Week 15 Update

No photo again as forgot to take one.

Another mostly sleepy week. Digestive system was playing up a bit, meaning I needed more meds and had to wake Johan up and call him home more than normal I really make him earn his £64.68 a week.

When more awake, I did quite a bit of reading, books on my kindle, Reddit and TV Tropes. I also ended up reading a lot about Long Live the Queen, a game I played a few years ago. As Sammie is now old enough to play it, I bought it for her. She said she enjoyed it so I’m happy.

The book I read was Burn the Ashes by Heather Shahan, which was recommended to me on Twitter after I asked for suggestions of dystopian young adult fiction with diverse characters and not too much romance. I really enjoyed it, and it’s my favourite book of the year so far. My only problem with it is the sequel isn’t out yet.

Had a migraine on Friday and Saturday but managed to sleep through the worst of it which I’m grateful for. On Sunday I tried to watch the Commonwealth games but the Virgin tivo box was in need of an update as it hadn’t been on in months. Got it working during the men’s marathon just as Callum Hawkins collapsed. It was really sad to see him like that, and frustrating that it took so long for him to get help. I’m glad he got better quickly.

  • Overall mood – Good
  • Average daily sleep – 7 hours 13 minutes (of 9 hours 13 minutes)
  • Longest sleep – 12 hours 28 minutes from Saturday morning to evening (of 17 hours 40 minutes)
  • Clothes changed – 0
  • Wipe wash – 0
  • Water wash – 0
  • Hair wash – 0
  • Books read – Burn the Ashes. Started Shatter Me.
  • TV watched – Men’s marathon at the Commonwealth games
  • YouTube videos watched – Tom Scott, Vi Hart and How to Adult
  • Streams watched – 0
  • Music listened to – 0
  • Blog posts written – 0
  • Penguins cuddled – Indeed 🐧🐧🐧
  • Johan hand holds – Yes!
  • Johan hugs – nope
  • Time on Twitter – 5 hours 7 minutes (average 43 minutes a day)
  • Time on Reddit – 35 hours 17 minutes (average 5 hours 2 minutes a day)
  • Time on Facebook – 1 hour 7 minutes (average 9 minutes a day)
  • Other –
    • Migraines are ebil.
    • Johan went running with his Running Ninja friends. This is good.

Game stuff

  • Games played – 6
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • DragonVale
    • Neko Atsume
    • Godville
    • Rainbow Clouds
  • AC: Pocket Camp Level – 87
  • Godville Heroine Level – 51 (96% done)
  • Godville wood for ark – 16.9%
  • Godville savings – 701 thousand
  • Cross stitch completed – 1
  • Most played game – Animal Crossing: Pocket Camp (8 hours 34 minutes, average 1 hour 13 minutes a day)
  • Other –
    • Rainbow Clouds is too hard for me.
    • Glad the events are calming down a bit in Animal Crossing.

Week 14 Update

Fell behind with these blog posts. Hoping to catch up now, but my memory isn’t great so relying on my diary more. No photo as I forgot to take one.

Had a good, though very sleepy week. Managed a hug with Johan which was awesome, and watched some stuff on Netflix with him. Also managed to finish a book which makes me happy. Tried a face mask – it was rather messy, but I liked it so might try again at some point.

Of the Netflix shows I watched, I really liked Nailed It and Ultimate Beastmaster. The very first episode of The Great British Bake Off was really weird. Also watched an episode of Black Adder which I’d not seen in years.

  • Overall mood – Good, with an Awesome on Saturday.
  • Average daily sleep – 8 hours 22 minutes (of 11 hours 41 minutes)
  • Longest sleep – 13 hours 27 minutes from Friday morning to Saturday morning (of 18 hours 15 minutes)
  • Clothes changed – 1 (Trans and Tired)
  • Wipe wash – 1
  • Water wash – 0
  • Hair wash – 1 (shampoo cap)
  • Books read – The Wall by Jen Minkman
  • TV watched – Nailed It, Ultimate Beastmaster, Great British Bake Off, Black Adder on Netflix
  • YouTube videos watched – Tom Scott and Vi Hart
  • Streams watched – Penguin Cam
  • Music listened to – 0
  • Blog posts written – 1
  • Penguins cuddled – Lots 🐧🐧🐧
  • Johan hand holds – Yup
  • Johan hugs – Yes!
  • Time on Twitter – 9 hours 3 minutes (average 1 hour 17 minutes a day)
  • Time on Reddit – 12 hours 17 minutes (average 1 hours 45 minutes a day)
  • Time on Facebook – none
  • Other –
    • Broke my tablet. Took hours to fix it.
    • Mostly slept or was sleepy.
    • Saturday was awesome.

