Category: World of Warcraft

Danni

An Idea

Autism, Computers, Danni, Gaming, M.E., Physical Disability, Real Life, World of Warcraft

So I had those really good days, and got to go outside. Then I had not so good days. At one point I thought I might be relapsing again but luckily it didn’t get that far. Still, I had some good days and I’m happy about them. Since then I’ve watched the Doctor Who Christmas episode (it was weird, but I think I liked it), watched several episodes of My Little Pony, watched some of the films I recorded over Christmas, and have read a couple of ebooks. Most of them with very little concentration but yay!

I’ve also been playing World of Warcraft a bit, doing dailies on my level 90s and levelling my Shaman and Monk. My WoW guild has swapped to 25 man raiding after absorbing some of the members of the previous best guild on the server that died not long ago, and is now 11/14 heroic 10 and 25 man. I’m not raiding (not well enough for the flex raids at the moment- I wouldn’t attempt heroic with how bad my brain is even at my current best) but Johan is currently on trial for a spot as a disc priest. He’s been raiding since the swap to 25 man and he’s really enjoying being at the more top end of play. There’s another disc priest in the guild (who is really good) and Johan isn’t doing too bad in comparison, especially considering he’s less well geared. He says he’s improved a lot this week over last, and I’m really hoping he gets a permanent spot. It took a lot of persuading from several raid members to convince him to apply, something I’ve been nagging him to do for months. Overall I’m really proud of how well the raid team is doing, as they’ve caught up to their 10 man progress in 2 weeks, and there hasn’t been much time to get to know each other and work together. I was seriously impressed with their Spoils heroic kill, as they were only giving it one attempt that night and they got it down in one 🙂

Anyway, my idea. For quite a while now I have wanted to set up a local tabletop gaming club (board/card games). It’ll be mostly for autistics, but other people would be welcome as well on the understanding that it’s an autistic safe space (I know it can’t be universally accessible to everyone but I’d want to make sure people were comfortable being autistic there, and make sure there’s somewhere quiet for those who find noise a problem). Currently Autistic North East does social meetups, but they are nearly always held in a pub and I know that’s a problem for some people (including me at times, even before I got ME). Both Johan and I like games, and want to try more, but I’m often not well enough and quite a lot of them require more than two players. My idea was to have a selection of games available, from snakes and ladders to Monopoly to Settlers of Catan and Munchkin, and people could play the games they wanted. I know I find it easier to socialise if there’s a distraction available, and if nothing else it would be fun to play games.

The main problem with my idea at the moment is I’m too ill to do anything about it. Being stuck in bed means it’s on hold. When I am well enough to do it (in the future) I’ve got quite a bit to work out and plan. I’d need to find a space to hold it (preferably central Newcastle as it’s easy to get to from most of the North East), somewhere we could meet on a regular basis without too many changes (as change is bad). It would preferably be not too public and have somewhere quiet nearby that people could go to if things are getting overwhelming. Ideally there would be some facilities for basic snacks and drinks, either to purchase or to consume if brought in. We’d need tables and chairs (how many would depend on how many people would be interested, something I’d need to find out closer to the time) and figure out the best way to provide games (either bringing in favourites from home, purchasing some especially for the group, or both). It might need some form of funding (especially for purchasing of games, and maybe for the venue space if I couldn’t find somewhere for free), and there might be some other legal stuff to consider that I’ve not discovered yet. Then it could only go ahead if people were interested, and I’d need to advertise the group to make sure local autistics know it exists. And it’s quite possible I’ll need some help with organising it.

I’ve thought quite a lot about it. I can’t plan it more than just the basic idea though. I was originally going to propose it to Autistics North East (and might still do so) but am wondering if it might work better being separate. I first thought about it after hearing of a similar group in Aberystwyth that a friend goes to and enjoys and thought it would be great for this area. That was years ago now though (I was still able to get out and about) and I’ve been sitting on it since. I’ve also been looking generally for tabletop gaming groups/events in the North East as I’d want to go when well enough and I think Johan would enjoy it, but not found anything yet. Even if they existed I’d still want to arrange an autistic friendly one if there was enough interest, but as that’s probably years away it would be good to know of an alternative until then.

So that’s my big idea- making the world a bit less sucky by playing tabletop games with other autistics. Don’t forget to be awesome 🙂

Danni

Improvement!

