Apr 212015
 

Update post in list format cos easier with broken brain πŸ™‚

  • The big one: I’m getting my hoist! Got a phone call 10th April saying the OT was coming with a couple of contractors to measure up for the hoist. Friday 17th they did the measuring, and have worked out how best to fit a ceiling track in my bedroom and the living room (so I can lie in there during the day for a change of scenery). They need to sort who’s installing it (two different companies did the measuring, as they got to get quotes from more than one), sort the funding (which I was told won’t be a problem with how much support I have for getting this hoist) and then work out when they’re available to do the install, but I should be looking at 6 weeks or so. I’m hoping it’ll be before my birthday, which gives them about 9 weeks.
  • Apparently the best way to fit it in my bedroom is going to be diagonally from the corner next to my bed/the window to the corner next to the door. This is going to be interesting to look at πŸ˜› (I’m not sure what they decided in the living room as I couldn’t see.) Johan helped a bit with the measuring πŸ™‚
  • I got my sleeping pattern back to normal, then broke it again a couple of days later. This has happened several times. I’m getting a bit annoyed that I keep missing stuff because of it (not that it’s anyone’s fault, just that it’s happening).
  • I think I might be getting over the cold. Though I still have a blocked nose and I’m still sneezing, so maybe I haven’t. Or that could be hayfever. Since I have all the other cold symptoms permanently (sore throat, headache, temperature dysregulation, coughing) it’s hard to tell.
  • Had my annual review with the nurse from the GP surgery. I didn’t realise I get annual reviews but apparently I do. I guess it’s a good thing πŸ˜› My blood pressure was slightly low when she took it, and she initially measured my pulse as 55 bpm but unfortunately that was hers, not mine (mine was 87 bpm, which is about normal for me).
  • My GP can now be contacted by email. This will be useful if I ever manageΒ to write emails (or can convince Johan to write them). As I’m struggling a bit with my mental health and a couple of other niggly bits I’ve asked for her to come see me (nothing too major, just anxiety is more of an issue and flashbacks/nightmares are getting worse, and I not know how to cope with them, and not being sure if I have a urinary tract infection again or not).
  • GP has prescribed the supplements I need cos I’m deficient in a couple of vitamins and minerals. One is folic acid, and the pack says it’s for preconception. Is there something they know we don’t? πŸ˜›
  • We have a cleaner! She comes weekly and has already done a massive amount. OT didn’t complain about the amount of stuff we had when he came for the hoist, which was good. She’s from the council’s home help team and is starting to understand that we need help with decluttering and tidying as well as cleaning.
  • I have a care review on Wednesday 22nd. Apparently it’s going to my social worker (I have one now it seems), the care agency, the home help service, and I think there’s someone else but I’ve forgotten. Too many people. Hopefully we’ll be able to sort out the things that aren’t being done (the biggest thing is I need prompting adding to my care plan so care workers know I’m not going to be able to tell them what I need doing).
  • As my Nexus 10 is in the process of dying (and is occasionally flashing a white screen at full brightness, which is not good for me) I bought a new tablet (well, asked Johan to buy it for me) on Saturday. I was hoping to hold out a couple more months until the new ones were released, but it was getting urgent. After looking online and going backwards and forwards loads (I’ve been talking about getting a new tablet since last year) I decided on a Samsung Galaxy Tab S 10.5. The screen is a bit bigger than my old one (10.5″ compared to 10.1″) but the actual device is slightly smaller and much thinner and lighter. The only problem is it’s so light and thin it slides on the pillow when I’m trying to use it, so I’ve had to get a case to stop it πŸ˜› I’ve upgraded it to Lollipop (it came with Kit Kat and for some reason the Lollipop update hadn’t been released in the UK yet so I did it manually) and rooted it so I could transfer all my games and stuff over. I’ve also enabled the software navigation bar as the home button (being a physical button unlike the recent apps and back buttons) is too hard for me to press frequently. Depending on how well I get on with TouchWiz I might stay with the stock rom or I might swap to something else that doesn’t have it.
  • I’m getting on my computer a few times a week now, but not always at the times I want. It’s a great distraction but that does make it easy to overdo it. It’s really good for my mental health though (which is a bit wobbly at the moment though more anxiety than anything else) and when I catch her I love talking to Sammie.
  • I’m really struggling with things like food shops, buying stuff I need (like clothes/pyjamas), and communicating with people. I not sure what to do about it. It’s taking me months to decide things which isn’t great. Autism plus ME makes things hard.
  • Our washing machine is making a lot of noise. Something (we think a bit of plastic from the drum) has fallen inside the sealed bit. We’re not sure whether to try and get it repaired or buy a new one. I’m no way well enough to choose a new washing machine, or sort out a repair, and Johan isn’t either (Esther can help with phone calls but needs to be told who she’s phoning and why).