Game stuff

  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • DragonVale
    • Neko Atsume
    • Godville
  • AC: Pocket Camp Level – 86
  • Godville Heroine Level – 51 (93% done)
  • Godville wood for ark – 16.1%
  • Godville savings – 668 thousand
  • Cross stitch completed – 0
  • Most played game – Animal Crossing: Pocket Camp (7 hours 34 minutes, average 1 hour 4 minutes a day)
  • Other –
    • Finished the Animal Crossing event with a day spare.
    • Worked on an Easter cross stitch but didn’t complete it.

Week 13 Update

Danni is in bed, and has clean, tidy short hair. They are smiling, and wearing a purple t-shirt saying

Overall had a very good week. Lots of exciting things happened and I wasn’t too bad physically for me. I’m happy 🙂

I didn’t manage to get out of bed, but on Tuesday I had my first proper hair wash of the year! I’m not sure exactly how long it had been, but definitely a few months. I want it to be shaved off as soon as I’m able to find someone to do it (or get to the barbers).

On Tuesday evening I went on the Surface and managed to do a food shop. Took me hours and I missed some items, but it was needed as we were running out of everything. Johan not being able to do food shops is an issue, and I’m not sure how to fix it. That’s also when I changed the blog theme and sorted out some stuff that can’t be done on my tablet.

Wednesday I went to sleep in the early afternoon, and I woke up early on Thursday from tramadol withdrawal as I’d not had any for over 16 hours (Wednesday morning before Johan left for his day service). That wasn’t fun but luckily it calmed down after a couple of doses more on time, and slept more. The big event for Thursday was seeing Vicky! I hadn’t seen her in a long time and it was good to catch up. We ended up having Indian food for tea and it was nommy.

Friday I mostly slept. Woke up in time for the evening carers and had fish and chips as it was Good Friday. I wanted hot cross buns but despite several reminders, Johan failed to get me any (and I’d forgotten to put them in the food shop). The fish and chips were good, and the penguins were very happy with my food choice 😛

Easter Sunday was another sleepy, peaceful day, though I had been on the Surface during the early hours working on spreadsheets (one for Animal Crossing, one for my carers). I also reset my level and stuff in Habitica as wanting to start again in my own party. Johan gave me a Thorntons fudge easter egg which I really like, and I had got him a Ferrero Rocher egg (which since I bought it in the shop he put away, I had to tell him not to look at it :P). I also looked up April Fools stuff online before sleeping through. I miss going to church but I don’t think God minds.

There were a couple of bad things during the week (other than the tramadol withdrawal). We got several letters telling us how much bills were going to go up by, including the care agency putting up the hourly rate by about £1.50 an hour (I get 17 1/2 hours a week), the rent going up by about £5 a week, and our care costs to social services going up from about £10 a week to over £40 a week each. The first two we could manage (even without a direct payment increase – we’ve not been told if that’s going up at all) but the last one is just too much. We’ll be keeping my care because we both need it, but we’re unsure about Johan and his day service. He’s going to try and sort it out this week and see what we can do.

The other bad thing is I had a new care worker who despite being told I can’t deal with perfume or strong scents, came in with so much on I could smell her before she even came into the flat. She came a couple of steps into my bedroom before I told her not to, and my body went mad, with a headache, breathing difficulties, and an itchy rash. That’s despite putting my face mask on soon after having my teeth brushed by the other, non-stinky care worker. Johan also had to hide under his quilt as he’s asthmatic. I’ve not had a reaction that bad since I started taking cetirizine regularly but it was horrible. I’ve asked one of the other care workers to tell the office I can’t have her, and Johan is going to try and contact them himself if he can. She’d been warned by at least three other care workers before she came so I don’t understand why she put so much on.