Computers, Danni, Gaming, M.E., Physical Disability, Real Life, World of Warcraft

For some unknown reason, I’ve started improving. Not just the small improvements I normally get when coming out of a relapse though- I feel much stronger, and have so far sat on the edge of the bed unsupported for 30 seconds (Johan stayed there to be sure I didn’t fall) and sat on my bed for much longer. Then I cuddled Johan for half an hour because I’d not been well enough for hugs for weeks and I really wanted them.

Last night (unfortunately I’m nocturnal at the moment but my sleeping pattern will fix itself when it wants to) I found that after the normal blehness that comes from waking up had worn off, I was feeling just as strong as I did the day before. I was playing some World of Warcraft and planned to try getting into my wheelchair, when the power went off. Unfortunately there was a fault with an underground power line and it took over 4 hours, cutting the cable and adding fuses (according to Terry at Northern Powergrid, who was keeping me informed via Twitter) to get it back up. When the estimate changed from 1am to 4am (at 1.30am) Johan went under my bed and lowered the head of it manually, as although I was doing okay with having the head of the bed up we didn’t want to risk me becoming more ill. Without the bed working or lights (we had a couple of torches though Johan had misplaced some of them) getting into the wheelchair wasn’t feasible so has been postponed until I next feel well enough. If I’m lucky that’ll be after I’ve woken up again 😀

I honestly cannot explain why I’m doing the best I have in about 2 years. Going from incredibly weak (unable to even roll over or raise my head off the pillow weak) to being able to support myself for a bit in less than 2 weeks is amazing. I’m incredibly grateful for it, and I’m hopeful it’ll continue and I might even get better completely. If not though, I’ll remember these days as good days anyway. I think resting plenty might have had something to do with it, and there’s prayer as well which I know can work sometimes, though not always as expected.

I’m not completely better. My digestive system still hates me, I’m still getting a lot of nausea, pain is still a big problem. I still have a some muscle spasms, though they’re mild at the moment. But I’m doing so much better than I was even at Christmas that it feels amazing, and I really want this to be a long term thing. I’m praying 🙂

Danni

WTB: Better Neighbours

Autism, Computers, Danni, Gaming, M.E., Minecraft, Penguins!, Physical Disability, Real Life, World of Warcraft

Been trying to write a proper blog post for ages. Brain not working enough. Decided on a list instead to get things down.

  • Blizzcon happened. Was amazing. Still not watched everything I wanted to (kept falling asleep) but I’m very excited for Warlords of Draenor and Hearthstone. Heroes of the Storm sounds good too.
  • Have been playing Minecraft recently. Currently working on automating all my machines and breeding bees. Advice from friend who has done bee breeding is don’t. There is a lot to it so he might have a point 😛
  • Sometimes playing World of Warcraft, especially flexi runs with my guild. Brain brokened = terrible healer. Still fun though 🙂 My UI is buggy and I’m not well enough to sort it out.
  • Wanted to write something for the This is Autism flash blog. Wasn’t well enough. Instead read lots of blog posts and they were good. Linky ->  http://thisisautismflashblog.blogspot.co.uk/
  • Health is not so great. Seems this time of year is not good for me. Told CFS team I was improving then a week later started deteriorating again. Having sleep paralysis and other scary symptoms again.
  • Neighbours are main cause of deteriorating health. They are being really noisy again. We have told the council and there are anti social behaviour cases against both upstairs and across from us (upstairs are worse but across has been bad as well). I haven’t have a full night’s sleep since across from us returned from who-knows-where.
  • Our key safe was stolen. Coincidentally, it was stolen after the upstairs neighbours were watching my carer use it. Because of that our flat and both communal doors have had to have the locks changed. That is a big hassle we could have done without. It also means we’re back to Johan opening the door for the carers, and he’s missing out on stuff he wants to do.
  • For now, my care and equipment stuff is on hold. My GP wants me to see the consultant again before having the case conference about it. I don’t think my GP realises how ill I am, as she keeps wanting me to go for hospital appointments and I’m not really well enough. I was discharged from the consultant as I was too ill to go see him, when I was doing a lot better than I am now. Constantly being asked about it is not helping.
  • I’m becoming less able to do certain stuff. Emails are impossible (I’ve been trying to write one for the past two months, and it’s urgent) as it communicating the information to someone else to write it for me. Speech is getting harder. Doing a food shop online is nearly impossible, and Johan is struggling as well. I am getting a bit concerned about it.
  • Had first McDonalds in over a year. Would be on a day where my digestive system was in full rebellion so I couldn’t enjoy it. It was the day Johan felt up to getting it though so I didn’t want to miss the opportunity.
  • I think I’m losing weight again. Can’t be certain but my clothes/pyjamas are feeling looser and Johan’s noticed my fingers are looking thinner. I really need to keep my weight up but eating is hard 🙁
  • I have Christmas to sort out, especially Sammie’s Christmas and birthday presents. Her main Christmas present is ordered but I need to get everything else. I have some ideas but need to check they’ll work, which means writing that email…
  • I want to swap some of my distraction spoons (that I use for watching telly, gaming and reading) for doing stuff spoons (for use on food shops, emails and other stuff). Unfortunately when I’m not distracting myself then the pain and blehness and feeling horrendous gets worse, and that’s what is interfering with the getting things done.
  • I have not been on social networks or up to chatting much recently. See blehness and stuff.
  • I have finally caught up with the last season of Doctor Who and am looking forward to the 50th anniversary episode. Not sure if I’ll be able to watch it as it’s broadcast though I’ll try 🙂
  • My Virgin Media TiVo box now has Netflix. This makes it easier to watch stuff on there without needing to turn my computer on first. Only UK stuff but there’s some awesome kid’s stuff I can watch when not well 🙂
  • I have penguins. Penguins are awesome.

