Category: NaBloPoMo

Danni

Adventures in Penguin Shopping

Autism, Danni, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life

Went out today! First went into Gateshead and got my head shaved at a barbershop (they initially said they couldn’t do me until Johan explained what I wanted). I now have basically no hair and it feels weird but it’ll be nice to not have to worry about washing it for a while.

I felt okay and we were a bit hungry so decided to go into Newcastle for food. We went to Wagamama as I’d never been there before and Johan likes it. I had dumplings which were very nice. Getting the Metro was difficult as it was as everyone was travelling to see the Newcastle football match, but we managed to get me on.

We went to Grainger Market next, where Johan failed to find any games in the retro gaming shop and I found a penguin cupcake in French Oven. I’m still full from lunch so will have to eat it later. Next was Geek Retreat which was very crowded. I think I’ll go back when there’s less people as it was hard to see what was there, but I had a nice hot chocolate.

Looked in Forbidden Planet and then Travelling Man. I couldn’t find anything I wanted in Forbidden Planet but bought Pandemic from Travelling Man as I’ve been interested in it for a while and we were wanting a game that works well with two players. Getting around these small shops is hard in my tank 😛

We were starting to think about home, but the Newcastle match had just finished and I knew the Metro would be packed. I also had misplaced my gloves and as the temperature was now below freezing asked to go to Primark to buy some more. On the way Johan looked in PC World for a keyboard (he couldn’t find the one be wanted) and I got confused by the pile of monitors in the middle of the aisle in a shop which is otherwise easy to get around (though the displays are too high for a wheelchair user).

In Primark I found some really big penguin thermal socks, and then two different pairs of penguin gloves. We looked at the warm slippers but couldn’t find any in my size. While doing so I managed to knock the penguin cushion under my legs so I couldn’t feel it, and thought I’d dropped it. We ended up backtracking and Johan asked the staff before he checked and found it. Near the counter I spied a multipack of normal penguin socks, so bought them as well. While helping me sort things out Johan found the gloves I’d already been wearing under the Trabasack but I’d bought penguin stuff so it was worth it. I was very tired by now so we went home.

It’s been a really good day. I probably overdid it but it’ll have been worth it. The most exhausting thing wasn’t being in my chair and it, but trying to communicate as I had no voice and typing was difficult while moving. I think if I go out when I can’t speak again I should take a Bluetooth keyboard as it’ll make typing much easier.

Tomorrow if I feel okay I want to go on my computer as I’ve not been on since fixing my tablet and I think it’s been over a week since I was on to do fun stuff. I also need to start finalising my Christmas shopping lists. Before then though I think I need to sleep 😛

Danni

Music is Good

Danni, Loom Bands, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life

The original plan was to go until Newcastle to see Becca but she wasn’t able to make it so as I’m tired we’re going out tomorrow instead. Hopefully I’ll get more than the 1 1/2 hours of sleep I managed this morning.

I’ve mostly been playing the game Loop on my tablet today. It’s very addictive and good for when I don’t have much brain power as I find it easy to work out.

When everyone was out I put the music on the telly really loud* as I couldn’t disturb anyone. I was singing along and flapping and my heart rate went over 150bpm. Whoops. Guess that’s my exercise for the week and I hope I don’t get payback. I wouldn’t have known if it weren’t for the FitBit as I felt okay at the time. I also made a couple of loom band bracelets to try some new patterns. I’m managing intermediate level stuff now 🙂

Hoping tomorrow I’ll be awake enough to out as I really want to get my hair shaved off. There’s a barbers in Gateshead that looks good so will see if they’re up to the challenge of managing it with me in my chair. I was thinking of Newcastle but maybe on a Saturday a few weeks before Christmas isn’t the best time. I’ll go into Newcastle on a weekday to see Fenwick’s window 🙂 I’m tired enough now to sleep through to morning if my brain will let me. Nicky’s new body is so soft and fluffy that I love cuddling them.

*Really loud = volume 20 instead of volume 15.

Danni

Amazon Prime Now

Danni, M.E., NaBloPoMo, Penguins!, Physical Disability, Real Life

Slept during the day so have done nothing really productive, waking up about quarter past eleven this evening. Tomorrow I’m going out so I really need to fix this.

This morning I wanted toast for breakfast for breakfast, and we had no bread. As Johan was going out he couldn’t go to the shop, so I used the new Amazon Prime Now delivery service to buy some (along with milk, chocolate, biscuits, tracksuit bottoms and a FitBit Charge HR). I placed the order at 9.14am and it arrived at 9.37am. That is the ultimate in impulse shopping 😛 I’m unlikely to use the within the hour delivery unless it’s a real emergency as it’s £6.99, but if they have what I want then I might use the 2 hour same day delivery as that doesn’t cost any extra as I’m already on Prime.

