Category: Computers

Danni

Relapse

Computers, Danni, M.E., Physical Disability, Real Life

I’m currently experiencing a bit of a relapse, though I am doing a bit better than I was. Last week my sister came around to help out and tidy up a bit, and we had a bit of a chat, which meant I overdid it a bit. I also caught a cold, and my body didn’t react too well. I was completely intolerant to any light or noise, any touch was completely unbearable (it felt like my duvet and pyjamas were trying to murder me), I was in massive amounts of pain that my painkillers were not touching (normally tramadol takes the edge off it) and I didn’t have the energy to move, so I was relying on Johan to roll me over, which also caused more pain. I also had to use a bed pan as I was too ill to manage even the commode- even being propped up in bed made me feel more dizzy, sick and ill.

I am doing a bit better now. I can manage low levels of light while wearing my sunglasses (I tried having the main light on but it was too much). I can roll over in bed by myself, and use the touchscreen on my tablet which is how I’m writing this. I can tolerate some noise. I still can’t cope with being propped up for more than a few seconds so am still using the bed pan. I can’t sleep properly because I keep waking up in massive amounts of pain. I can’t chew so Johan is feeding me soft foods like jelly and yoghurt. I can talk now, though only can whisper. I spend most if my time resting as everything, even tiny things, leaves me completely exhausted.

I am grateful though. I’m grateful that I’ve improved enough to roll over by myself, even if it is painful and exhausting. I’m grateful that I have Johan to look after me. I’m grateful that I have my tablet computer, so I can communicate with the outside world through twitter. I’m grateful to my GP, who asks how I’m doing during Johan’s appointment and is going to phone him tomorrow to talk about me. He also prescribed me calcichew, which I can suck and taste like sweets.

I hope this is just a short relapse. I hope that by Christmas I will be able to sit up in bed, can feed myself solid foods and no longer have to use the horrible bed pan. If I can’t, I’ll ask Johan if I can postpone Christmas dinner until I can eat it.

This is the worst I’ve ever been. It’s scared both me and Johan. I am hopeful though. In good news I’ve been put on urgent priority for an adapted property. The direct payments are being sorted out and Johan is going to get help to manage them. Gateshead Carers Association have been amazing- helping Johan with contacting everyone and being there for him (and me). Things are being sorted. Now I just need my health to improve.

It’s taken me a few days to write this- started it on Monday and it’s now Thursday. Johan is happily playing World of Warcraft and I’m going to get some rest then go on Twitter.

Danni

Patch 4.3

Computers, Danni, Gaming, NaBloPoMo, Penguins!, Project 365, World of Warcraft

Today has been a World of Warcraft day. I have spent far too much time sitting at my computer playing that game. The reason for this is today patch 4.3 – Hour of Twilight was released. To people who now have no clue what I’m talking about, this means there’s lots of new stuff to do in the game that there wasn’t yesterday.

The first thing I did was get Danni sorted with some nice gear. I decided that until I get around to farming a proper pretty set of armour, I was going to wear Black Mageweave (I am a tailor so made it myself), which is less pretty and more sexy. Up to now I’ve not seen anyone else wearing it, so that is good.

I then started dumping most of my old gear from my bank into void storage. And got angry because some of the items weren’t allowed in, for vague reasons. Like my Ashen Verdict ring that I kept from Ice Crown Citadel. I managed to dump quite a bit in there though, and that meant I could dump stuff from my bags into my bank, so now I can actually use my bags again. This is good.

After a long rest, I went back on to do the new 5 man dungeons. We got a mostly guild group together, and had a pug mage from a different realm who was awesome and gave me cookies. The new dungeons were a bit challenging but not too hard, and were tons of fun. I did sit up for too long so I could complete them all (we had a few wipes while learning what to do and with me occasionally failing) but it was worth it. The individual dungeons are short enough that if I’m having a good day I should be able to run them, so that’s awesome.

There’s also a new raid, but I’m not geared enough or well enough to try that yet. Maybe when I improve a bit.

Johan went out today to the MetroCentre. Apparently it was packed. This may have had something to do with a strike that was going on, that meant most of the schools were closed, among other places. He didn’t really buy anything that I saw, but did use his mobile phone to buy a McDonalds on the way home, paid for by Google. That was cool, though I want a McDonalds and can’t have one because the bus drivers won’t let Johan carry one on for me 🙁

I am now hungry. I have to wait for Johan to complete a dungeon before he can even start cooking. This means I’ll have to stay up late. I’m not particularly happy about this. At least I can watch Penguins in the meantime.

Danni

Christmas Shopping

Computers, Danni, M.E., NaBloPoMo, Physical Disability, Real Life

This will be a short post as I am super tired and about to sleep.

