Author: Danni

The Purple Penguin! 31 year old autistic geek, living in bed with severe ME (myalgic encephalomyelitis). Likes gaming, purple and penguins.
Danni

Amazon Prime Now

Danni, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life

Slept during the day so have done nothing really productive, waking up about quarter past eleven this evening. Tomorrow I’m going out so I really need to fix this.

This morning I wanted toast for breakfast for breakfast, and we had no bread. As Johan was going out he couldn’t go to the shop, so I used the new Amazon Prime Now delivery service to buy some (along with milk, chocolate, biscuits, tracksuit bottoms and a FitBit Charge HR). I placed the order at 9.14am and it arrived at 9.37am. That is the ultimate in impulse shopping 😛 I’m unlikely to use the within the hour delivery unless it’s a real emergency as it’s £6.99, but if they have what I want then I might use the 2 hour same day delivery as that doesn’t cost any extra as I’m already on Prime.

The FitBit is interesting. For some reason it was cheaper on Prime Now than on Amazon’s normal site (£69.99 compared to £124 for the one I wanted). I’ve not figured out how to get it to show my heart rate on my tablet in real time yet, as that’s what I mostly want it for, but it has been interesting seeing how simple tasks like rolling over and eating raise my heart rate. It did think I was asleep when I was just resting this morning but luckily it was easy to correct. When I did fall asleep it seemed to be pretty accurate, also realising when I woke up for Johan coming in. I’m going to class any time sat up as exercise to try and find out how it affects my heart rate.

It was a nice carer this morning. She came on time and is fed up of the agency missing calls and stuff. She got me an email address so I should be able to email them about things now. I’ll probably set up a template for asking where the carer is so if they don’t turn up I can just send an email without worrying about how to write it. The carer made me some nommy toast, got me dressed in comfy clothes (including my new tracksuit bottoms, which are too short but otherwise fit) and is going to ask the agency to put me on her rota for every morning except her day off. This would be great for us as we really like her and she’s one of only two carers I feel safe dealing with by myself.

The evening carer turned up but I had sleep paralysis so wasn’t able to tell her I was awake. I was very tired anyway as I’d not been back to sleep for that long. I don’t think Johan spoke to her.

I’m excited about going out tomorrow. The pain has eased off a little bit- not quite back to normal but more bearable. A lot of it was digestive issues because I ate too much fruit and veg. I need to remember they don’t agree with me and to only have small amounts, even though they’re so nice. I’m hoping to get some sleep before I go out, even if it’s just while Johan is at the day service thingie. If I can get some more sleep tonight though I’d be very happy. Hopefully with having had a decent carer it’ll be easier to sleep.

Nicky’s new body has arrived and I’ll be using penguin magic to transfer them into their new body. I think Patricia is missing Johan a bit 🙂 I also got my noise cancelling headphones which are weird but do seem to work for blocking out noise. I’ll be testing them properly tomorrow when I go out. Squee!

Danni

Anxiety Pwns Joo

Danni, Loom Bands, M.E., Mental Health, NaBloPoMo, Penguins!, Physical Disability, Real Life

Anxiety is ebil. Not being able to sleep at night because scared someone will break in or have a violent fight or other silly things that aren’t likely but my brain insists will happen when I’m asleep. I stayed awake for the morning carer and no-one showed up. It was about 12pm before I managed to fall asleep.

Being asleep most of the day means I’ve done nothing productive. Pain levels have been higher than normal and I’m not sure why. I need to do a food shop but it requires more brain power than I have right now. Decided I’m not getting out of bed until Friday and we have a plan for if I’m still hurting so much then.

I’m getting a bit obsessed with Neko Atsume. My current strategy is to buy the most expensive items first. I’m starting to get lots of mementos which is awesome 🙂

Johan is helping by sitting in my room, dosing me up on painkillers and heating penguins. We found a hole in Nicky’s wing so I’ve bought her a new body and Patricia (Johan’s penguin) is helping in the meantime. I’ve noticed it’s the newer penguins developing holes which is concerning. I hope the new one lasts longer. I also took the opportunity to buy noise cancelling headphones, a second Rainbow Loom and 2100 loom bands for 46p. The advantage of getting into it late 🙂

I’m ho
I’m hoping tomorrow will be better. At least there are penguins 🙂

Danni

Zombified Danni

Autism, Danni, Gaming, M.E., Mental Health, NaBloPoMo, Physical Disability, Real Life

Had a very long sleep- from just after 8pm last night to 9.40am this morning. Unfortunately I’ve been feeling rather zombified and boaty today, so not been able to do much. What doesn’t help is my index finger on my left hand is sore from holding in the power button on my tablet yesterday. I’ve also been in more pain than is normal for me which is making me a tad grumpy.

