Body, Behave

Been rather ill today, with kidney pain and urine retention. We initially thought kidney infection but then remembered I’d just restarted lansoprazole, and it made more sense, as I’ve had the symptoms before and they disappeared when I forgot to take the lansoprazole for a while.

Johan spoke to my GP and as the retention was resolving itself by then I’m stopping the lansoprazole and if things don’t improve then we’re to contact the emergency care team (I’ve seen them before for something else and they’re really good). Also got my blood test results saying my vitamin D levels are low again and my thyroid levels are on the lower end of normal. For the first I’m getting heavy duty vitamin D tablets again from the doctor, and she wants me to take a multivitamin (which funnily enough I’d bought in today’s food shop). For the second we’re just going to monitor it every 6 months, as it’s done this before and then gone back to proper normal by itself (which is partially why it took so long for me to get my M.E diagnosis).

Everything else was normal, including my kidney function. Johan mentioned the eating issues and she couldn’t deal with those on a Friday evening over the phone, but if they’re no better next week we’ll do something about it then. That is fine by me. I’ve not eaten at all today as been too ill which has given my tummy a break from the evil cramps.

I fainted while using the commode, and since then have been really tired and have slept lots. Johan hurt my shoulder getting me back on the bed but apparently my body was trying to land on the floor and he didn’t want that so he hauled me on the bed. Is kinda scary being sitting up then lying down and not remembering how I got there. Have to use evil bedpan again to stop it happening, but I feel too rubbish to disagree. Sleep time again now. Maybe proper blog post tomorrow if I can be more awake. I will be okay.

Sexual Identity

I’ve known since I was 15 (when I first started experiencing sexual feelings) that I am bisexual. I’m attracted to females just as much as males. (I’m possibly pansexual, but as I’ve yet to knowingly meet someone who identifies as something other than male or female and be attracted to them, I can’t be certain yet.) This seemed perfectly normal to me, even though I was aware that hetrosexuality was the most prevelant. All my partners have been male, but that is mostly due to not knowing how to find a female partner (all the females I’ve been attracted to have been hetrosexual, taken or both) and I know I’m happy being monogamous so when I’ve been with a partner I’ve not been looking. Now of course I’m married to Johan.

I’m aware that most people will think I’m straight, as my bisexuality is not something I go talking about much and I have a male partner (Johan is straight). It’s not that I’m ashamed of it, it’s just not something that tends to come up in conversation. I’m also aware that I tend to think people are bisexual by default, unless told otherwise. I think that’s because I use myself as a starting point and think most people are like me, even though that’s not the case.

I don’t understand homophobia. Disliking people (or worse) because of who they’re attracted to just doesn’t make any sense to me. I know that I was probably born bi (I didn’t experience any sexual attraction before I was 15 but I do know I slightly preferred looking at images of women than men before then, which is still the case today) and hating people for who they are just seems wrong to me. This is especially the case as I’m a Christian, where the most important message I know of is to love your neighbour, and there’s no exception there for people different to you. I also dislike that many Christian churches are against gay rights (this was a major reason why I did not convert to Catholicism).

I’ve not been active in the LGBT community, though I am hoping to get more involved when I’m doing better. That I’ve only been able to marry Johan because he’s male and I’m female is wrong (and although civil partnerships are better than nothing, it’s not the same as marriage and can cause major issues if a transgender person changes their sex). That people are persecuted and even killed for something they can’t help is very wrong.

I’ve probably avoided any bullying or similar over my sexuality only because it’s not well known, especially when I was younger. I’ve noticed that insults based on sexuality are less prevalent here than in America (especially noticeable when playing World of Warcraft- you can’t spend more than a couple of minutes in trade chat on the US realms without some insults based on sexuality being thrown around, whereas on the EU realms it’s very rare). It upsets me that people use sexuality to insult people and to bully people.

I feel marriage should be available to any consenting adults. I don’t even think it should necessarily be restricted to two adults. If all parties are happy and give consent, then they should be able to marry. I think it will take a lot longer to open marriage up to more than two people, and possibly there are less people who are wanting it (though I could be wrong on that) but I’m hoping that marriage will eventually be available to all who want it. I also hope that the institutional homophobia that occurs in religions and other places will be seen as unacceptable and given a lot less power in the future.

Being bisexual doesn’t make me any less of a person. It doesn’t make me any less of a Christian. That some people believe that makes me sad.

(I’ve not been doing very well today as I’m still having tummy issues and my brain fog is bad, so if this post makes no sense, is overly repetitive, or similar that is why. I’m happy to receive any corrections that are needed.)

Ouchy Tummy

Tummy is being extra ouchy at the moment. Yesterday I was stuck in bed but today I went into the living room and played WoW, and moaned while the realms were down for maintenance (and got grouchy and sad when it took longer than it was meant to, as I was in pain and wanted to play to distract myself).

