Author: Danni

The Purple Penguin! 31 year old autistic geek, living in bed with severe ME (myalgic encephalomyelitis). Likes gaming, purple and penguins.
Danni

Day 11 – World of Warcraft

2019, Computers, Danni, Gaming, M.E., NaBloPoMo, Penguins!, Real Life, World of Warcraft

It seems I really needed that sleep. Once I woke up this morning (from a nightmare which wasn’t ideal) I was feeling much more like myself. Still full of cold but otherwise mostly at my normal level of functioning.

Since I was awake and kinda with it for once, I decided to go on my computer while Johan was at his volunteering. First was finishing reinstalling all the programs after the reformat last time I was on, and then I went into World of Warcraft.

In WoW at the moment there’s a 15th anniversary event going on. There’s some fun things included like revisiting old raids and fireworks, but most importantly for me is a 15% buff to reputation until January. To be able to fly in the newer areas you need to get revered (second highest) reputation with several factions, including two newer ones. I’d done all the older ones, but still had those two to do. I was able to get one of them to revered today so I’ve only got the last one now. Unfortunately my Rustbolt Resistance rep is only at friendly even after doing all the dailies I could today, so as I need to get through honoured as well it’s probably going to take a while until I’m able to fly. I did have fun with a jet pack in the Mechagon zone though.

The other advantage of being on my computer is that it’s so much easier to sort things out. I was able to get my emails sorted, buy various items that were in my baskets, and finish moving over from Chrome to Firefox. I was also able to go on video chat with Sammie for a while, which was awesome.

There was a lot of noise from the flat upstairs this morning. Banging, drilling and loud voices mostly, though at one point my lightshade was moving so whatever they were doing was vibrating the ceiling. I’m not sure if it was the council, their contractors or a new tenant moving in. Johan checked outside but the only van out there was a stairlift one, and they weren’t fitting a stairlift. I’m glad I had my noise cancelling headphones or there’s no way I’d have coped, and going on puter wouldn’t have happened.

I also changed my top today. I got a new one last week, so I’m wearing that. It says “Protect Earth – Penguins Live Here” and has a very cute penguin picture on it. I had to tell Johan not to pinch it until I’d worn it as he likes it as well 🙂

Tomorrow I think I’m having my flu jab. No idea when that’ll be, but I’m hoping it’s a nice nurse. I know it’s not going to be the awesome practice nurse that did Johan’s as she couldn’t come on a Tuesday 🙁 I’m a bit nervous but since flu was what triggered my ME I really don’t want to get it again. Having a cold is bad enough.

Danni

Day 10 – Sleep

2019, Danni, NaBloPoMo, Real Life

Yesterday I said I hoped to sleep at least some of the time Johan was out running. I not only managed that, but I ended up sleeping nearly all day, over 19 hours in total.

Johan woke me up when he got in to give me painkillers and to tell me how he did (he ran over a marathon with 27.12 miles in 3:35:23 according to Strava), then I went back to sleep until waking up naturally after 11pm.

I’m hoping to spend at least some of Monday awake. Body is saying I might need more sleep soon though, probably because of this cold. I’ll take it.

Danni

Day 9 – Not the Shoutcaster

2019, Computers, Danni, NaBloPoMo, Real Life

Day9 is someone who is a shoutcaster (commentator) for various video games.

Caffeine is good. Caffeine means that even though I’m still full of cold I could actually do something productive. The only downside is it makes it easier to overdo it. I ended up going on the Surface to sort out my emails (which had built up from being too ill for over a week) and also doing the big May update that was finally approved (it had previously had caused issues with the Surface so was delayed by Microsoft). It mostly went okay, but killed DNS while using my custom hosts file so I needed to go back to the default. I guess I’ll use uBlock Origin instead.

I’m currently trying to transition from Chrome to Firefox. This is much easier on a computer than trying to do it on my tablet or phone, especially because I could easily import all my bookmarks and history. It seems to be running a bit faster which is always a bonus. I’m pretty tied into the Google ecosystem but there are addons for the stuff I really need so it should be fine once I get used to the differences.

Johan is doing a long run tomorrow, aiming for at least a marathon at the Saturn Running Remembrance Run. I hope it’s not quite as cold as it was this morning as many Parkruns had to cancel due to the icy weather (Johan ended up in Jesmond Dene which was on). I’m hoping to spend at least a bit of the time he’s out sleeping. He is a silly sausage 😛

Danni

Day 8 – Cold

2019, Danni, M.E., NaBloPoMo, Physical Disability, Real Life

It’s still technically Friday in Hawaii, so though this post is late it could be worse 😛 I spent most of the time asleep or wishing I was asleep.

The weather has turned really cold here over the last few days, and right now it’s -1°C (30.2°F) outside. I’ve had a rough few days, and Johan reminded me that this happens every time the weather gets like this. It’s not stopping him going out running though.

Not only is the weather cold, but I think I’ve caught another one. Is it possible to have two colds at the same time? I’d not gotten over the last one yet. I can just about deal with the broken temperature monitor, the sneezing and the worsened ME symptoms, but I really struggle with a blocked nose.

What doesn’t help is my nose is generally really dry (as are my eyes and mouth), so when it does get snotty it goes crusty really quickly. This makes clearing it out difficult, especially when my hands aren’t working enough to use the saline nasal spray to make it easier.

My body also decides that instead of breathing through my mouth when my nose gets blocked in my sleep, it’ll instead wake me up telling me I’m suffocating. My sleep has been more fractured than normal because of this. I’ve been a bit of a grumpy pants and I don’t like it.

Sammie is working on a project that she’s really excited about which in turn is making me happy. Johan is working on an app to make it easier for me to communicate with the carers when I’m not doing so good. Eventually it’ll go on a spare tablet we’ve got in the hallway and I’m hoping to be able to tell them things before they come in my room. I currently have to rely on signs on my door and they’re not usually read.

I’m hoping my body lets me sleep again soon. I’ve got things I want to do and no energy to do them. Silly cold.

Danni

Day 7 – I have the best daughter

2019, Danni, NaBloPoMo, Real Life

Feeling a bit better than yesterday, though that’s not hard. Johan made the executive decision to give me all my feel better meds and it helped. We think it’s payback from seeing the optician.

During my occasional awake periods, I’ve been chatting a bit to Sammie. I’m grateful she’s able to talk to me about things, and also that she feels able to talk to Johan when I’m not available (most of our conversations are in a shared chat). I’m really proud of her, and though I wish I could help more (being a teen sucks) she impresses me with how much she cares about things. She’s amazing and I love her.