Ouchy Tummy

Tummy is being extra ouchy at the moment. Yesterday I was stuck in bed but today I went into the living room and played WoW, and moaned while the realms were down for maintenance (and got grouchy and sad when it took longer than it was meant to, as I was in pain and wanted to play to distract myself).

Matilda (my desktop computer) had been freezing up and things but it seems to be fixed now. We think the SATA controller couldn’t handle 4 drives when one is a super fast SSD, as disconnecting one of the drives has helped. It did prompt me to sort out my WoW addons, which I’d been meaning to do for a while. Will need to go into an instance or scenario to see if it still plays random Mario music on boss fights though (I thought I’d removed the addon that did that ages ago but it still played afterwards).

Sleepy now as woke up late last night but I wanted to try and push my sleeping time back in an attempt to sort out my sleeping pattern, but it’s dark so can sleep now. Johan is going out to the Autism North East social tonight and he worries less if I’m sleeping, so now to try it. Penguins are helping a bit with my tummy pain as Johan heated them up for me 🙂

Rest in Peace, Emily Collingridge

In Memory of Emily CollingridgeToday was the funeral of Emily Collingridge, a young woman who died from M.E earlier this year. I did not know her personally. but her book (written while she was severely ill) has made a massive difference to my life. My thoughts and prayers are with her family and friends.

About Emily: http://www.severeme.info/about-emily.html

Emily’s book: Severe ME/CFS: A Guide to Living

A Guardian article about Emily: http://www.guardian.co.uk/commentisfree/2012/mar/30/me-emily-collingridge-chronic-fatigue-syndrome

ME Association’s page about Emily’s Funeral, including her mother Jane’s memories of Emily: http://www.meassociation.org.uk/?p=13356

Politics and Bad News

Strong emotions (both positive and negative) are exhausting for me. By exhausting, I mean I get very weak, I get worse brain fog, and I need to rest immediately. Too much means I get M.E payback. As part of being autistic, I experience most emotions very strongly, and it can be harder for me to process them.

When I realised that getting emotional was affecting my health, I decided to do something about it. Negative emotions affect me more than positive, especially sadness, anger and anxiety. I used to follow the news constantly- watching 24 hour news broadcasts, being on news websites, following news on Twitter and Facebook. Since bad news makes me feel bad emotions, I started limiting how much I saw. I don’t ignore it completely, but I try to only read headlines and not get as involved as I used to. This was hard as I care about what I read, but it has helped.

Due to our current government, most political discussions are also full of bad news (to be fair, this was also the case with the previous government). I used to be very interested in politics, and was quite active for a while. Political discussions are tiring even if they aren’t emotional, as they require remembering facts, being able to explain opinions clearly, and being able to understand what the other person/people are saying and remember it long enough to reply. All things that are difficult to impossible for me now. So I’m mostly staying out of politics and political things. This is difficult as I still have strong feelings, especially regarding disability rights, and welfare benefits, but if I get too involved it makes me ill.

Many of my friends, especially on Twitter, are very active politically. A lot of them are also disabled, and quite a lot are also ill with fatigue problems. I admire them so much for what they’re able to do, and so wish I could help them out. I can do the very basics- sign petitions, retweet stuff, very occasionally blog about things, but anything more and my health has to come first. It makes me feel guilty but I’m trying to get over that.

None of this is because I don’t care. It’s because I care too much, that it makes me feel such strong emotions, that I have to step back and let other people deal with things. When I improve I really want to help out, especially for disability rights and on benefit issues (as I’m reliant on benefits myself, and exceptionally grateful for them) but until then I have to just vaguely watch and try not to feel too much. It’s hard trying to not care when hearing about natural disasters or someone who can’t afford food because their benefits have been stopped, but if I care too much I get ill, and that won’t help anyone either.

What I do need to learn to do is be more clear that I can’t deal with bad news and politics and stuff, so when people direct it at me they understand why I don’t immediately do what they ask. I’m pretty sure the Spoonies especially understand that if I don’t respond to requests to retweet this, read that, it’s not because I don’t care, but some of those on Facebook especially can be posting all sorts of causes on my wall, some of which can be quite triggering to me. I’ve had to block the Causes app on Facebook which was hard, as it’s actually pretty good.

I’d never ask anyone to change their own tweets or Facebook posts for me. That would be silly. What I do need to ask is that there’s less sent directly to me (mentions or posting on my wall). If I ignore something or remove something, it’s not because I don’t care, but because I’m protecting my own health. When I’m feeling up to it, I might get involved in discussions that interest me, but I need to be in control of them and not be dragged into them (which has happened a few times, including in World of Warcraft which should be an escape from it all really).

There is an exception- if you’re a friend and want to rant at me, feel free 🙂 I can tell friends when I’m not up to conversations, and I like using energy to support my friends. I’ve had so much support from my friends recently that I’d love to be even half as supportive back. It makes such a difference to have someone understand what you’re going through.

Where’s That Fish?

I am currently in sleepy mode. I sleeping lots, and my sleeping pattern is completely messed up. Waking up in the evening and falling asleep again during the day. Silly. Spending all night in World of Warcraft so Danni happy.

I have lots of dailies to do in WoW now. I got to revered with Golden Lotus, which unlocked the August Celestials and Shado-Pan dailies. There was also an awesome quest chain to find some weapons and armour with interesting fights. I’ve also started trying to build up fishing with Nat Pagle, which involves fishing up three special fish once a day. They’re each meant to have a 1% drop rate in their respective areas, but one of them (Flying Tiger Gourami) took 501 catches for me to get, so the random number generator was really out to get me (there’s only a 0.65% chance of it taking so long). Hopefully it won’t take quite as many tomorrow 🙂

I also attempted raid finder for the first time this expansion. It went okay- was just the third boss of the first half, and after a few false starts we got the boss down. Healing didn’t feel too bad and mana wasn’t as bad an issue as I was expecting, but Johan was there with me so was probably making up for me not knowing what I was doing. I’m hoping to do the rest of it at some point. We’re planning on doing to guild heroics on Sunday, which should be fun 🙂

The advantage of doing so much fishing is that I got loads of fish to turn into Ironpaw Tokens 🙂 I’m trying to buy the Cooking Bell so I can get my own apprentice, and that takes 50 tokens to buy. Luckily there was also lots of cheap fish on the auction house so I’m now on 48 tokens, so hopefully I’ll get it tomorrow.

Outside of WoW, I seem to be slowly getting a bit better. I’m managing on less painkillers some of the time, and I no longer feel like I’m dying every time I move. I’m hoping to go out soon, though will need to be very careful so I don’t make myself ill. It won’t be until I’ve finished that DLA form off anyhow (I’m still waiting for Johan to do the typing- hopefully he’ll get it done either today or tomorrow).

I found an absolutely perfect pair of shoes for me on eBay, and I bought them, and Johan’s paid for them as my Christmas present! I’m so happy! They’re pink with lots of little penguins all over them, and they’re in a size 9! I never thought I’d get to have shoes with penguins on them as most women’s shoes I like don’t go up to my size, so these are brilliant. They are slip on Vans shoes, and I suspect I’ll be wearing them a lot 🙂

Happy Danni is very happy 😀