"I find penguins at present the only comfort in life. One feels everything in the world so sympathetically ridiculous; one can't be angry when one looks at a penguin." – John Ruskin
Been awake since last night so very tired. Morning carer didn’t come into the flat (door was unlocked and she’s meant to have keys anyway) so didn’t have a care call this morning. Johan had just got out of the shower so couldn’t get the door when she knocked on the door. We thought it it must have been for another flat or something.
Managed to soft brick my tablet trying to install a new rom. It was stuck in a boot loop and I couldn’t even get into recovery so had to go on puter for a bit to fix it. Sorted now but I hope not to do that again any time soon. Once I’ve finished configuring my apps again I’m going to take a backup and try not to break recovery so I can use it if I need to. I’m still pretty pleased I was able to fix it without Johan’s help.
I had buttered toast this morning that tasted so good. I think I need to convince Johan he’s good at it so he’ll make me more 🙂 I’ve had too much fruit and veg the last few days so my digestive system has been more painful and bloaty than normal for me. One day I’ll learn they’re bad for Danni’s in anything other than small portions. They stay in my stomach longer than pretty much anything else as well.
Hopefully staying awake until 8pm will fix my sleeping pattern. I hope so as I’ve got stuff I want to do. If not then I at least hope I’ll be awake on Friday.
In the early hours of this morning I made most of a loom band penguin that I just need to stuff and then finish, but this morning I managed to misplace it so I need to find it so I can do so and take photos. I discovered when trying to make the wings that my hands just aren’t coordinated enough to do crochet or knitting, as I kept dropping stuff while trying to loop and having to start again. At least on the loom I only have to worry about one hand at a time 🙂
I managed to be awake for the morning carer. She seemed to think 5 seconds of teeth brushing is enough. I know I don’t often manage 2 minutes but that’s short even for me. She did make me bacon and eggs though which were nice.
Since then I’ve slept most of the day and only woke up at half eleven. Hoping to see my sister Becca on Friday with her fiancé so will be resting up for that. It’s been ages since I saw her so that’ll be nice 🙂
Now I’m hungry so I need to ask Johan to make me some food. I just hope he doesn’t complain too much. One day I’ll fix my sleeping pattern but apparently not today.
I’ve currently got a problem where I can’t sleep at night. Since that’s when other people sleep and most things happen during the day, that’s an issue. I’m hoping that I’ll soon get over the anxiety and paranoia that’s stopping me sleeping then.
Carer arrived this morning 50 minutes late, as the carer who was meant to be coming phoned in sick, and I was about to get stuff done when her perfume hit me. Since she was still standing in my doorway it must have been extremely strong as I was struggling to breathe without her coming close. I asked her to leave (no strong perfumes is on my care plan and door) and it took over half an hour for the smell to dissipate. Not what I was wanting. I was hoping to wake up for the evening carer, but they came in so quietly that Johan didn’t even realise they’d been until he heard her putting the keys back into the keysafe. I had set an alarm but it didn’t go off for some reason, so I’ll try again tomorrow. The one time I wanted to be woken up it didn’t happen 😛 (I don’t blame the carer for that.)
Spoke to Sammie this evening and she beat me in the Tavern Brawl in Hearthstone. She’s definitely getting better at the game- making better decisions and understanding what to do more. I took a break to watch Doctor Who then we talked after while she was playing Minecraft and I was working on a loom band bracelet. Speaking to her cheers me up loads 😀
My setup for making a loom band bracelet. Trabasack with loom, hook and bands sorted (plus spares as I didn’t know if I’d need any more).
I’ve managed to make two loom band bracelets in the last couple of days, both reversible and based off fishtail patterns. The first is called a reversible slipfish, and I made it with glitter jelly bands from my massive box of loom bands (it has 15,000 bands in that should keep me going for a bit). I first tried it a couple of days ago but made a mistake that was really noticeable and too far down to really repair, and I wasn’t happy with the way the colours had gone so while I couldn’t sleep last night I decided to start again. The design makes my hands sore and crampy quite quickly so I have to take a break every couple of minutes, but I managed to finish it tonight while talking to Sammie. I really like the design and I want to experiment with different ways of creating it to see what happens when I’m more confident. The only problem I really had was the glitter from the bands getting everywhere, so my bed Trabasack and top are now covered in glitter 🙂 The YouTube video tutorial is at https://www.youtube.com/watch?v=qTFCGpmHvEs.