I’m sure I’ve missed tons of stuff, but at least this way I’ve got something down.

Danni

Minecraft is Awesome

Autism, Computers, Danni, Gaming, M.E., Minecraft, Penguins!, Physical Disability, Real Life, World of Warcraft

I think I might not be very well. The last few days I’ve needed extra meds, have spent most of my time asleep, and have felt rather more rotten than is normal for me. I feel bad as I’ve mostly been asleep when the carer is here so they’ve not been able to help, and I keep needing to wake Johan up so he’s not getting enough sleep. I’m hoping this is just a blip and not a relapse.

When I have been awake and fully drugged up I’ve been playing Minecraft on my WoW guild’s server. Have set up some mining turtles on the mining world (Mystcraft age), created some Ender chests, and made myself some long fall boots (Portal mod), quantum leggings and helmet and a GraviChestPiece which means I can fly as if I’m in creative mode while in survival, as well as some other funky stuff. Johan has also been playing with me and we have teleporters set up between our bases so we can help each other out. We’re still way behind Lather on technology though, as he has all his machines automated and has a nuclear fusion reactor. He has helped us both out a lot though and meant we could take shortcuts.

I’ve been enjoying Minecraft and it’s been a good distraction, but after becoming massively nauseous this morning I’ve realised while this ill I should probably rest more and play less Minecraft. Blizzcon is this weekend and I want to be well enough to watch that so I think I’ll skip the computer for a bit. I’ve not really been playing WoW the last week or so but haven’t minded the break too much. I have so much I want to do and not enough energy or health to do them all 😛

I’m glad my brain is working a little better now though than it was. I’ve been reading ebooks and fan fiction, mostly teen and young adult dystopian fiction, and though I’m still a lot slower than I used to and my recall is terrible I am able to read them, which is good. Will be a while before I’m back up to three books a day (partially as I don’t have unlimited money and the library’s ebook range is tiny compared to their physical range, partially as I’m so slow) but I’m managing two or three a week now. I’m tracking the books I want on Goodreads and Luzme- the latter tells me when those I want are reduced in price so I can pick them up while they’re cheap or free 🙂

So a mixed bag really. The last blog post I wrote I pressed publish before I’d finished writing it on the Android app, and was too out of it the fix it then it had been too long so I left it. At least I’d finished the paragraph before publishing 😛 We ended up having one ring at the door on Halloween but Johan wasn’t coping so didn’t answer it. I wish I could have as I’d love to have seen some kids in costume having fun (I heard them and they sounded quite young).

Tonight is Bonfire Night. I can’t see fireworks from my bed so I’ll keep the ear plugs and defenders ready and hope they’re not too noisy. Maybe next year I’ll get to go to the organised display as it’s not too far away. We’ll see 🙂 In the meantime the penguins are looking after me so I’ll be fine.