Had two decent carers today. Yay! We got a phone call from the agency (Communication! Yay!) saying it would be a new carer and she’d be here about 10.30am as the one I was meant to have had called in sick, then the carer arrived just after 10am so we were a bit confused but it was okay. Had bacon for breakfast as Johan had dropped the last two duck eggs 😛

Spent most of the day reading articles online and blog posts, with a bit of tablet game playing as well. Luckily I’d backed up all my apps before changing the rom on my tablet so I didn’t lose any progress 🙂

Ow. Someone just slammed the communal door and the noise has made me lose my voice 🙁 Boo. Hopefully it’ll come back soon. Also made me nauseous but I’m hoping not to need cyclizine because I’m zombie enough.

The evening carer was one of my favourite ones from this agency. She made me salmon and chips for tea and helped me get into pyjamas and stuff. Was good. She’s meant to be coming on Friday evening so I was able to warn her I might not be in as seeing Becca. I hope the zombiness is gone by then.

I probably shouldn’t have started reading The Shock of the Fall by Nathan Filer yesterday. I thought it was one of my young adult dystopian books, not one about someone with mental illness. What I’ve read is good but maybe I’ll save finishing it for when I’m a bit less anxious and panicky. I read Among the Hidden by Margaret Peterson Haddix before that which I’d been wanting to read for years. That was good and I’m wanting to continue the series.

Brains. Grr. Argh.

Danni

Tablet Trouble

Computers, Danni, M.E., NaBloPoMo, Physical Disability, Real Life

Been awake since last night so very tired. Morning carer didn’t come into the flat (door was unlocked and she’s meant to have keys anyway) so didn’t have a care call this morning. Johan had just got out of the shower so couldn’t get the door when she knocked on the door. We thought it it must have been for another flat or something.

Managed to soft brick my tablet trying to install a new rom. It was stuck in a boot loop and I couldn’t even get into recovery so had to go on puter for a bit to fix it. Sorted now but I hope not to do that again any time soon. Once I’ve finished configuring my apps again I’m going to take a backup and try not to break recovery so I can use it if I need to. I’m still pretty pleased I was able to fix it without Johan’s help.

I had buttered toast this morning that tasted so good. I think I need to convince Johan he’s good at it so he’ll make me more 🙂 I’ve had too much fruit and veg the last few days so my digestive system has been more painful and bloaty than normal for me. One day I’ll learn they’re bad for Danni’s in anything other than small portions. They stay in my stomach longer than pretty much anything else as well.

Hopefully staying awake until 8pm will fix my sleeping pattern. I hope so as I’ve got stuff I want to do. If not then I at least hope I’ll be awake on Friday.

Danni

Penguin Sleep

Danni, Loom Bands, M.E., NaBloPoMo, Physical Disability, Real Life

In the early hours of this morning I made most of a loom band penguin that I just need to stuff and then finish, but this morning I managed to misplace it so I need to find it so I can do so and take photos. I discovered when trying to make the wings that my hands just aren’t coordinated enough to do crochet or knitting, as I kept dropping stuff while trying to loop and having to start again. At least on the loom I only have to worry about one hand at a time 🙂

I managed to be awake for the morning carer. She seemed to think 5 seconds of teeth brushing is enough. I know I don’t often manage 2 minutes but that’s short even for me. She did make me bacon and eggs though which were nice.

Since then I’ve slept most of the day and only woke up at half eleven. Hoping to see my sister Becca on Friday with her fiancé so will be resting up for that. It’s been ages since I saw her so that’ll be nice 🙂

Now I’m hungry so I need to ask Johan to make me some food. I just hope he doesn’t complain too much. One day I’ll fix my sleeping pattern but apparently not today.