The second is called the 5 pin funky fish, and I decided to use multicoloured bands for that one. As I made it using a monster loom it was a lot easier on my hands so I could go longer before needing breaks, and I managed to complete it in a couple of hours. I like how there’s two fishtails on one side and three on the other. The tutorial video is at https://www.youtube.com/watch?v=WBEjpMut7Yw. I’m getting better at making them though I still have an issue with bands twisting and sometimes making mistakes, though that’s also giving me lots of practice in how to go back and fix them. I think I might be able to consider loom knitting as not needing to hold everything up and being able to put it down whenever is what’s making this possible for me, along with only needing to concentrate on what one hand is doing (and I alternate them to try and cope with cramping).
One side of the reversible bracelets. The SlipFish is on the left, the 5 Pin Funky Fish is on the right.The other side of the reversible bracelets.
I’m hoping tomorrow to maybe be able to go out, or at least get into my chair. I’m also going to try really hard to be awake for the evening carer as I need my hair washing desperately. The next time I get into Gateshead or Newcastle when places are open I’m hoping to go to a barbers to get all my hair shaved off, but until then I’ll just need to figure out what to do with it.
I’m also looking for dystopian young adult fiction where romance isn’t one of the central themes. This is harder than it should be. Why does it always have to involve love interests, and often a love triangle? There’s more important things to be doing! Silly books. I noticed as a kid that most pop songs were about love or romance in some way, and didn’t like it. Even now I get irritated by many songs are like that. Come up with other topics please?
Before I come off puter tonight I’m hoping to catch up on some more of the Blizzcon panels I missed, and work out what bracelet to make next. This is addicting 🙂
Has been a weird day. My original plan was to have the morning carer make me bacon and eggs, sleep until the evening carer, have my hair washed then go on my puter to speak to Sammie. It didn’t go to plan.
The carer this morning just never showed up. It was very windy so every time I heard a noise I was on edge just in case it was the key safe. Johan stayed until 10.30am then had to leave for his day service, so he gave me some fruit as I was hungry and he didn’t have time to cook me anything. I stayed awake until 12.30am and though someone knocked on the door around 11.30am, I don’t know who it was and if it was a carer they’re meant to use the key safe as I’m not able to let them in.
Since I didn’t get to sleep until 12.30pm, I didn’t wake up until 7pm, missing the evening carer (who did come, and was a nice one who is going to ask the agency why carers aren’t showing up). Once painkillers had kicked in and things I went on puter to talk to Sammie and Johan made me bacon and eggs. The food was nommy (they were duck eggs for a treat) and Sammie has had a really good day so that cheered me up really well. She told me she was glad that I’m autistic as she thinks it’s better for her, as she’s grown up knowing about it and her best friend is also autistic. I thought that was really sweet 🙂
After both downloading the Hearthstone patch we managed a quick game of the tavern brawl before she had to go to bed. She’s asked me to tell her the backstory of Nefarian and Ragnaros so I need to revise that before I next speak to her (I kinda know it from playing World of Warcraft but it’s been a while since I’ve been in Blackrock so it’s a bit fuzzy). I had a lucky win, as I was Raggy and my hero power hit Nef’s face. If it had missed Sammie probably would have won 😛
I was on a big high from talking to Sammie and planning to talk to her again tomorrow, when I saw the news about the attacks in Paris. I have a friend visiting there and he’s okay, but I really hope it ends soon. I hate it when bad things happen and I hope those behind it are brought to justice. For now I just want everyone to stay safe, and I’ll keep praying.
I got some new penguin feet slippers today. They are cool. Also was able to sit in my chair to see CFS team. They are happy I’m getting up and helped me with plan on getting up more. Also recommended wheelchair services as I’m at risk of pressure sores in my chair (not enough padding on my bum). I wore my new penguin shirt and it fits nicely.
No carer this morning. Was annoying as I wanted stuff doing. I only got 3 1/2 hours sleep before waking up this morning at 10am so am tired now. Johan and Esther are going into Durham to see light thingies so Johan cancelled the evening call so I can sleep. Silly body not letting me get to sleep until 6.30am. Being nocturnal is slightly more natural for me but doesn’t work with society. My complete randomness now works even less.
Johan has promised to take photos of light thingies. I’m going to take photos of loom band bracelets tomorrow when I’ve slept more. Hoping for more time in chair this week 🙂