Danni

Computer Games are the Best Distraction

Autism, Computers, Danni, Gaming, M.E., Penguins!, Physical Disability, Real Life, World of Warcraft

I have spent most of the last month playing computer games, which is good. Mostly World of Warcraft (enjoying Flexi with my guild and Timeless Isle stuff, and levelling a couple of new characters) but I’ve also been playing a bit of Minecraft (Feed the Beast Ultimate) with my WoW guild on their server, and on Monday I got a beta key for Hearthstone. I’m so happy to be well enough to play lots of computer games 🙂 It does mean I’ve been not as social on Twitter and messengers as I was, but it works better for distracting me from the pain and blehness 😛

I’ve also been watching a bit more television. Since the cricket has finished Johan wasn’t watching the big telly in the living room, so he brought the telly in here and he’s now using my old monitor with his computer. This works better for me as I can see it properly and can change the volume (something I couldn’t do before), and it works for Johan as he now has four monitors connected to his computer (two of them are mine). I’ve been watching a bit of Penguins of Madagascar and The Great British Bake Off, so not much concentration needed but they’re fun 🙂

I’ve also been able to be propped up more in bed by raising the head on good days. It’s getting easier and I’m slowly raising how high I am sitting up so that hopefully I’ll be able to do it more. I have to be careful not to go too high though as then I feel really dizzy and faint, and I need to use my neck pillow for support or my head flops. Still I’m happy that I am improving a bit in that area 🙂

The two areas I’m still doing really badly in are movement and touch. I’m still very weak and if I overdo the rolling over (normally trying to grab stuff that’s fallen or slightly out of my reach) then I get a lot of pain and muscle weakness (and often feel dizzy and nauseous as well). Being touched (or having too much pressure on me) causes me a lot of pain and general worsening of symptoms. Having a bed bath will make me feel terrible for a few days so only happens occasionally. The combination means getting out of bed isn’t going to happen unless absolutely essential until I can get a hoist, as at the moment Johan has to drag me (lots of  movement and touch which is nearly unbearable).

I’ve tried twice to get to the hospital for my gynaecology appointment. Both times Johan had got me into my wheelchair only for the ambulance people tell us they couldn’t take me. The first time the ambulance wasn’t big enough and he didn’t have the straps. The second time the ambulance was big enough, but again they didn’t have the right straps. Each time we have to rebook the ambulance and contact the department to make sure they have a hoist available incase I need an examination. It is getting very frustrating. The worst thing is if it were at the hospital 5 minutes away Johan would be able to get there- he’s already dragging me into my wheelchair and less than 5 minutes on the bus is actually less stressful than the patient transport ambulance for me (we’re lucky to live in an area with a decent accessible bus service). For some reason though my appointment is near the MetroCentre, which is a good 20 minutes away and means I definitely need an ambulance. I’m also worried about the lack of emergency department there- I hope I won’t need it but I was doing a lot better than I am now when I ended up in A+E from a normal outpatient appointment a couple of years ago, and being so far away from home scares me.

We ended up moving servers again. That was fun (not). Sorted now and I think everything will work out better. Going without my emails for a few hours was hard 😛

We’re also having issues with social services and the care agency not understanding my needs. They don’t understand autism and the need to know what is happening and when. I think I need an advocate. Not got the energy or the spoons to figure it out though (it requires a different type of spoon to those I use for gaming- I’ve tried not gaming to do other stuff and it doesn’t work unless I know exactly what to do and I don’t in this situation). Johan is also struggling so I want to find a support worker to help him. That is also hard and beyond me at the moment.

I bought a new Nexus 10 as my old Transformer was dying. It works so much better than my old one and I’m really enjoying it. Johan is a bit jealous, as he only has the Nexus 7 😛 I was trying to hold out for the announcement of the next one but my communication difficulties when my Transformer was misbehaving and the fact we’ve not heard anything yet meant I just went for the current one. I’m so glad I did though and I’ve ordered a purple case to try and protect it and make it look pretty 😀 I’m also doing well with saving for Christmas and should have no problems there.

Today I am grateful for medication that works (even a little bit), warm penguins, and sunglasses. They help. My friend Kirrus sent me a little penguin and a penguin keyring and some postcards (I think- hoping I not got them confuzzled with something else) in the post which was awesome. Pocket Pennies sent me a purple penguin hat which is very me 😀 Happy Danni 😀