Below is all my gaming stuff so feel free to ignore it πŸ˜›

  • I managed to get Dannila (my Monk) to level 100 in World of Warcraft. I was still in Talador (though wearing heirlooms). Now I’m questing through Spires of Arak while daisy picking, mining, surveying, logging and trying not to die.
  • Danni (my Priest) got Harrison Jones as a follower today. Yay! I’m mostly only doing garrison stuff on her right now, though I’ll do the Apexis daily if it’s one I’ve not done and I’m feeling up to it. I’m hoping to be well enough to do heroics on her soon as I’ve got all the inn quests.
  • Tiarna still doesn’t have her glyph of the penguin back so she’s levelling the slow way- through garrison missions. She’s about halfway through level 92 πŸ˜›
  • I’m still playing all my mobile games. I’m not spending quite a much time on them as I was because I’m trying to spend more time on puter.
  • I unlocked everything on AdVenture Capitalist so I’m now very slowly getting more angel investors (have 2.631 duotrigintillion right now and hope to roughly double that next reset, which will probably be in a week).
  • Krystall (my character in Kim Kardashian) has climbed into the top 100 of the A list for the second time and is looking to reach the top 50 soon. I’m pretty sure I’m the only person I know still playing this πŸ˜› I mostly like holding parties in my house in Calabasas as it gives me over a million new fans for each 3 hour party (that takes me less than 10 minutes if I’ve got all the energy I need).
  • In High School Story my school is level 19 and I’m currently partying for a Mascot guy during the day and a Movie Star guy during the night (Mascots are the only class type that’s still time based). I’m really running out of room in my hangouts even though I’ve got all three upgraded platinum as well as the type ones πŸ˜›
  • In Hollywood U I’ve completed all the quests (luckily there’s new ones each week) and I’m currently levelling all my entourage to level 15 (Danni is level 45 and most of the main characters are level 20). I’m partying for a Celeb Blogger guy then it’ll be back to partying for the elusive Fairy Tale girl. My space issues aren’t quite as bad as in High School Story but I still need to be careful not to admit too many of those I already have.
  • In Dragonvale I’m currently trying to breed a Spring dragon and a Miasma dragon. While trying for the Spring dragon I’ve bred a Double Rainbow dragon and it looks like I’m getting a second one. They’re cool but they also take 60 hours to breed so I’d rather not get too many. There’s a lot of dragons I don’t have that I can get with the combination I’m breeding with (Leap Year and Snowy Gold) so I’m hoping to get some of them. I’m a bit annoyed they released the current star fall event so soon after the Easter egg event as it means I don’t think I can get enough star dust to get even one dragon (though I’m hoping I’m wrong). I should get the Walk of Stars (which is a pretty path) today, hopefully.
  • I’ve got spreadsheets for High School Story, Hollywood U and Dragonvale to keep track of what students and dragons I have and what ones I’m partying/breeding for. I spent far too long one night setting them up with all sorts of formulae to get it working how I wanted πŸ˜›
 Posted by at 9:35 am

  4 Responses to “Hoist! New Shiny Toy! Yay!”

  1. Yay for the hoist! I know you’ve been waiting since FOREVER for this thing to arrive. I hope it changes your life in amazing ways. I also hope the installation doesn’t send you into a relapse. My next door neighbors are building a new fence, and it’s really awful on me.

    Sorry your brain is being wonky on you. Anxiety sucks big time. Keep calm and hug a penguin!

    • I’m going to go into a care home when the hoist is being installed, as they’re going to need to access where my bed is and it will be too noisy. We’re going to check beforehand that the care home can meet my needs this time and if they can’t find another (we’re allowed to choose from a massive list so hopefully at least one of the local ones will be able to manage it).

      The penguins are helping πŸ™‚ Thank you.

  2. So pleased you are getting the hoist they make a differece. Re folic acid you probably have some sort of neuropathic pain and this is to lessen it or better still prevent it as well as being recommeded for women who are trying to concieve, delighted for you.

    cant follow the gaming stuff at all so thak you for seperating it out as it makes it easy for people like me to jump it

    • I’m deficient in folic acid and phosphate (which is why the supplements were prescribed) and I was just amused by the packaging. Johan is adamant he doesn’t want any children (other than being stepdad to Sammie) so even if I weren’t too ill we wouldn’t be wanting it for that. (I suspect the deficiencies are a combination of struggling to eat properly and malabsorption as my digestive system isn’t working properly.)

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