know that although there’s many things I want to do, I’ve done the most important, which is love and be loved. I hope I have much more time to do so, especially as I want to see Sammie continue to grow into her own, amazing person. But if I were to die soon, I know that things will be okay because of love.

Danni

Sleep is?

Danni, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft

Maybe good? My sleep is opposite right now. Sleep during day, awake during the night. Sleep means nightmares and pain, which I not like. Broken sleep makes Danni grumpypants.

Before I went to sleep this morning I read a book, called Wakefield. I enjoyed it, even though some of the language was problematic. I’ll have to get the next book in the series at some point.

No WoW tonight. Too tired. Rest is good.

I think best just before I go to sleep. I’m usually too tired to write down what I’m thinking about, then I’ve forgotten it when I wake up again (only remembering I wanted to remember something). Is annoying.

Maybe I sleep again soon and wake up during day. That sounds like plan. My plans rarely work how I want them to, but I’ll keep trying. I’m Alliance, after all 🙂

Danni

Java Fail

Computers, Danni, Gaming, M.E., Minecraft, NaBloPoMo, Physical Disability, Real Life, World of Warcraft

For some reason Java keeps crashing on my computer when I’m running Minecraft. Very annoying but I’m not with it enough to fix it today. Maybe tomorrow.

I’ve played Minecraft with Sammie today (when I could stay in) and then went into World of Warcraft for more levelling. The queues were much shorter today (about 20 minutes) and there was a lot less lag. Yay! I’ve managed to get to level 96 which isn’t bad going for me 🙂 Much of the guild are close to or level 100 now, which is awesome. Johan is the best geared in the guild, which is cool (though it’s only heroic level stuff so it’ll probably change when raiding starts).

I’m well enough for my computer (obviously) which I’m super happy about but touch and stuff is being really problematic. I want computer a bit more right now but if it continues for more than a few more days I’ll have to sort something out.

Got a letter from my consultant today. Mentioned I’d a previous positive ANA test (news to me) and now have probable POTS (not surprised). Also says fatigue of unknown origin, which is fair enough. I’ve been referred to Professor Julia Newton so hopefully she’ll be able to help (I know a lot of people who have asked to be referred to her so I’m feeling very lucky it has happened for me without having to ask, and that she’s not far away).

I’ve got a couple of blog drafts I want to finish, but all brain power currently going into computer gaming related stuff (or talking to very important people). I’m sure I’ll manage it at some point 🙂