I’m still on a high from seeing Vicky and having my hair washed properly. I’m hoping that if we can avoid care workers who make me more ill that I’ll be able to do more soon 🙂

  • Overall mood – Good, with some Awesome.
  • Average daily sleep – 7 hours 58 minutes (of 10 hours 11 minutes)
  • Longest sleep – 12 hours 17 minutes from Wednesday afternoon to Thursday morning (of 18 hours 10 minutes)
  • Clothes changed – 2 (Not All Disabilities are Visible and The Future is Accessible)
  • Wipe wash – 1
  • Water wash – 0
  • Hair wash – 1, with actual water and shampoo and everything!!!
  • Books read – 0
  • TV watched – 0
  • YouTube videos watched – Vi Hart
  • Streams watched – 0
  • Music listened to – 0
  • Blog posts written – 1
  • Penguins cuddled – Yup 🐧🐧🐧
  • Johan hand holds – Several a day 🙂
  • Johan hugs – not yet
  • Time on Twitter – 8 hours 14 minutes (average 1 hour 10 minutes a day)
  • Time on Reddit – 20 hours 48 minutes (average 2 hours 58 minutes a day)
  • Time on Facebook – 1 hours 56 minutes (average 16 minutes a day)
  • Other –
    • Lots of marmalade on toast for lunch, as body has decided it doesn’t like cheese for some reason
    • Still working on my blog theme. I need to work on accessibility as well, and update pages as they’re way out of date now 😛
    • I’m so happy I got to see Vicky! And that I had my hair washed!
    • Carer spreadsheet is very useful. I just need to update it more often so I can add in any changes to the rota (including if I was given notice)
    • Been having issues with my tablet. If it reboots for any reason, it loads the boot screen, then reboots into recovery. I need to delete the cache to fix it.

Game stuff

  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • DragonVale
    • Neko Atsume
    • Godville
  • AC: Pocket Camp Level – 85
  • Godville Heroine Level – 51 (51% done)
  • Godville wood for ark – 15.0%
  • Godville savings – 624 thousand
  • Cross stitch completed – 1
  • Most played game – Animal Crossing: Pocket Camp ( hours minutes, average hours minutes a day)
  • Other –
    • On top of the Mario event, there’s another bug catching event in Animal Crossing. This time we’re catching Scramblers, which are Easter eggs with legs.
    • Had to update my Animal Crossing spreadsheet because about 20 of my in game friends are sharing eggs with legs. I’m trying to return what they give me but it’s hard.
    • DragonVale still has their Easter event on. I’ve completed everything that isn’t the Rift. When it finishes I might be taking another break (until the next event).
    • Am working on an Easter cross stitch right now, but finding it slower as my hands are being clumsy.
    • Still haven’t got the memento from Hermeowne. It’s the last one I need!

Week 12 Review

Danni is lying in bed with their head on a penguin cushion. The light behind is causing lens flare.

The photo is terrible but was what I could manage. I really need to ask Johan to take more photos of me 😛

I’m still not quite happy with the blog theme but I’ll get there eventually. At least this one doesn’t have a massive picture on the top (header images aren’t really my thing, as I’m terrible at them).

This week was a bit better than last week. I think I might be coming out of this blehness, though I still don’t know what caused it. I spent a lot of time trying to sleep or looking at cute pictures/reading rubbish on Reddit.

The best parts of the week were having my top changed and a wipe wash with Johan on Wednesday, and having my hair washed with a shampoo cap on Saturday. It was nice to feel cleaner. I also remembered I liked marmalade so had that on toast a few times for lunch, and our favourite pasta restaurant was delivering here again so we got nommy fuds from there on Thursday evening (I love the tagliatelle carbonara and the white chocolate cheesecake). I was asleep for quite a few of the care calls, but by the end of the week I could tolerate the carers being in my room again. Other than a few changes I wasn’t told about (which made me very anxious and panicky) my mood was good.

