Category: Real Life

Danni

Level 100!

Computers, Danni, Gaming, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life

I’m really happy as I got my Night Elf Priestess Danni to level 100 this morning. I’m kinda overwhelmed with all the stuff there is to do. So far I know I want to finish all the zone quests, search for all the hidden treasures, kill all the rare mobs,  level all my professions to 700, do the pet battles in my garrison, level my garrison buildings and heal all the dungeons in a guild group, preferably on heroic. That should keep me busy for a bit 😛

I’ve also managed to fix my problems with Minecraft. Turns out there’s a problem with the latest Java and going back to an older version fixed the crashes I was having. Yay! Sammie and her friend want me to play on the Minecraft server on Friday so I have that to look forward to.

My health seems to be improving a bit. Not only can I spend a lot of time on my computer, but I’m also able to be propped up more in bed. If I’m still doing well tomorrow I’ll be trying to sit on the edge of the bed (with Johan helping) to try and build up my tolerance again. I’m also finding reading a bit easier now. I still have the cold of doom but it does seem to be slowly easing up.

I got my blood results back from the hospital and it turns out I’m malnourished. Various deficiencies which I’m pretty sure are caused by not being able to eat properly for far too long. The doctor has recommended supplements and help from the dietician. I’m wondering though if it’s being worsened by my digestive system forgetting how to do its job a lot of the time. If I get that sorted though I’m hoping it’ll mean I feel a bit better, even though I know it won’t fix everything. The penguins are telling me I need more fish. I agree with them.

Sleeping pattern is still back to front. Not too worried about it but I’m trying to push it back as that works better for me than trying to bring it forward. If I can get it closer to normal I don’t know how long it’ll last but it’ll make playing with Sammie much easier so it’s worth it.

Penguins still exist. I have good friends. There are amazing people who I love and who love me. I’ve been able to do loads for me. Today is a good day 🙂

Danni

Spread The Hope

Danni, Important Stuff, M.E., NaBloPoMo, Physical Disability, Real Life

One of the awesome people I’ve met since I’ve been ill is the amazing Jessica LE Taylor. I first spoke to her on Twitter, after coming across her video The World of One Room  and discovering that not only did we both have severe ME, she also had some of the same symptoms I did, making me feel much less alone. I’ve since been following her progress, which includes sitting, standing and even taking her first steps thanks to intensive therapy in a private hospital.

Jessica has had severe ME for years, spending much of that time in hospital paralysed. While there, she wrote a song. Spread the Hope has now been released as a Christmas single, with the proceeds benefiting four charities: Share A Star (started by Jessica, sends special holding stars to seriously ill children), Post Pals (sends letters and gifts to ill or disabled children), Help Harry Help Others (cancer charity giving hope) and The Katy Holmes Trust (cancer charity hoping to find a cure for paediatric brain tumours).

You can watch the single on YouTube below and buy it from http://spreadthehope.christmas/

Danni

Some Days

Danni, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft

Some days are good.

Some days are bad.

Some days I really look forward to.

Some days I don’t.

Today is a good day. I am on my computer distracting myself from the pain and blehness by being a Night Elf Priest, helping people and smiting demons. I ate a meal and it’s only being annoyingly painful, not exceedingly so.

I’m looking forward to days in the near future, where I’ll play games with Sammie or watch a film. Where I’ll plan presents for her and my friends. Days where the pain stays at a level I can cope with with just my normal painkillers and stuff.

I’m hoping this December will be different from the last few, where I’ve got really ill and been paralysed. They were no fun. But I was still able to be happy because I know I have friends and family who love me, and penguins exist.

Penguins always make me happy. Even when I forget who I am because of illness.

A lot of the things people think are important aren’t. A person’s worth is not based on what job they do, what exams they pass. It’s based on how much they love. And every human is capable of love. It can be very hard sometimes, but I’ve never met anyone who couldn’t love. It might not be expressed how people expect, but even if they only love themselves, that counts. Every human has worth.

I hope that I’ll be out of bed soon, able to go into my wheelchair and out of this flat. But even if that doesn’t happen, I know that my life is worth living. Even when the pain is more than I can bear. Even when I don’t know who I am. My life is worth living. I don’t like it when people suffer, but we should try to reduce the suffering, not make them feel they’re not worth life, at least until it’s time for them to go.

I’m not scared to die. I don’t want it to happen for a very long time, but some things are out of my hands, and when I die is one of them. As it should be. I know that although there’s many things I want to do, I’ve done the most important, which is love and be loved. I hope I have much more time to do so, especially as I want to see Sammie continue to grow into her own, amazing person. But if I were to die soon, I know that things will be okay because of love.

Danni

Sleep is?

Danni, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft

Maybe good? My sleep is opposite right now. Sleep during day, awake during the night. Sleep means nightmares and pain, which I not like. Broken sleep makes Danni grumpypants.

Before I went to sleep this morning I read a book, called Wakefield. I enjoyed it, even though some of the language was problematic. I’ll have to get the next book in the series at some point.

No WoW tonight. Too tired. Rest is good.

I think best just before I go to sleep. I’m usually too tired to write down what I’m thinking about, then I’ve forgotten it when I wake up again (only remembering I wanted to remember something). Is annoying.

Maybe I sleep again soon and wake up during day. That sounds like plan. My plans rarely work how I want them to, but I’ll keep trying. I’m Alliance, after all 🙂

Danni

Java Fail

Computers, Danni, Gaming, M.E., Minecraft, NaBloPoMo, Physical Disability, Real Life, World of Warcraft

For some reason Java keeps crashing on my computer when I’m running Minecraft. Very annoying but I’m not with it enough to fix it today. Maybe tomorrow.

I’ve played Minecraft with Sammie today (when I could stay in) and then went into World of Warcraft for more levelling. The queues were much shorter today (about 20 minutes) and there was a lot less lag. Yay! I’ve managed to get to level 96 which isn’t bad going for me 🙂 Much of the guild are close to or level 100 now, which is awesome. Johan is the best geared in the guild, which is cool (though it’s only heroic level stuff so it’ll probably change when raiding starts).

I’m well enough for my computer (obviously) which I’m super happy about but touch and stuff is being really problematic. I want computer a bit more right now but if it continues for more than a few more days I’ll have to sort something out.

Got a letter from my consultant today. Mentioned I’d a previous positive ANA test (news to me) and now have probable POTS (not surprised). Also says fatigue of unknown origin, which is fair enough. I’ve been referred to Professor Julia Newton so hopefully she’ll be able to help (I know a lot of people who have asked to be referred to her so I’m feeling very lucky it has happened for me without having to ask, and that she’s not far away).

I’ve got a couple of blog drafts I want to finish, but all brain power currently going into computer gaming related stuff (or talking to very important people). I’m sure I’ll manage it at some point 🙂