Matilda (my desktop computer) had been freezing up and things but it seems to be fixed now. We think the SATA controller couldn’t handle 4 drives when one is a super fast SSD, as disconnecting one of the drives has helped. It did prompt me to sort out my WoW addons, which I’d been meaning to do for a while. Will need to go into an instance or scenario to see if it still plays random Mario music on boss fights though (I thought I’d removed the addon that did that ages ago but it still played afterwards).

Sleepy now as woke up late last night but I wanted to try and push my sleeping time back in an attempt to sort out my sleeping pattern, but it’s dark so can sleep now. Johan is going out to the Autism North East social tonight and he worries less if I’m sleeping, so now to try it. Penguins are helping a bit with my tummy pain as Johan heated them up for me 🙂

Rest in Peace, Emily Collingridge

In Memory of Emily CollingridgeToday was the funeral of Emily Collingridge, a young woman who died from M.E earlier this year. I did not know her personally. but her book (written while she was severely ill) has made a massive difference to my life. My thoughts and prayers are with her family and friends.

About Emily: http://www.severeme.info/about-emily.html

Emily’s book: Severe ME/CFS: A Guide to Living

A Guardian article about Emily: http://www.guardian.co.uk/commentisfree/2012/mar/30/me-emily-collingridge-chronic-fatigue-syndrome

ME Association’s page about Emily’s Funeral, including her mother Jane’s memories of Emily: http://www.meassociation.org.uk/?p=13356

Politics and Bad News

Strong emotions (both positive and negative) are exhausting for me. By exhausting, I mean I get very weak, I get worse brain fog, and I need to rest immediately. Too much means I get M.E payback. As part of being autistic, I experience most emotions very strongly, and it can be harder for me to process them.

When I realised that getting emotional was affecting my health, I decided to do something about it. Negative emotions affect me more than positive, especially sadness, anger and anxiety. I used to follow the news constantly- watching 24 hour news broadcasts, being on news websites, following news on Twitter and Facebook. Since bad news makes me feel bad emotions, I started limiting how much I saw. I don’t ignore it completely, but I try to only read headlines and not get as involved as I used to. This was hard as I care about what I read, but it has helped.

Due to our current government, most political discussions are also full of bad news (to be fair, this was also the case with the previous government). I used to be very interested in politics, and was quite active for a while. Political discussions are tiring even if they aren’t emotional, as they require remembering facts, being able to explain opinions clearly, and being able to understand what the other person/people are saying and remember it long enough to reply. All things that are difficult to impossible for me now. So I’m mostly staying out of politics and political things. This is difficult as I still have strong feelings, especially regarding disability rights, and welfare benefits, but if I get too involved it makes me ill.

Many of my friends, especially on Twitter, are very active politically. A lot of them are also disabled, and quite a lot are also ill with fatigue problems. I admire them so much for what they’re able to do, and so wish I could help them out. I can do the very basics- sign petitions, retweet stuff, very occasionally blog about things, but anything more and my health has to come first. It makes me feel guilty but I’m trying to get over that.

None of this is because I don’t care. It’s because I care too much, that it makes me feel such strong emotions, that I have to step back and let other people deal with things. When I improve I really want to help out, especially for disability rights and on benefit issues (as I’m reliant on benefits myself, and exceptionally grateful for them) but until then I have to just vaguely watch and try not to feel too much. It’s hard trying to not care when hearing about natural disasters or someone who can’t afford food because their benefits have been stopped, but if I care too much I get ill, and that won’t help anyone either.

What I do need to learn to do is be more clear that I can’t deal with bad news and politics and stuff, so when people direct it at me they understand why I don’t immediately do what they ask. I’m pretty sure the Spoonies especially understand that if I don’t respond to requests to retweet this, read that, it’s not because I don’t care, but some of those on Facebook especially can be posting all sorts of causes on my wall, some of which can be quite triggering to me. I’ve had to block the Causes app on Facebook which was hard, as it’s actually pretty good.

I’d never ask anyone to change their own tweets or Facebook posts for me. That would be silly. What I do need to ask is that there’s less sent directly to me (mentions or posting on my wall). If I ignore something or remove something, it’s not because I don’t care, but because I’m protecting my own health. When I’m feeling up to it, I might get involved in discussions that interest me, but I need to be in control of them and not be dragged into them (which has happened a few times, including in World of Warcraft which should be an escape from it all really).

There is an exception- if you’re a friend and want to rant at me, feel free 🙂 I can tell friends when I’m not up to conversations, and I like using energy to support my friends. I’ve had so much support from my friends recently that I’d love to be even half as supportive back. It makes such a difference to have someone understand what you’re going through.