Today I started my Christmas shopping. I got Sammie a Nintendo 3DS in pink as that’s what she wants. I hope she likes it 🙂 I’ve also started looking at what other presents she wants for both Christmas and her birthday (on Boxing Day). I also was told some of the sweet things she has been saying- one of them made me cry.

I also sent an email to an Amazon seller who wanted more information about an order I’d placed, received my new laptop battery which hopefully will make it run a bit better, and wrote a list of things for the hospital on Friday. I was hoping to get a wash and some clean pyjamas, but that didn’t happen. Maybe tomorrow. I also had lots of cuddles, then discovered that cuddles are exhausting and make me feel ill 🙁

Tomorrow Johan is at the doctors in the morning and the carer’s association people are coming in the afternoon. Hopefully it will be okay.

Danni

Yesterday

Computers, Danni, Gaming, M.E., NaBloPoMo, Physical Disability, Real Life

Since I can’t be bothered to type it again, here’s what I posted on a forum about yesterday:

Made it to the hospital yesterday in a taxi, but got really ill during the appointment from sitting up and they sent me to A+E. Limbs jerking themselves around, and ended up halfway down my wheelchair held in by the seatbelt around my chest. Not comfy.

Things calmed down once they let me lie down and rest for a bit, then they sent me home sitting up in an ambulance, which was pure torture. Managed it (only scaring the ambulance man a little bit), and the ambulance men carried me upstairs and to my bed, and I slept a few hours afterwards.

Johan and I have agreed I’m not leaving the flat again until I’m back to the functioning level I was at the beginning of September, where I could sit up for a few hours without getting worse, as that’s what is needed if I want to go anywhere. If I lived in a ground floor flat I’d just get a reclining wheelchair and be done with it, but we don’t and we’ve not heard from the housing for a while.

The dentist doctor (I’m sure she has a proper name) came to see me in A+E and said that as I’m too ill for even the assessment the anaesthetist won’t give me a general anaesthetic, so I won’t be able to have my tooth removed (sedation and local anaesthetics don’t work for me). I’ve been trying to put up with it for a year now, so I guess I’ll just be going on lots of antibiotics and begging my doctor for painkillers that work on toothache, since tramadol doesn’t work.

I’m a little upset because I know that if I’d been allowed to be transported lying down, none of this would have happened. It’s just sitting up my body dislikes, and it has its ways of showing this. Hopefully staying at home and resting for the next few weeks/months will help.

That’s mostly it. Today I’ve watched Catreina play Skyrim,  bought Oblivion on Steam, failed to get it working on my laptop, and slept a lot while Johan went to the MetroCentre (he prefers going out when I’m asleep, so if there’s a fire I’ll burn to death :p). On Saturday it is our friend Colin’s wedding, and I’m not well enough to go :'( I’m sending Johan though, and getting him to take lots of photos so I can see what he’s wearing (and also see his family :p). I never thought Colin would be the type to get married (and to have kids, since his fiancée has some) but he has matured a lot since he was throwing mouse mats at lecturers in college a few years ago. His fiancée is lovely though, so I’m hoping they’re very happy together 🙂

Edit: It really helps to press publish, silly Danni.

Danni

Feeling Weird

Computers, Danni, Gaming, M.E., NaBloPoMo, Physical Disability, Project 365, Real Life, World of Warcraft

Slept from 12.30am – 2.30pmish today. Johan was sitting on the windowsill when I woke up, waiting for his graphics card to arrive. It did so just before 6pm.

I’m doing my own, very vague method of activity management. It basically consists of trying to get up and sit in my computer chair every day, no matter how ill I feel. I’ve managed it every day for a while now, and it’s not making me worse, just means I sleep more. I try and get back off before I start feeling even more bleh, but it means I get to play some World of Warcraft everyday. I made my Worgan Mage Elisaveta into a Gnome called Tiarna. She’s so small and cute, and best of all she doesn’t make any annoying sniffing noises 😀

I feel weird. The nausea has been worse today, so I’ve been taking the antisickness tablets, which haven’t helped much. My brain has been all over the place, and the pain has been bad even with the painkillers. I “lost” a few hours after waking up just because I felt too rotten to move.

I’ve ordered some stuff from Amazon to be delivered tomorrow, and done a grocery shop with Sainsburys to be delivered on Wednesday. Nothing too amazing, though we have three different types of roast-style meats to try (they were 3 for £10). They also do pre-prepared sweet potato and butternut squash, so when they arrive I’m getting Johan to make me my orange soup 😀

Did get dressed today, in my favourite Diablo 3 t-shirt and a denim skirt. Johan plaited my hair. It’s very loose as he’s not got the hang of keeping hold of all the hair while plaiting it, but it’s not too bad and he’s learning 🙂