Johan decided to run to Crawcrook for pizza on Tuesday. He says the pizza, chips and sauce are all just as good as he remembered. I’m a little bit jealous but Crawcrook is a tad far for me to go at the moment. Getting pizza home would also be interesting as it takes nearly an hour on the bus, taxis are expensive and Johan can’t exactly run that far while carrying a pizza.

While Johan was out running I attempted playing Vostok Inc. and Stardew Valley on the Nintendo Switch. Vostok is really fun, but it’s a twin stick shooter and I couldn’t get my hands to do different things so I’d be shooting in the direction I was running instead of at the enemies. I died a few times before giving up. I’ll get Johan to play it for me and try again on PC at some point. Stardew Valley I again struggled with the controls. I think for now the Switch will be mostly Johan’s, and when my hands/concentration gets better I’ll have a go. Luckily we can plug it into the telly so I can watch him playing it 🙂

Saturday I was feeling up to watching things again so I resubscribed to Netflix, as they were offering me another free trial. Watched Nailed It with Johan and it was hilarious. Sal should just never touch a microwave. We had McDonalds as we’d not done a shop since the middle of February so didn’t have much in. It was an awesome day and I hope we can watch more together.

Sunday I had a bit of payback from watching Netflix so didn’t do much. Still felt nowhere near as bad as I did the week before which I’m very grateful for. Hopefully whatever caused that is now gone and I can concentrate on getting up and doing things soon.

  • Overall mood – Good, as I wasn’t as ill as last week
  • Average daily sleep – 7 hours 20 minutes (of 10 hours 18 minutes)
  • Longest sleep – 7 hours 38 minutes from Sunday evening to Monday morning (of 11 hours 20 minutes)
  • Clothes changed – 1 (nerdy penguin and penguin fleece)
  • Wipe wash – 1
  • Water wash – 0
  • Hair wash – 1 (shower cap)
  • Books read – The Wall (53%)
  • TV watched – Nailed It (Netflix)
  • YouTube videos watched – 0
  • Streams watched – Penguin Cam
  • Music listened to – 0
  • Blog posts written – 2 (being late with a weekly review helped with that)
  • Penguins cuddled – Yes 🐧🐧🐧
  • Johan hand holds – Indeed
  • Johan hugs – Not yet. Soon?
  • Time on Twitter – 9 hours 44 minutes (average 1 hour 23 minutes a day)
  • Time on Reddit – 35 hours 14 minutes (average 5 hours 3 minutes a day)
  • Time on Facebook – 58 minutes (average 8 minutes a day)
  • Other –
    • Digestive system was bad but not quite as much as the week before.
    • I wish I didn’t find unexpected change so hard. It’s worse when I can’t use my usual coping mechanisms as too ill to move.
    • Johan made me laugh so hard I couldn’t breathe. Unfortunately I’ve forgotten what it was about.
    • Twitter friends are amazing.
    • So is Sammie. And Johan.
    • As are penguins.

Game stuff

  • Games played – 5
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • DragonVale
    • Neko Atsume
    • Godville
  • AC: Pocket Camp Level – 84
  • Godville Heroine Level – 51 (25% done)
  • Godville wood for ark – 13.7%
  • Godville savings – 589 thousand
  • Cross stitch completed – 1
  • Most played game – Animal Crossing: Pocket Camp (7 hours 11 minutes, average 1 hour 2 minutes a day)
  • Other –
    • Didn’t play games at all Tuesday or Wednesday as wasn’t feeling up to it.
    • Got a Gold Trophy in the Animal Crossing fishing tournament.
    • Second part of the Mario Event started, and I got every item available other than the leaf ticket one.
    • Four more animals were added, and I’ve invited them all to my camp.
    • Elite rift dragons in Dragonvale are annoying. So many fails.
    • I keep missing Hermeowne in Neko Atsume. I only need her memento to have a complete catbook.

Week 11 Review

Danni is lying in bed, wearing a blue penguin scarf over their hair. They are smiling.

Not the best week, but it could have been worse. Photo was taken today as I forgot last week.

