"I find penguins at present the only comfort in life. One feels everything in the world so sympathetically ridiculous; one can't be angry when one looks at a penguin." – John Ruskin
Ponies are good. Ponies show is very good for Danni as not too hard to understand and cheerful and cute and fun. Johan also likes Ponies but says he is not a Brony, even though all a Brony is is a man who likes Ponies.
Danni frustrated at inability to sit up straight, when can do everything else properly. Danni also frustrated at silly amount of floppiness.
Danni shower be fixed, probably in May. This because the shower fixing people are being changed over the next few months. Danni toilet also be fixed, which means a new floor. Have been told this will be blue. Will need a full assessment for shower chair because cannot use a standard one because of silly floppiness and not being able to sit up straight.
Danni play lots of World of Warcraft when on computer. Danni die a lot because no concentrate, and Danni need a new mouse as Danni mouse double clicking when single click. Danni brain is also brokened. Danni want Johan to wake up but Johan went to sleep at 5am so it is too early to wake him up. Danni hungry and want some food. Danni frustrated that Danni can’t get food by herself, and needs Johan to do it for her. Danni decided she doesn’t like M.E. at all because it makes her like a baby crossed with an old person who is silly floppy and unable to do things properly.
I’m still improving physically. Sitting in my computer chair is no longer a problem, and I can manage it for several hours without getting any worse. The only problem is movement makes me very ill, so if I try and go in my wheelchair to the bathroom I start feeling really dizzy and sick. As the bathroom is quite a distance away by wheelchair thanks to how big our rooms are, I’m using the commode for now. This also has the advantage of me being able to use it when I want without asking, as I can transfer by myself again 😀 (Johan says emptying it isn’t any more difficult than pushing me into the bathroom, so he doesn’t mind).
Cognitively I’m not doing too brilliant. There’s been a slight improvement, but writing emails is beyond me, as is understanding Facebook. I am however managing to play quite a bit of World of Warcraft, and since I’ve not been on for ages I have lots to catch up with. This week the Darkmoon Faire is on, and they’ve changed it since the last time I was there (the changes were in place last month, but I was too ill to see it then). It now has its own island, lots of games and quests, and I’ve been having a lot of fun with it 🙂 My favourite game is the ring toss, as I never need more than one token for that 😛 Also available there are replicas of some of the sets no longer available, including the Devout set I want for Danni, my priest. I’ve managed to get enough prize tickets for the robe, and have done some transmogrification of other items to match it while waiting to get the other items in the set. I may keep the witch’s hat though, as I like that 😛
I’ve also been doing quite a lot of heroic dungeons on Danni, as the new ones are very short and easy, and (as I said to one of my groups) it doesn’t matter that I’m now rubbish at healing because no-one dies anyway 😛 I’ve also ran a bit of Raid Finder, which is interesting but requires more concentration. I am definitely a lot worse at healing than I used to be, and was normally one of the bottom healers, but it was fun and no-one yelled at me, which was good.
Since I’m now able to sit up and do more, I’m going to start making lists of things I want to do. I have television programmes I want to catch up on, lots of things in World of Warcraft I want to do, and films I want to watch. I also have blog posts I want to write, but my concentration isn’t there for them. I’ve got a couple of them in draft form that I’ve started, so I may have a look after this to see if I can finish one of them. I’ve also still got two emails to write, so maybe they should come first. I phoned Sammie on Monday and that went well, so I’m hoping to phone her every weekend to see how she is and things. I’m going to buy a stereo Bluetooth headset for this as I’m finding it hard to hear her a lot of the time and being able to hear with both ears may make it easier.
I’m not sure how I’d describe my M.E. right now. It’s nowhere near as severe as it was, but I’m still housebound and mostly stuck in one room, especially since moving makes me feel so ill. I only manage to get on my computer as it’s very close to the bottom of my bed, and I can go straight from the bed onto my computer chair. Once I’m in my computer chair I’m reluctant to get out of it again as the moving between chair and bed also makes me very dizzy and nauseous, though it eases off quickly once I’ve stopped moving. I’m able to eat okay, and even manage a spoon sometimes 😀 Being able to sit up though (even in my reclining computer chair) is brilliant, and playing games online (both World of Warcraft and The Sims Social) is a brilliant distraction from the pain and how ill I feel.
I’m also very happy at the moment. Some of this is being really grateful for what I’m able to do now, and for any improvement. Me being happy is also helping Johan’s mood, which is great. I still have the occasional meltdown, but that’s mostly due to sensory overload and is over quickly. Most of my penguins are now sitting on the sofa, as my single bed isn’t big enough for them all and I can see them from my bed there. Tomorrow bidding opens again for more council houses, and we should get somewhere soon. Our urgent priority is for two bedroom bungalows or ground floor flats, with step-free access and a level access shower. We’re not too fussy on where we move to so long as there are decent bus links, but ideally I want to be along Durham Road or close to there because it’ll be so easy to get to Gateshead and there are normally a lot of shops and facilities. The two bungalows I bidded on over Christmas were both in Birtley, which would be awesome (I also bidded on a three bedroom house in Blaydon, but we won’t get that even though it’s adapted- it was the most suitable of the other choices though).
