Category: M.E.

Danni

Brain is Stuck

Autism, Danni, Gaming, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft

It is hard for me to write as my brain keeps getting stuck. I hear something and have to repeat it lots and can’t stop it. I am also having problems trying to translate stuff into proper English with proper grammar.

Not sure why I am having a brain stuck day, just that I am. I will sleep soon and see if that helps.

Today I managed to rename my main character in World of Warcraft, from Danní to Danni. This made me happy. Blizzard let me have the name as someone else had used it but only for a level 1 and it had been inactive for a long time. This should make things easier for my guildies and things, and it makes me happy to be able to have my proper name in World of Warcraft 😀

I had jelly and ice cream. My mouth was being silly and forgetting how to chew, but that is not important for jelly and ice cream. It also kept breathing the food in instead of swallowing it, which is making my chest a little bit sore. I am not sure why it is being silly.

Tomorrow is hospital. I hope it is okay.

Danni

Back Problems

Danni, M.E., NaBloPoMo, Physical Disability, Real Life

Still suffering payback, so has been a day of not very much. Pain, nausea and concentration have all been really bad today. My mood has been all over the place as well, which isn’t great. My eyes keep leaking without permission.

Anyway, Johan sorted out ambulance transport for Wednesday. It’s normal sitting up transport, so that will be fun. Oh, and we have to be ready by 8.30am, and the appointment is at 11am. Yeah. We’re going to have to ask if there’s somewhere I can lie down while waiting. This was why I got a taxi last time, but with me doing even worse than last Wednesday I need someone to carry me down and up the stairs.

My back went into spasm for a while earlier, and though the muscles have since relaxed, it’s still exceptionally painful. I wish I could get used to it, but nope.

Sleep is all over the place. Will be awake a few hours, then have to sleep again for a few more. We cancelled both carers today as they’re both ones we don’t like. That situation is just getting worse, not better.

Johan did by some Ben and Jerry’s ice cream though, and made up some jelly, so tomorrow I can have jelly and ice cream. He’s also getting his new phone tomorrow. It’s the Galaxy Nexus, which runs Android Ice Cream Sandwich. I will be having a play, though I’m not getting a new phone until I start going out again, which will be when I improve.

I’m worried that because things keep cropping up to interfere with my rest (like appointments and carers that make me more ill) that this payback may result in a full blown relapse. I’m already very ill, and I’m not sure either of us would cope if I get worse. I’ll just have to hope for the best and rest when I can.

Danni

The Good, the Bad, and the Beautiful

Danni, M.E., NaBloPoMo, Physical Disability, Real Life, World of Warcraft

Mixed day today. Went on my computer after waking up, spent too long on there (silly Danni) but painkillers helped with the pain and was in a good mood this morning. Johan also awake early (I woke at 4.30am, his alarm went at 6.30am) as he was going to Colin’s wedding today. After spending 20 minutes persuading him to give me cuddles instead of dozing on the sofa, he gave in and we both had an enjoyable half an hour on my bed. Then he got me dressed (Diablo 3 t-shirt for the win!) and went and sorted himself out.

We hadn’t arranged anyone to look after me as I had been hoping to attend the wedding, and when it became clear I was too ill it was a bit late to ask anyone, and we also figured that as the carers would be coming and he was close enough if there was an emergency, we’d be able to cope. He left for the wedding at about 10am, when the carer was due to arrive.

She didn’t turn up. I sent Johan a text message at 10.55am (wedding was due to start at 11am) to tell him, so he could contact the agency, which he did at 11.30am (after the ceremony was finished). She eventually turned up at 11.50am, but didn’t come in, only knocked (we leave the door unlocked for the carers so they can come straight in) forcing me to crawl to the front door, and causing me massive amounts of pain. She helped me back into bed (after fetching my wheelchair from the living room) then kept asking me lots of questions, that I was in too much pain to answer. In the end I had to ask her to leave, as I was scared (I was close to melting down at this point). I asked Johan to come home, and he did, missing the wedding meal. He phoned the agency and told them we’re not happy, listing all the reasons.

Soon after he arrived back home, the post arrived, including my corset. He helped me get it on, and I was able to sit up straight for the first time in a long time 😀 It’s also beautiful, so I’m really happy with it. I’ll need to figure out lacing it, and what to wear it with, but I already love it and I’ve only worn it for 20 minutes. I may use it to be able to sit up to get to the appointment next week (which is on Wednesday, as the letter arrived today). I’m still worried about it, but the corset will at least prevent me from flopping (and it’s comfortable to lie in, as well).

I’m now planning on sleeping, but will have to ask Johan if he wants to go to the wedding party thing tonight. I’m still in massive amounts of pain, and I’m hoping for the least amount of payback from today (I’m still suffering the payback from last Wednesday- mostly more pain than normal and less stamina for stuff, and needing to rest more).

Danni

Sleepy Danni

Danni, Gaming, M.E., NaBloPoMo, Physical Disability, Real Life

Still feeling really ill and rubbish after the hospital appointment. Pain levels have been up so taking more tramadol than normal. I’m trying to stay awake until after the carer has come (6pm as it’s meant to be a bath call, though I’m not well enough so will ask for a wash in bed instead) before going to sleep.

Hospital phoned this morning and want me to go back next week. I want to go, but am worried. Will need to plan it very carefully, to make sure I don’t get as ill. The main thing is being allowed to lie down- if they can help with that, I’ll be okay. If not, then I can’t go as I can’t risk a repeat of Wednesday. We’ll see.

Spent most of the day trying to catch up with blogs. Getting there, just a few more days worth to go. I have my laptop on my overbed table as it’s easier to read on here. It also means I can play the Sims Social a bit.

It’s Children in Need tonight, but not sure I’ll manage to see much of it. Johan is going to the MetroCentre and Asda later to buy some cordless phones (as he missed a call twice because he was in a heroic in WoW) and some trousers as he’s got a wedding to go to tomorrow (Colin’s). I’m sad that I can’t go to the wedding, but will celebrate from home. Maybe Johan can buy me a small cake? We’ll see. I’m getting hungry now so going to go demand some food.