I’m not sure why my body is complaining so much, but it’s getting annoying. My digestive system is misbehaving more than normal, meaning I’m needing to take my antiemetic more frequently. I really hate how dopey, tired and out of it I am when having it, but it’s still preferable to being sick. On Wednesday I had a migraine which really didn’t help, and on Sunday a strong non-migraine headache that’s worse than the normal headache I have all the time. Medication is helping but I want to be back to Danni normal.

I felt so rotten at the beginning of the week I didn’t even play my easiest games. I mostly looked at cute pictures on Reddit and wished my body would behave enough to let me sleep (it did eventually). Johan was really understanding and helped me as much as he could. I’m grateful I was able to sleep most of the way through the migraine on Wednesday afternoon as it was really hard to deal with on top of everything else. Wednesday Johan stayed home until I was able to sleep, and Thursday he stayed until he knew my antiemetic was working. I’m really grateful for that.

I did have a good day on Saturday. I couldn’t tolerate touch or movement, but was well enough to watch YouTube and Netflix with Johan. We wanted to get pasta from our favourite Italian restaurant but they’ve stopped delivering here, so ended up getting a McDonalds instead. It was a good day overall. Then Sunday came and gave me a different type of headache for some reason. At least I was able to sleep more than last week.

I’m hoping this week will be better, though my digestive system still isn’t behaving (not that it does normally but it’s usually not this bad). I’m desperately in need of a body and hair wash but even pad changes have been horrible to deal with. Hopefully soon.

  • Overall mood – Good (a few mehs in there but even though my body wasn’t doing good my mood wasn’t too bad)
  • Average daily sleep – 8 hours 58 minutes (of 10 hours 25 minutes)
  • Longest sleep – 9 hours 30 minutes from Tuesday evening to Wednesday morning (of 12 hours 9 minutes – slept again less than 7 hours later)
  • Clothes changed – 0
  • Wipe wash – 0
  • Water wash – 0
  • Hair wash – 0
  • Books read – 0
  • TV watched – Hell’s Kitchen on Netflix
  • YouTube videos watched – Flopotron, Tom Scott, Vlogbrothers, Vi Hart, How to Adult
  • Streams watched – 0
  • Music listened to – World of Warcraft Cataclysm soundtrack
  • Blog posts written – 0 (too ill)
  • Penguins cuddled – Lots 🐧🐧🐧
  • Johan hand holds – yes
  • Johan hugs – still too ill
  • Time on Twitter – 5 hours 43 minutes (average 49 minutes a day)
  • Time on Reddit – 33 hours 43 minutes (average 4 hours 49 minutes a day)
  • Time on Facebook – 11 minutes (average 1 minute a day)
  • Other –
    • Reddit is awesome when I’m not doing good. Lots of cute pictures.
    • As cheese really isn’t great when tummy being silly, had lots of buttered toast for lunch.
    • I am very smelly but touch and movement are really painful and overwhelming. I’m hoping to get sorted soon.
    • Bought a Samsung T5 500GB external SSD. It’s so cute and small, and really fast. I’m using it for tablet backups at the moment.
    • Swapped from stock rom to resurrection remix on my tablet. I like the extra customisation options, though trying to format /system in TeamWin kills it and needs to be fixed on a computer. Johan is getting good at that.
    • Sammie continues to be awesome.

Game stuff

  • Games played – 6
    • Animal Crossing: Pocket Camp
    • Cross Stitch
    • DragonVale
    • Neko Atsume
    • Godville
    • Color Puzzle
  • AC: Pocket Camp Level – 82
  • Godville Heroine Level – 50 (84% done)
  • Godville wood for ark – 12.2%
  • Godville savings – 543 thousand
  • Cross stitch completed – 0
  • Most played game – Animal Crossing: Pocket Camp (11 hours 21 minutes, average 1 hours 37 minutes a day)
  • Other –
    • Didn’t play any games Monday – Wednesday as not feeling well enough, even for easy ones like Godville.
    • Animal Crossing has a Mario event and a fishing tournament at the moment. I’ve got all items from them both so far.
    • Played less than half an hour each of every game other than Animal Crossing.
    • Color Puzzle is a I Love Hue clone. It’s not as good but okay while I’m waiting for new levels.