Somehow this outpouring of thoughts has gotten very long. How come I can type really long blog posts in not very long (about 15 minutes on this one) but not short emails or blog posts on important subjects? I don’t know 😛
Today has been a World of Warcraft day. I have spent far too much time sitting at my computer playing that game. The reason for this is today patch 4.3 – Hour of Twilight was released. To people who now have no clue what I’m talking about, this means there’s lots of new stuff to do in the game that there wasn’t yesterday.
The first thing I did was get Danni sorted with some nice gear. I decided that until I get around to farming a proper pretty set of armour, I was going to wear Black Mageweave (I am a tailor so made it myself), which is less pretty and more sexy. Up to now I’ve not seen anyone else wearing it, so that is good.
I then started dumping most of my old gear from my bank into void storage. And got angry because some of the items weren’t allowed in, for vague reasons. Like my Ashen Verdict ring that I kept from Ice Crown Citadel. I managed to dump quite a bit in there though, and that meant I could dump stuff from my bags into my bank, so now I can actually use my bags again. This is good.
After a long rest, I went back on to do the new 5 man dungeons. We got a mostly guild group together, and had a pug mage from a different realm who was awesome and gave me cookies. The new dungeons were a bit challenging but not too hard, and were tons of fun. I did sit up for too long so I could complete them all (we had a few wipes while learning what to do and with me occasionally failing) but it was worth it. The individual dungeons are short enough that if I’m having a good day I should be able to run them, so that’s awesome.
There’s also a new raid, but I’m not geared enough or well enough to try that yet. Maybe when I improve a bit.
Johan went out today to the MetroCentre. Apparently it was packed. This may have had something to do with a strike that was going on, that meant most of the schools were closed, among other places. He didn’t really buy anything that I saw, but did use his mobile phone to buy a McDonalds on the way home, paid for by Google. That was cool, though I want a McDonalds and can’t have one because the bus drivers won’t let Johan carry one on for me 🙁
I am now hungry. I have to wait for Johan to complete a dungeon before he can even start cooking. This means I’ll have to stay up late. I’m not particularly happy about this. At least I can watch Penguins in the meantime.
It is hard for me to write as my brain keeps getting stuck. I hear something and have to repeat it lots and can’t stop it. I am also having problems trying to translate stuff into proper English with proper grammar.
Not sure why I am having a brain stuck day, just that I am. I will sleep soon and see if that helps.
Today I managed to rename my main character in World of Warcraft, from Danní to Danni. This made me happy. Blizzard let me have the name as someone else had used it but only for a level 1 and it had been inactive for a long time. This should make things easier for my guildies and things, and it makes me happy to be able to have my proper name in World of Warcraft 😀
I had jelly and ice cream. My mouth was being silly and forgetting how to chew, but that is not important for jelly and ice cream. It also kept breathing the food in instead of swallowing it, which is making my chest a little bit sore. I am not sure why it is being silly.
Mixed day today. Went on my computer after waking up, spent too long on there (silly Danni) but painkillers helped with the pain and was in a good mood this morning. Johan also awake early (I woke at 4.30am, his alarm went at 6.30am) as he was going to Colin’s wedding today. After spending 20 minutes persuading him to give me cuddles instead of dozing on the sofa, he gave in and we both had an enjoyable half an hour on my bed. Then he got me dressed (Diablo 3 t-shirt for the win!) and went and sorted himself out.
We hadn’t arranged anyone to look after me as I had been hoping to attend the wedding, and when it became clear I was too ill it was a bit late to ask anyone, and we also figured that as the carers would be coming and he was close enough if there was an emergency, we’d be able to cope. He left for the wedding at about 10am, when the carer was due to arrive.
She didn’t turn up. I sent Johan a text message at 10.55am (wedding was due to start at 11am) to tell him, so he could contact the agency, which he did at 11.30am (after the ceremony was finished). She eventually turned up at 11.50am, but didn’t come in, only knocked (we leave the door unlocked for the carers so they can come straight in) forcing me to crawl to the front door, and causing me massive amounts of pain. She helped me back into bed (after fetching my wheelchair from the living room) then kept asking me lots of questions, that I was in too much pain to answer. In the end I had to ask her to leave, as I was scared (I was close to melting down at this point). I asked Johan to come home, and he did, missing the wedding meal. He phoned the agency and told them we’re not happy, listing all the reasons.
Soon after he arrived back home, the post arrived, including my corset. He helped me get it on, and I was able to sit up straight for the first time in a long time 😀 It’s also beautiful, so I’m really happy with it. I’ll need to figure out lacing it, and what to wear it with, but I already love it and I’ve only worn it for 20 minutes. I may use it to be able to sit up to get to the appointment next week (which is on Wednesday, as the letter arrived today). I’m still worried about it, but the corset will at least prevent me from flopping (and it’s comfortable to lie in, as well).
I’m now planning on sleeping, but will have to ask Johan if he wants to go to the wedding party thing tonight. I’m still in massive amounts of pain, and I’m hoping for the least amount of payback from today (I’m still suffering the payback from last Wednesday- mostly more pain than normal and less stamina for stuff, and needing to rest more).