The FitBit is interesting. For some reason it was cheaper on Prime Now than on Amazon’s normal site (£69.99 compared to £124 for the one I wanted). I’ve not figured out how to get it to show my heart rate on my tablet in real time yet, as that’s what I mostly want it for, but it has been interesting seeing how simple tasks like rolling over and eating raise my heart rate. It did think I was asleep when I was just resting this morning but luckily it was easy to correct. When I did fall asleep it seemed to be pretty accurate, also realising when I woke up for Johan coming in. I’m going to class any time sat up as exercise to try and find out how it affects my heart rate.

It was a nice carer this morning. She came on time and is fed up of the agency missing calls and stuff. She got me an email address so I should be able to email them about things now. I’ll probably set up a template for asking where the carer is so if they don’t turn up I can just send an email without worrying about how to write it. The carer made me some nommy toast, got me dressed in comfy clothes (including my new tracksuit bottoms, which are too short but otherwise fit) and is going to ask the agency to put me on her rota for every morning except her day off. This would be great for us as we really like her and she’s one of only two carers I feel safe dealing with by myself.

The evening carer turned up but I had sleep paralysis so wasn’t able to tell her I was awake. I was very tired anyway as I’d not been back to sleep for that long. I don’t think Johan spoke to her.

I’m excited about going out tomorrow. The pain has eased off a little bit- not quite back to normal but more bearable. A lot of it was digestive issues because I ate too much fruit and veg. I need to remember they don’t agree with me and to only have small amounts, even though they’re so nice. I’m hoping to get some sleep before I go out, even if it’s just while Johan is at the day service thingie. If I can get some more sleep tonight though I’d be very happy. Hopefully with having had a decent carer it’ll be easier to sleep.

Nicky’s new body has arrived and I’ll be using penguin magic to transfer them into their new body. I think Patricia is missing Johan a bit 🙂 I also got my noise cancelling headphones which are weird but do seem to work for blocking out noise. I’ll be testing them properly tomorrow when I go out. Squee!

Danni

Anxiety Pwns Joo

Danni, Loom Bands, M.E., Mental Health, NaBloPoMo, Penguins!, Physical Disability, Real Life

Anxiety is ebil. Not being able to sleep at night because scared someone will break in or have a violent fight or other silly things that aren’t likely but my brain insists will happen when I’m asleep. I stayed awake for the morning carer and no-one showed up. It was about 12pm before I managed to fall asleep.

Being asleep most of the day means I’ve done nothing productive. Pain levels have been higher than normal and I’m not sure why. I need to do a food shop but it requires more brain power than I have right now. Decided I’m not getting out of bed until Friday and we have a plan for if I’m still hurting so much then.

I’m getting a bit obsessed with Neko Atsume. My current strategy is to buy the most expensive items first. I’m starting to get lots of mementos which is awesome 🙂

Johan is helping by sitting in my room, dosing me up on painkillers and heating penguins. We found a hole in Nicky’s wing so I’ve bought her a new body and Patricia (Johan’s penguin) is helping in the meantime. I’ve noticed it’s the newer penguins developing holes which is concerning. I hope the new one lasts longer. I also took the opportunity to buy noise cancelling headphones, a second Rainbow Loom and 2100 loom bands for 46p. The advantage of getting into it late 🙂

I’m ho
I’m hoping tomorrow will be better. At least there are penguins 🙂

Danni

Zombified Danni

Autism, Danni, Gaming, M.E., Mental Health, NaBloPoMo, Physical Disability, Real Life

Had a very long sleep- from just after 8pm last night to 9.40am this morning. Unfortunately I’ve been feeling rather zombified and boaty today, so not been able to do much. What doesn’t help is my index finger on my left hand is sore from holding in the power button on my tablet yesterday. I’ve also been in more pain than is normal for me which is making me a tad grumpy.

Had two decent carers today. Yay! We got a phone call from the agency (Communication! Yay!) saying it would be a new carer and she’d be here about 10.30am as the one I was meant to have had called in sick, then the carer arrived just after 10am so we were a bit confused but it was okay. Had bacon for breakfast as Johan had dropped the last two duck eggs 😛

Spent most of the day reading articles online and blog posts, with a bit of tablet game playing as well. Luckily I’d backed up all my apps before changing the rom on my tablet so I didn’t lose any progress 🙂

Ow. Someone just slammed the communal door and the noise has made me lose my voice 🙁 Boo. Hopefully it’ll come back soon. Also made me nauseous but I’m hoping not to need cyclizine because I’m zombie enough.

The evening carer was one of my favourite ones from this agency. She made me salmon and chips for tea and helped me get into pyjamas and stuff. Was good. She’s meant to be coming on Friday evening so I was able to warn her I might not be in as seeing Becca. I hope the zombiness is gone by then.

I probably shouldn’t have started reading The Shock of the Fall by Nathan Filer yesterday. I thought it was one of my young adult dystopian books, not one about someone with mental illness. What I’ve read is good but maybe I’ll save finishing it for when I’m a bit less anxious and panicky. I read Among the Hidden by Margaret Peterson Haddix before that which I’d been wanting to read for years. That was good and I’m wanting to continue the series.

Brains. Grr. Argh.